Anonymous kidney donation is on the rise, fueled by compassion
Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America Heart Institute, not only wears a Donate Life bracelet, but already has donated one of her kidneys to someone she never met.
Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America Heart Institute, not only wears a Donate Life bracelet, but already has donated one of her kidneys to someone she never met. (Fred Blocher, McClatchy-Tribune)
•Living Kidney DonorsFind More Information About How to Be a Hero & Save a Life at UW. UWHealth.org/LivingDonor
By James A. Fussell, The Kansas City Star
6:36 p.m. CDT, May 29, 2013
The idea kept nagging at Aimee Bultemeier.
"I have two perfectly good kidneys, and I only need one," the 37-year-old nursing assistant thought. "I could save somebody's life."
Here's the thing: She had no idea who that somebody was.
It wasn't a friend or family member. Just another human being who was waiting for a chance at a new life.
For Bultemeier, that was enough. The single mother of two called the Midwest Transplant Network in Westwood, Kan., and volunteered to have major surgery to save the life of a stranger.
She is one of a growing number of anonymous kidney donors nationwide. Such altruistic, nondirected organ donations have grown in recent years, experts say, thanks to the Internet, emotional videos on YouTube and the reach of social media.
In 2011, the latest year complete statistics are available, there were 159 anonymous kidney donors in the United States.
"This was unheard of until the late '90s," said Anne Paschke, a spokeswoman for the United Network for Organ Sharing in Richmond, Va. "The first ones we recorded were in 1998. And if you go back a dozen years, there were only 30."
The Midwest Transplant Network also has seen more interest in such donations.
"We've seen a steady increase in calls each year," said Catherine Nash, the network's family services coordinator. "We probably get 30 to 40 people a year calling with questions. Of those, about 20 follow through. Then, on average, two of those (donate).
"But 100 percent of our callers are coming from an altruistic standpoint. They want to help. They've seen the statistics about people dying waiting for a kidney."
While people are born with two kidneys, organs that make urine and filter waste from the blood, they can function normally with just one.
"We think about greed and narcissism and all the shootings," psychologist Bruce Manley said. "But we forget that there is still a very large number of people who are doing good and decent things for other human beings. This is just an example of that. Then if we look at the role that social media plays, we can start to see why this is happening at this moment."
Psychologist Renee Dietchman has another theory.
"Typically when times are tough, such as in the Great Depression, people want to help," she said. "If they can't help financially, maybe they help out by giving more of themselves."
Bultemeier works on the transplant floor at the Mid-America Heart Institute at St. Luke's Hospital in Kansas City, Mo., and is familiar with such cases.
"In 2010, I became close to two guys waiting for heart transplants," she said. "They were both single parents and both close to my age. It just really touched me; more or less broke my heart. I mean, that could be any of us.
"I just couldn't imagine being young and single and a parent and needing an organ to live, you know? And so pretty much that's when it just was clear as day to me."
Before making her final decision, she did a lot of praying and Internet research. Then she told her mother, Kathy Hood, who worried.
After all, Bultemeier's former husband, the father of their daughter, Lexi, had died of a brain aneurysm.
"I worried that Aimee might be the only match for her if she ever needed (a kidney)," Hood said. "She said, 'Mom, the chances of that happening are so slim, and I could help save a life now!'"
Also, there is no guarantee a parent will be a match for a child.
After Bultemeier contacted the Midwest Transplant Network in September 2010, it took nine months of interviews, medical tests, mental health screenings, background checks and in-person interviews to make sure she was a good candidate.
Nash said donors must not only undergo multiple screenings, they also must realize that they're purposely putting their body at risk to help another person.
Bultemeier passed on all counts.
"She is just so amazing and so positive," Nash said. "Her wanting to donate reflects how she lives her life."
The hospital where Bultemeier works gave her eight weeks of paid time off to donate and recover.
"My boss was amazing and supportive," she said. "I wish more businesses would do that."
A year and a half after donating, Bultemeier doesn't know much about the person who received her kidney.
"A few months after I donated, about October of 2011, I received a card from my recipient," she said. "It was very short and sweet. I know it's a guy. He said he was eternally grateful and he is doing great, and he hopes to meet me one day and get to know me."
She wants to meet him and to hear his story. She imagines she might have helped save someone with a wife and children.
"It's hard," she said in a quavering voice. "I knew going in that I might never meet my recipient. And that's OK."
The need is great
Nationally about 95,000 people are waiting for a kidney, according to the United Network for Organ Sharing. On average, 13 a day die, according to the National Kidney Foundation. More than 400,000 people in the U.S. are on dialysis.
For more information on kidney disease and organ donation, visit the National Kidney Foundation website at kidney.org.
sunday@tribune.com
http://www.chicagotribune.com/health/sc-health-0529-anonymous-kidney-donation-20130529,0,7168758,full.story
www.facebook.com/kidneystories
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Thursday, May 30, 2013
Sunday, May 19, 2013
KIDNEY STORIES: KIDNEY FOR DAVE WILSON
I am on a mission to get David Wilson a kidney, he is 48 and has been on Dialysis for 5 years and it is taking a toll on him emotionally and physically.
Description
He is in need of a Kidney and I can't donate since I do not match his blood type. He is type O and therefore only type O can donate, which makes this an even harder task. He has given and helped people his whole life and now he needs help to get his life back.
TAGS: kidney for dave wilson, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: MY DAUGHTER IS LOOOKING FOR A KIDNEY DONOR
Living with kidney disease myself, I am passionate about fighting this deadly disease. I know someone somewhere will benefit from my strength and struggle.
Being diagnosed at 22 with end-stage kidney disease was a shock. I cried. I was depressed and discouraged. But I was surrounded by special people who loved and encouraged me. I know now that instead of life ending with this devastating diag...nosis, life began for me. I am not defined by this disease, but by who I am. Today, people tell me I inspire them with my smile and my energy, even after three hours of treatment at the dialysis center.
I feel empowered when I help empower others. Living with kidney disease myself, I know what it means to receive desperately needed support. That's why I decided to join the fight against kidney disease.
I manage school, work, dialysis and add a little fun to my life. I am a survivor. I am a living testimony of what happens when you believe!!
Being diagnosed at 22 with end-stage kidney disease was a shock. I cried. I was depressed and discouraged. But I was surrounded by special people who loved and encouraged me. I know now that instead of life ending with this devastating diag...nosis, life began for me. I am not defined by this disease, but by who I am. Today, people tell me I inspire them with my smile and my energy, even after three hours of treatment at the dialysis center.
I feel empowered when I help empower others. Living with kidney disease myself, I know what it means to receive desperately needed support. That's why I decided to join the fight against kidney disease.
I manage school, work, dialysis and add a little fun to my life. I am a survivor. I am a living testimony of what happens when you believe!!
ANYONE INTERESTED IN BECOMING A LIVING KIDNEY DONOR FOR MY DAUGHTER PLEASE CONTACT SAINT BARNABUS HOSPITAL LIVINGSTON NJ 973-322-5646 HER name is ADDRISA ANKRAH, BLOOD TYPE IS O OR EMAIL US at LUVMIWRITE@yahoo.com THANK YOU!!
IF YOU ARE LOCATED IN PA CONTACT PENN MEDICINE HOSPITAL 215-662-6035 thank you and God bless you all. I believe God can & God will!!!
https://www.facebook.com/MyDaughterIsLoookingForAKidneyDonor
www.facebook.com/kidneystories
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KIDNEY STORIES: KIDNEY FOR OUR SISTER ANNA MARIE RUFFATTOLA MCKINNEY
In 2009, Anna had her left kidney removed due to cancer. During the surgery, they made a mistake & clamped off the blood supply to her right kidney, which caused it to die.Loss of her son @ the age of 31. She needs someone with blood Type A or O
Description
We are writing to you about our sister Anna Marie Ruffattola McKinney. It’s to let you know about her current health challenges, and how you can help. This is not an easy letter for us to write, but we know that without sending this, someone who might be interested in helping won’t have that opportunity.
In 2009, our sister Anna underwent surgery to remove her left kidney due to cancer. When the... surgeons were operating to remove her left kidney using a da Vinci robot, they made a mistake and clamped off the blood supply to her right kidney which caused it to die. Because of that error, she was left with no renal function and she currently suffers from kidney failure.
Anna has been on dialysis for almost three years. She began doing dialysis in a local clinic three days a week; however, that did not work for her. She never had a day where she felt well - she was always exhausted. They looked for other options, and researched at-home dialysis. Although the daily dialysis is much better, it is very difficult for Anna to have a normal life – everything must center on the dialysis, which takes 3-4 hours a day – sometimes longer. In addition to frequent leg cramps and blood pressure issues, Anna suffers from exhaustion and shortness of breath. Life as a dialysis patient is not easy.
Anna has always been there to help others, and she really has a positive attitude about her health issues, despite everything that has happened to her. When her older son J.T. was five-years-old, he was diagnosed with leukemia. He was in remission for three years but then required a bone marrow transplant when his condition declined. He beat the odds and survived. However, at the age of 30, he developed hepatitis from a blood transfusion he received before the transplant. In 2002, one month before his 31st birthday, J. T. lost his battle. We all miss J.T. and our hearts ached for our sister as she deals with the loss. Now, our hearts ache again because Anna is the one who needs help.
In January, Anna was placed on the list for a kidney transplant; however, we realize it could take years to find a donor. My younger sister and I both have high blood pressure, so we are not able to donate a kidney. The wait for a deceased donor is quite long, yet the benefits of receiving a kidney from a living donor are much greater. The wait for a deceased donor is 5+ years and a kidney from a living donor lasts twice as long as one from a deceased donor.
“Anna needs a new kidney, and we hope you will consider being tested to be a donor.” I know that the need for kidney transplants is extensive, and that the need is grave. Anna, as well as many, many others needs and deserves a second chance of regaining her life back.
If you can help, please do. If you know anyone who might, please forward this on. Forwarding this to your family, friends, work, school, congregation, or any other communities you belong to would be most gratefully appreciated. Any assistance anyone would be able to offer would be greatly appreciated.
If you would like to learn more about living kidney donation, please feel free to contact us or Anna’s transplant coordinator, Katrina Reedus - Kidney Transplant Clinic Coordinator, IU Medical Center, 500 n. University Blvd, Room 4601, Indianapolis, IN 46202 @ 317-944-4370 or kreedus@iuhealth.org.
Thank you so much!
Jeannette Ruffattola Fulmer jr.fulmer@comcast.net
Mary Ann Ruffattola Nicoson manicoson@gmail.com
In 2009, our sister Anna underwent surgery to remove her left kidney due to cancer. When the... surgeons were operating to remove her left kidney using a da Vinci robot, they made a mistake and clamped off the blood supply to her right kidney which caused it to die. Because of that error, she was left with no renal function and she currently suffers from kidney failure.
Anna has been on dialysis for almost three years. She began doing dialysis in a local clinic three days a week; however, that did not work for her. She never had a day where she felt well - she was always exhausted. They looked for other options, and researched at-home dialysis. Although the daily dialysis is much better, it is very difficult for Anna to have a normal life – everything must center on the dialysis, which takes 3-4 hours a day – sometimes longer. In addition to frequent leg cramps and blood pressure issues, Anna suffers from exhaustion and shortness of breath. Life as a dialysis patient is not easy.
Anna has always been there to help others, and she really has a positive attitude about her health issues, despite everything that has happened to her. When her older son J.T. was five-years-old, he was diagnosed with leukemia. He was in remission for three years but then required a bone marrow transplant when his condition declined. He beat the odds and survived. However, at the age of 30, he developed hepatitis from a blood transfusion he received before the transplant. In 2002, one month before his 31st birthday, J. T. lost his battle. We all miss J.T. and our hearts ached for our sister as she deals with the loss. Now, our hearts ache again because Anna is the one who needs help.
In January, Anna was placed on the list for a kidney transplant; however, we realize it could take years to find a donor. My younger sister and I both have high blood pressure, so we are not able to donate a kidney. The wait for a deceased donor is quite long, yet the benefits of receiving a kidney from a living donor are much greater. The wait for a deceased donor is 5+ years and a kidney from a living donor lasts twice as long as one from a deceased donor.
“Anna needs a new kidney, and we hope you will consider being tested to be a donor.” I know that the need for kidney transplants is extensive, and that the need is grave. Anna, as well as many, many others needs and deserves a second chance of regaining her life back.
If you can help, please do. If you know anyone who might, please forward this on. Forwarding this to your family, friends, work, school, congregation, or any other communities you belong to would be most gratefully appreciated. Any assistance anyone would be able to offer would be greatly appreciated.
If you would like to learn more about living kidney donation, please feel free to contact us or Anna’s transplant coordinator, Katrina Reedus - Kidney Transplant Clinic Coordinator, IU Medical Center, 500 n. University Blvd, Room 4601, Indianapolis, IN 46202 @ 317-944-4370 or kreedus@iuhealth.org.
Thank you so much!
Jeannette Ruffattola Fulmer jr.fulmer@comcast.net
Mary Ann Ruffattola Nicoson manicoson@gmail.com
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Tuesday, May 14, 2013
KIDNEY STORIES: KIDNEY TRANSPLANT FOR KENNY MOSES JOHNSON
In need of a transplant
Description
Are you an A+ or O+ Blood TYPE???????
A transplant is Kenny's best option for survival and having a good quality of life. His Kidney disease has progressed and has officially been referred for a Kidney transplant after his kidney function dropped below 20%. However, the wait for a deceased-donor kidney is longer than he may have. As a single father of two, Kenny's situation threatens his entire family. So, we now turn to his friends, family and community:
Will you step forward and give Kenny the gift of life?
This page is dedicated to finding Kenny a donor. There is no cost to you to take the test. There will be more info to follow on where you can take a test to see if you are a match. Please post your love, thoughts and prayers and share on your wall as well to get the word out. We need a donor NOW. Even if you DON'T know Kenny please share this information. Thank you.
A transplant is Kenny's best option for survival and having a good quality of life. His Kidney disease has progressed and has officially been referred for a Kidney transplant after his kidney function dropped below 20%. However, the wait for a deceased-donor kidney is longer than he may have. As a single father of two, Kenny's situation threatens his entire family. So, we now turn to his friends, family and community:
Will you step forward and give Kenny the gift of life?
This page is dedicated to finding Kenny a donor. There is no cost to you to take the test. There will be more info to follow on where you can take a test to see if you are a match. Please post your love, thoughts and prayers and share on your wall as well to get the word out. We need a donor NOW. Even if you DON'T know Kenny please share this information. Thank you.
Got the letter today I am officially on the national kidney list for a donor. Also UCSF called me today and told me that someone signed up to be my donor filled out the information but somehow they did not get the persons name They can fill it out again at ucdonor.org or call Don at UCSF telephone #(415) 3534642
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KIDNEY STORIES: MANNY MONTOAYS KIDNEY DONOR SEARCH
Kidney donor search and fundraising page. Our fundraising will include events to help fund our donor with expenses not covered by our insurance such as transportation, hotel etc. during the transplant process.
Description
Donating one's kidney to someone in need of a transplant is an important decision and a unique gift. Kidney transplantation enables a patient suffering from kidney disease to stop dialysis treatments, and enjoy a life filled with more freedom, energy and productivity. This page is set up for our kidney donor to assist with funds that may accrue during down time through the donation. Travel, Hotel, Wages . After care as well as any Medical not covered by our insurance.
My husband developed Type II Diabetes in his early thirties. He started out with medication and then on to insulin. Manny was diagnosed with renal failure about five years ago. His number were low but doctors were able to raise them a bit. Two years later we were in surgery inserting a peritoneal catheter in Manny's lower abdomen. Manny now does xchanges 4 to 5 times daily. We've had several screeners and inquiries about how to get tested but yet to find a match. Manny is O+ and so am I, however I was unable to test any further do to medical issue myself. I had to figure a way to get our story out. I began with a Facebook page posting bits of information on donation as well as fund raising for our donor. Manny and I would like to pay for extra expenses our insurance will not cover such as Air Fare (transportation), Hotel, etc. We have had a yard sale with many donated items from co-workers which was a success. Upcoming event we have planned a family car wash. All proceeds to go to the donor fund along with other event in the future.
TAGS: manny montoyas kidney donor search, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Saturday, May 11, 2013
KIDNEY STORIES: A KIDNEY FOR KIMBERLY L THOMPSON
Look for a Kidney transplant
Description
Looking for a Kidney transplant, , My blood type is O positive and I'm also Registered at Upstate hospital.
Looking for a Donor O positive blood type for a Kidney! to see if your qualify to be a donor or would like to get tested Please Contact R. Ellen havens @ Upstate Medical university at 750 East Adams Street, Syracuse NY 13210 The Phone number is 3154645413 or you can email her @ havens@upstate.edu or you may visit the website www.upstate.edu! Thank you
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KIDNEY STORIES: KIDNEY FOR MONICA-A GIFT OF LIFE
Dear Friends and Family,
This is probably the most difficult letter I’ve written. You see, my wife, Monica, is in need of a kidney transplant, and I need to let my friends and family know about her condition.
Monica’s kidneys failed (in a 2 year span) from a rare kidney disease that affects one in 100,000. She has been on the kidney transplant list and on dialysis for over a year. Being on di...alysis is emotionally and physically draining. To perform dialysis, she has to hook up to a machine for 9 hours every evening. During this time, she has been unable to tuck the kids in for bedtime or care for them when they are sick. She struggles each morning to get the kids ready for school since she is usually still connected to the dialysis machine. She has had several surgeries and procedures due to the complications of being on dialysis and had to give up her job because she can no longer work full time. Her doctor advised her that she should start looking for a living donor immediately. Throughout this ordeal, she remains to be the sweetest person you will ever meet and a great mother to our 4 year old daughter and 7 year old son.
Monica has had more than 4 people to genuinely offer to be tested to donate a kidney to her – but they were ruled out for various reasons.
We are pursuing a living donor for two main reasons (but there are many others), kidneys from living donors last, on average, twice as long as kidneys from deceased donors and the waiting list for a deceased donor kidney is an average of 8 years. Most people can donate who don’t have high blood pressure, cardiac problems or some other medical condition.
Here’s some basic information about kidney donation:
• People are born with an extra kidney – you only need one to live a full, healthy, long life.
• The majority of the donor surgery is done laproscopically, with tiny incisions.
• The recuperation period is generally 2 weeks for those with a desk job and 6 weeks for those whose job entails heavy lifting.
• The surgery would be done at UCLA Medical Center that has some of the best surgeons in the country.
• All medical expenses would be paid by my insurance benefits.
• Most donors say if they had another extra kidney they would donate again in a heartbeat and that it is one of the best experiences of their life.
For general information about kidney donation, please visit www.lkdn.org & click on “For Living Donors.” Or, you can also call the kidney donor information line at the UCLA Medical Center at (310)794-2798. They will send you a packet of information and you will not have to disclose any personal information at this time. Feel free to pass this letter along to people that you know and “like” Kidney for Monica-A Gift of Life on Facebook. Lastly, please keep us in your prayers --Matthew 21:22 And whatever you ask in prayer, you will receive, if you have faith.”
Thanks for your support and concern,
Delshaun Lanier
https://www.facebook.com/pages/Kidney-for-Monica-A-Gift-of-Life/218882284859645
This is probably the most difficult letter I’ve written. You see, my wife, Monica, is in need of a kidney transplant, and I need to let my friends and family know about her condition.
Monica’s kidneys failed (in a 2 year span) from a rare kidney disease that affects one in 100,000. She has been on the kidney transplant list and on dialysis for over a year. Being on di...alysis is emotionally and physically draining. To perform dialysis, she has to hook up to a machine for 9 hours every evening. During this time, she has been unable to tuck the kids in for bedtime or care for them when they are sick. She struggles each morning to get the kids ready for school since she is usually still connected to the dialysis machine. She has had several surgeries and procedures due to the complications of being on dialysis and had to give up her job because she can no longer work full time. Her doctor advised her that she should start looking for a living donor immediately. Throughout this ordeal, she remains to be the sweetest person you will ever meet and a great mother to our 4 year old daughter and 7 year old son.
Monica has had more than 4 people to genuinely offer to be tested to donate a kidney to her – but they were ruled out for various reasons.
We are pursuing a living donor for two main reasons (but there are many others), kidneys from living donors last, on average, twice as long as kidneys from deceased donors and the waiting list for a deceased donor kidney is an average of 8 years. Most people can donate who don’t have high blood pressure, cardiac problems or some other medical condition.
Here’s some basic information about kidney donation:
• People are born with an extra kidney – you only need one to live a full, healthy, long life.
• The majority of the donor surgery is done laproscopically, with tiny incisions.
• The recuperation period is generally 2 weeks for those with a desk job and 6 weeks for those whose job entails heavy lifting.
• The surgery would be done at UCLA Medical Center that has some of the best surgeons in the country.
• All medical expenses would be paid by my insurance benefits.
• Most donors say if they had another extra kidney they would donate again in a heartbeat and that it is one of the best experiences of their life.
For general information about kidney donation, please visit www.lkdn.org & click on “For Living Donors.” Or, you can also call the kidney donor information line at the UCLA Medical Center at (310)794-2798. They will send you a packet of information and you will not have to disclose any personal information at this time. Feel free to pass this letter along to people that you know and “like” Kidney for Monica-A Gift of Life on Facebook. Lastly, please keep us in your prayers --Matthew 21:22 And whatever you ask in prayer, you will receive, if you have faith.”
Thanks for your support and concern,
Delshaun Lanier
https://www.facebook.com/pages/Kidney-for-Monica-A-Gift-of-Life/218882284859645
TAGS: kidney for monica a gift of life, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: KIDNEY FOR MY SISTER
This page is for my sister Christine who needs a kidney. I am setting this up to help her and maybe someone out there may want to help since I cannot help her.
Description
Details of Christine's life since her kidneys failed and present day dialysis.Details of my life as a living donor up to present day.
I want to share both the struggles my sister faces and the life of a living donor so everyone can see how normal of a life I live with just one kidney.
(FROM JIM AT KS): Christine's kidneys originally failed in 2001 due to lupus. She started dialysis that same year. She had a transplant in 2003, but that kidney failed in 2010. She was put back on dialysis. In 2012 her mother tried to donate, but it appears to have been unsuccessful. She is currently on dialysis. Corrections could be forthcoming.
www.facebook.com/kidneystories
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KIDNEY STORIES: KIDNEY FOR TANYA
Help find a kidney for our friend. Tanya (25) has been battling kidney disease since childhood and the time has come for a transplant. None of her close friends or family are a match so we have turned to social media in hope of finding a living donor.
If anyone would like more information on being a donor for Tanya you can contact Valerie Barto at Lutheran Kidney Transplant Center. She is the living donor coordinator. Her phone number is 260-435-6211. She is very friendly and will answer any questions. Thank you!
TAGS: kidney for tanya, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Friday, May 10, 2013
KIDNEY STORIES: BOB'S KIDNEY CAMPAIGN
I have IgA which runs in my family am in need of a kidney. Please check out my story by clicking on About.
Description
Hi my name is Bob Evans, no not the restaurateur, but a husband to Suzi, father of three, Trevor 42, Matt 40 and Kristen 36, grandfather to 10 adorable grandchildren ages 18 down to 3, and father-in-law to Jessica, Sara and Tim. My wife and I have been married for almost 43 years and she is my strongest supporter and the love of my life. I’ve lived in Needmore, Indiana all my life. I am 64 years o...ld and soon will be going on dialysis. My kidneys are failing due to a disease which runs in my family, IgA so no one in my family can donate; therefore I have to rely on someone outside the family.
I’ve owned my own body repair business for 50 years and I have plans to continue to work for many years to come. I’m a graduate of Needmore High School and went into the army after graduation. I am a US Army Veteran and served for six years in the Indiana National Guard. For several years now I have been a member of the Bedford Noon Lions where I’ve served as Tail Twister and Second Vice President. I am a 32nd Degree Mason and a member of the Masonic Lodge # 14 F&AM in Bedford, Indiana. I am member of two local churches, First Baptist of Bedford and Community Baptist Fellowship. As a school bus driver for 40 years, I have enjoyed driving life’s precious cargo, our children, to and from school. My hobbies include collecting old local high school yearbooks prior to the consolidation of the smaller schools in the county, and sifting through the volumes of old newspaper books I have amassed. I am an avid local history buff and will be going on the local high school TV channel regarding the area’s history of past movie theaters. I have been a participant in fund raising events such as, The Brain Games, for the local Historical Society and the Noon Lion’s spaghetti dinners. I love trivia and the old black and white television shows from the 50’s and 60’s. I cherish the times I spend with my wife, children, grandchildren, sister, aunts, and cousins as family is very important to me. I go daily to the local gym to work out as I know that this will keep me healthy longer.
I recently passed with flying colors all tests to see if I am a healthy candidate to go on the transplant list. At my age and blood type (O+) there is at least a 4 year wait to receive a kidney and the longer I wait the more my health will decline. It will be more beneficial to me to receive a kidney from a living donor as it lasts about twice as long as one from a deceased donor and will be a better match. In order for someone to donate they have to be in good health, no uncontrolled hypertension, diabetes, cancer, etc. You do not have to be type O+ to donate, as University Hospital in Indianapolis, Indiana has paired donation.
To share my journey and to contact me, go to my Facebook page: Bob’s Kidney Kampaign and share the link on your page. To inquire about donation call IU Health, University Hospital, Living Donor Coordinators Kelly Coffey, or Tracy Perry at: 317-944-4370 or 800-382-4602 iuhealth.org and tell them you would like to donate your kidney.
Won’t you consider donating to save a life? Please share this with all your friends, family, and neighbors. Thank you for taking the time to read this may God Bless. Bob
I’ve owned my own body repair business for 50 years and I have plans to continue to work for many years to come. I’m a graduate of Needmore High School and went into the army after graduation. I am a US Army Veteran and served for six years in the Indiana National Guard. For several years now I have been a member of the Bedford Noon Lions where I’ve served as Tail Twister and Second Vice President. I am a 32nd Degree Mason and a member of the Masonic Lodge # 14 F&AM in Bedford, Indiana. I am member of two local churches, First Baptist of Bedford and Community Baptist Fellowship. As a school bus driver for 40 years, I have enjoyed driving life’s precious cargo, our children, to and from school. My hobbies include collecting old local high school yearbooks prior to the consolidation of the smaller schools in the county, and sifting through the volumes of old newspaper books I have amassed. I am an avid local history buff and will be going on the local high school TV channel regarding the area’s history of past movie theaters. I have been a participant in fund raising events such as, The Brain Games, for the local Historical Society and the Noon Lion’s spaghetti dinners. I love trivia and the old black and white television shows from the 50’s and 60’s. I cherish the times I spend with my wife, children, grandchildren, sister, aunts, and cousins as family is very important to me. I go daily to the local gym to work out as I know that this will keep me healthy longer.
I recently passed with flying colors all tests to see if I am a healthy candidate to go on the transplant list. At my age and blood type (O+) there is at least a 4 year wait to receive a kidney and the longer I wait the more my health will decline. It will be more beneficial to me to receive a kidney from a living donor as it lasts about twice as long as one from a deceased donor and will be a better match. In order for someone to donate they have to be in good health, no uncontrolled hypertension, diabetes, cancer, etc. You do not have to be type O+ to donate, as University Hospital in Indianapolis, Indiana has paired donation.
To share my journey and to contact me, go to my Facebook page: Bob’s Kidney Kampaign and share the link on your page. To inquire about donation call IU Health, University Hospital, Living Donor Coordinators Kelly Coffey, or Tracy Perry at: 317-944-4370 or 800-382-4602 iuhealth.org and tell them you would like to donate your kidney.
Won’t you consider donating to save a life? Please share this with all your friends, family, and neighbors. Thank you for taking the time to read this may God Bless. Bob
www.facebook.com/kidneystories
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KIDNEY STORIES: KIDNEY FOR RANDY
Randy is 19 yrs old. He can accept type B or O. Shands Transplant Center @ UF. 3522650254He has been on dialysis since April 2013. His first transplant was in 2005.
Description
The story of Randy Owens, A 19 year old young man, whom resides in the city of Ocala, Fl.
He graduated from Vanguard High school. Although he has tried
his hardest to live a normal life, like the rest of his cousins, friends, and family, he simply
cannot. When Randy was 7 years young, he was diagnosed with FSGS
. In 2004, things took a turn for the worst and at that time, dialysis began.
... At the age of 10, Randy was on Hemo and Parateniel dialysis up until his first transplant
from his mother. Unfortunately, that kidney failed within the first 5 minutes, due to clotting. Randy then
went 1 year without any kidneys at all. He lived off of the dialysis machines, playing the role
as kidneys. Within that year Randy had 2 random strokes, 7 seizures, which resulted in the loss of his vision and was also paralyzed.
But as the fighter that we have all come to adore, he chose to not give up. After one long week later,
his sight and body movement finally returned.. 11 months later on December 7th, 2005
he received a kidney from a cadaver. It took one full month for the kidney to fully kick in and start
to work properly. This kidney lasted nearly 8 years. On December 29th, 2011 his kidney started to
fail, again. He lost all his body weight and tipped the scales at 155lbs. and although that sounds healthy, he
lost his weight. At 6 foot tall he weighed in at 195 pounds. He then was put on plasma freesias mixed with Bortezamib . He was the first patient at University of Shands to have this treatment. Even at the risk at hand
all he wanted was to get better, and that treatment helped his kidney last up until January of 2013.
Randy began getting very weak, dizzy, nauseous, and more severe like flu symptoms. Randy has some good
days, but mostly bad. Days in which his whole body aches, including his teeth, toes, feet, head, and ears hurt. The real question
to ask him was what didn't hurt? Randy is now on Hemo dialysis. Randy's
blood type is B+ but O and B works as well. We're not asking for someone to give their life, we're just
asking for someone to help save one. He is a fun out going teenager, looking to live a normal life
like any other teenager. Randy wants to start school and go to work. He likes playing guitar, singing and hanging with friends. He enjoys jet skiing, water sports and wants to learn to scuba dive.
He graduated from Vanguard High school. Although he has tried
his hardest to live a normal life, like the rest of his cousins, friends, and family, he simply
cannot. When Randy was 7 years young, he was diagnosed with FSGS
. In 2004, things took a turn for the worst and at that time, dialysis began.
... At the age of 10, Randy was on Hemo and Parateniel dialysis up until his first transplant
from his mother. Unfortunately, that kidney failed within the first 5 minutes, due to clotting. Randy then
went 1 year without any kidneys at all. He lived off of the dialysis machines, playing the role
as kidneys. Within that year Randy had 2 random strokes, 7 seizures, which resulted in the loss of his vision and was also paralyzed.
But as the fighter that we have all come to adore, he chose to not give up. After one long week later,
his sight and body movement finally returned.. 11 months later on December 7th, 2005
he received a kidney from a cadaver. It took one full month for the kidney to fully kick in and start
to work properly. This kidney lasted nearly 8 years. On December 29th, 2011 his kidney started to
fail, again. He lost all his body weight and tipped the scales at 155lbs. and although that sounds healthy, he
lost his weight. At 6 foot tall he weighed in at 195 pounds. He then was put on plasma freesias mixed with Bortezamib . He was the first patient at University of Shands to have this treatment. Even at the risk at hand
all he wanted was to get better, and that treatment helped his kidney last up until January of 2013.
Randy began getting very weak, dizzy, nauseous, and more severe like flu symptoms. Randy has some good
days, but mostly bad. Days in which his whole body aches, including his teeth, toes, feet, head, and ears hurt. The real question
to ask him was what didn't hurt? Randy is now on Hemo dialysis. Randy's
blood type is B+ but O and B works as well. We're not asking for someone to give their life, we're just
asking for someone to help save one. He is a fun out going teenager, looking to live a normal life
like any other teenager. Randy wants to start school and go to work. He likes playing guitar, singing and hanging with friends. He enjoys jet skiing, water sports and wants to learn to scuba dive.
TAGS: kidney for randy, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Wednesday, May 8, 2013
KIDNEY STORIES: FIND A KIDNEY FOR UNCLE MANNY
Help us Find a Kidney for Uncle Manny...Daddy Dwayne
Description
Aloha everyone,
I am starting a new page for my father, Dwayne "Uncle Manny" Fernandez... As some of you know, my father had a kidney transplant through my then-fiancé, Khari Hatten, and lived an active, dialysis-free life for 8 years thereafter.. Unfortunately, this past December, the kidney transplant shut down and he became very sick. We are reaching out through the biggest social media outlet to find him a new, healthy kidney. The more word we can get out to help him, the faster we can hopefully save him. If you know our dad personally, you know that he is a wonderful man, a great role model, and now, the best grandpa my son could ask for. Please share this page and help us find "Uncle Manny, Daddy Dwayne" a new kidney. Any questions, (blood type, etc.) inbox, please. Mahalo, Mailani Fernandez
I am starting a new page for my father, Dwayne "Uncle Manny" Fernandez... As some of you know, my father had a kidney transplant through my then-fiancé, Khari Hatten, and lived an active, dialysis-free life for 8 years thereafter.. Unfortunately, this past December, the kidney transplant shut down and he became very sick. We are reaching out through the biggest social media outlet to find him a new, healthy kidney. The more word we can get out to help him, the faster we can hopefully save him. If you know our dad personally, you know that he is a wonderful man, a great role model, and now, the best grandpa my son could ask for. Please share this page and help us find "Uncle Manny, Daddy Dwayne" a new kidney. Any questions, (blood type, etc.) inbox, please. Mahalo, Mailani Fernandez
FOR EVERYONE IN HONOLULU, IF YOU'RE WILLING TO GET TESTED, QUEEN'S MEDICAL CENTER HAS DAD ON FILE FOR DONORS, HE IS BLOOD TYPE A POSITIVE... AT THE LEAST, YOU CAN HELP BY SHARING THIS PAGE ON YOUR TIMELINE AND SUGGESTING OTHERS LIKE AND SHARE AS WELL... MAHALO NUI LOA!
Hey Everyone,
Just a little background, for those who may want to know... When my dad was first told he needed a transplant in 2004, I (Mailani) immediately offered him my own, but he refused because most of his diseases are hereditary, therefore he wouldn't take them from my sister or myself. My mother could not offer hers as she was still active duty military. My fiance at the time beca...me his donor, and it lasted until this December. My mother, now being retired, is trying to offer hers, but Queen's is not offering her the test, and she could possibly not be a match... That is why I am seeking out the biggest possibility of reaching out to my dad's friends and family, and even strangers, to find him a match asap. The procedure is minimal and I believe Khari (his previous donor) was out of work for a week at most, but left the hospital after a day or 2 at St. Francis. If you'd like to help, you can go to your doctor and tell them you'd like to get tested to be a kidney donor for BLOOD TYPE A, and they can help you from there. Please help us keep our daddy around and healthy so he can enjoy life and seeing his grandson, (my son Tyson) make it to the NFL or NBA one day! We love all of you for sharing this page and helping us in our efforts. Mahalo Nui Loa from our family. -Mailani Fernandez
Just a little background, for those who may want to know... When my dad was first told he needed a transplant in 2004, I (Mailani) immediately offered him my own, but he refused because most of his diseases are hereditary, therefore he wouldn't take them from my sister or myself. My mother could not offer hers as she was still active duty military. My fiance at the time beca...me his donor, and it lasted until this December. My mother, now being retired, is trying to offer hers, but Queen's is not offering her the test, and she could possibly not be a match... That is why I am seeking out the biggest possibility of reaching out to my dad's friends and family, and even strangers, to find him a match asap. The procedure is minimal and I believe Khari (his previous donor) was out of work for a week at most, but left the hospital after a day or 2 at St. Francis. If you'd like to help, you can go to your doctor and tell them you'd like to get tested to be a kidney donor for BLOOD TYPE A, and they can help you from there. Please help us keep our daddy around and healthy so he can enjoy life and seeing his grandson, (my son Tyson) make it to the NFL or NBA one day! We love all of you for sharing this page and helping us in our efforts. Mahalo Nui Loa from our family. -Mailani Fernandez
https://www.facebook.com/pages/Find-A-Kidney-for-Uncle-Manny/595457820464329
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KIDNEY STORIES: SHARE YOUR SPARE WITH MELISSA
If anyone is interested in being tested for my friend Melissa please contact Grace, Melissa's Transplant Coordinator at Fairfax Hospital, VA 703-208-6035. If you have questions I would be glad to hear from you contact/text me at 516-991-5001.
Description
Hi, my name is Melissa and I am a daughter, wife, mother, and grandmother. I have lived a very active life however, now my life has changed.
I have Polycystic Kidney Disease (PKD) which is a genetic kidney disease. For over 5 years my kidney's have been failing and finally in July 2012 they stopped working. Since then I have been doing periteneal dialysis, at home. Before I had to discontinue working I managed a Family Practice law firm. Now I keep myself busy as an artist and bee keeper. I love this life!
Unfortunately, due to genetic and other complications, my family is unable to
donate to me. If you could share your spare and this feels right to you, I would be forever grateful. Please, I need just one kidney and I will take such good care of my precious gift.
In order to be considered, and you have blood type of either type A or O then
I have Polycystic Kidney Disease (PKD) which is a genetic kidney disease. For over 5 years my kidney's have been failing and finally in July 2012 they stopped working. Since then I have been doing periteneal dialysis, at home. Before I had to discontinue working I managed a Family Practice law firm. Now I keep myself busy as an artist and bee keeper. I love this life!
Unfortunately, due to genetic and other complications, my family is unable to
donate to me. If you could share your spare and this feels right to you, I would be forever grateful. Please, I need just one kidney and I will take such good care of my precious gift.
In order to be considered, and you have blood type of either type A or O then
TAGS:share your spare with melissa, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: MESHIA'S HOPE
Hello, my name is Meshia and I am a kidney patient. I was diagnosed with end stage renal disease (ESRD) at the early age of seventeen. I was placed on dialysis for a short period of time and was blessed to have received the gift of a kidney transplant in March of 1995. My transplanted kidney changed my life and my quality of life was back again. Although my life changed drastically, I was able to graduate from high school and continue on with my life.
My transplanted kidney began to fail in July of 2010. I am happy to be able to say that my kidney lasted for fifteen years! The average life of a cadaver (from a deceased body) is 8-10 years. During that 15-year span I completed my Bachelor’s degree, got married and traveled to many places.
I was placed back on peritoneal dialysis in August of 2010 and later transitioned to hemodialysis. Despite the many challenges I have faced; almost losing my life to pneumonia, months of rehabilitation, two total hip replacements and two fractured feet, I have always remained positive and with a smile on my face. It is my strong faith; support circle and outlook on life that has helped me overcome these challenges.
I received my second kidney transplant, this time from a living donor, my husband in July of 2012. So far, I am doing well and living each day to the fullest. Before my transplant I wanted to help others living with this disease. I have a strong desire to give back and plan to use my talents to do so.
I would not trade my experiences as a kidney patient because it has shaped me to be who I am today. I have been fortunate to have people placed in my life that have taken excellent care of me and have given me a lot of support. What better way to thank those people by using my experiences and passion to help others? I hope to heal and empower people living with this disease and by sharing my story to offer hope.
I am starting my organization; Meshia’s Hope to help empower pre-dialysis, dialysis, and transplant patients. I am very compassionate about speaking up for patients who need a voice. I have the pleasure of being a patient ambassador on behalf of Dialysis Patient Citizens (DPC). I enjoy advocating about issues that affect kidney/dialysis patients. I look forward to partnering with like- minded individuals to raise awareness and be part of the movement to prevent kidney disease.
I started this group as a means to educate and reach out to others. I am here to offer guidance, support, and to be an advocate for those who are suffering from an illness--not just renal failure because there are other illnesses associated with kidney failure.
Life is truly a precious gift and I am living proof of it. God bless!
Please feel free to contact me with any questions or comments you may have.
https://www.facebook.com/aihsem.adams?fref=tshttps://www.facebook.com/KidneyStories?ref=hl
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Tuesday, May 7, 2013
KIDNEY STORIES: A KIDNEY FOR SCOTT
Scott was diagnosed with kidney failure and began dialysis in June 2012. He needs a donor with blood type O. His transplant center is Legacy Good Samaritan in Portland, OR. Please contact Margaret Marksthaler at 503-413-7349 or e-mail mmarksth@lhs.org
Greetings! Welcome to my A Kidney for Scott Facebook page. I'm writing this from my dialysis chair in Vancouver, WA. I'm 44 years old. As noted in my page description, I was diagnosed with kidney failure in June, 2012 due to the disease of IgA Nephropathy, which is a build-up of protein in the kidneys. I began dialysis immediately in the hospital and continued hemodialysis at Vancouver DaVita... once I came home. My blood type is O, so I need a donor with a similar type.
I was married in 2001 to my lovely wife Debra and helped raise my now-adult stepsons Ian and Preston. I've continued to maintain my full-time employment as a grocery clerk at Fred Meyer in Vancouver, a position I've held since 1986.
Since a kidney transplant with a live donor has a considerably-better outcome than a transplant conducted with a cadaver kidney, it's my hope that someone will donate a kidney so I can resume a normal existence and end my need for dialysis treatments. Thanks for visiting my page, and have a terrific day.
I was married in 2001 to my lovely wife Debra and helped raise my now-adult stepsons Ian and Preston. I've continued to maintain my full-time employment as a grocery clerk at Fred Meyer in Vancouver, a position I've held since 1986.
Since a kidney transplant with a live donor has a considerably-better outcome than a transplant conducted with a cadaver kidney, it's my hope that someone will donate a kidney so I can resume a normal existence and end my need for dialysis treatments. Thanks for visiting my page, and have a terrific day.
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KIDNEY STORIES: FIND A KIDNEY FOR JUDY
Meet Judy Crawford, 55, who is in her twenty-seventh year as a third grade teacher. Nineteen years ago Judy was diagnosed with kidney cancer. The cancerous tumor was removed and her remaining kidney was weak, functioning at only 30%. As the years have passed, the function of her one remaining kidney has deteriorated and along with it her energy and general health. Through all of this, Judy has... relied on her strong faith in God. She has been a witness and inspiration to others simply by the way she has reacted to her illness and led her life. Judy's positive attitude, her quick smile and laughter, her dedication to her students, and her interest and caring for others around her has left a lasting impression on her friends and family.
Two years ago Judy was placed on a waiting list for a kidney transplant. Eleven friends and family members stepped forward as willing donors, but no perfect match found. Through each disappointment, Judy remained upbeat and held tight to her faith. Two months ago, Judy's kidney had deteriorated to the point that she had to begin nightly home dialysis. This nightly schedule was chosen so she could continue teaching during the day. However, the dialysis process has not been working for Judy. Due to scar tissue in her body causing dialysis tubing difficulties, Judy has been in pain, her body swollen and she has had two surgeries in an effort to get the dialysis to work effectively. Throughout this time, Judy has been the sole financial support for her family and continues to teach. Please consider being a kidney donor for Judy. Please help save Judy's life. Your kidney could be the perfect match!
Contact information:
If you wish to inquire about being a match, call Indiana University at 1-800-382-4602 and ask for the kidney transplant coordinator for Judy Crawford.
Thank you for your interest in providing an unbelievable gift for someone in need.
Two years ago Judy was placed on a waiting list for a kidney transplant. Eleven friends and family members stepped forward as willing donors, but no perfect match found. Through each disappointment, Judy remained upbeat and held tight to her faith. Two months ago, Judy's kidney had deteriorated to the point that she had to begin nightly home dialysis. This nightly schedule was chosen so she could continue teaching during the day. However, the dialysis process has not been working for Judy. Due to scar tissue in her body causing dialysis tubing difficulties, Judy has been in pain, her body swollen and she has had two surgeries in an effort to get the dialysis to work effectively. Throughout this time, Judy has been the sole financial support for her family and continues to teach. Please consider being a kidney donor for Judy. Please help save Judy's life. Your kidney could be the perfect match!
Contact information:
If you wish to inquire about being a match, call Indiana University at 1-800-382-4602 and ask for the kidney transplant coordinator for Judy Crawford.
Thank you for your interest in providing an unbelievable gift for someone in need.
TAGS: find a kidney for judy, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: THE LOPEZ FOUNDATION
The Lopez Foundation’s mission is to create positive, permanent change for underprivileged children, adults and military families confronting challenges in education and health.
Mission
The Charity’s mission is to create positive, permanent change for underprivileged children, adults and military families confronting challenges in education and health, as well as increasing community awareness about kidney disease and organ donation. https://www.facebook.com/lopezfoundation
www.facebook.com/kidneystories
Mission Statement
The Lopez Foundation’s mission is to create positive, permanent change for underprivileged children, adults and military families confronting challenges in education and health, as well as increasing community awareness about kidney disease and organ donation.
Contact
Travieso Productions
LionsGate
1601 Cloverfield Blvd., Ste. 200
South Tower Room Redondo
Santa Monica, CA 90404
www.thelopezfoundation.org
818-986-9095
LionsGate
1601 Cloverfield Blvd., Ste. 200
South Tower Room Redondo
Santa Monica, CA 90404
www.thelopezfoundation.org
818-986-9095
Linda D. Small
Executive Director
lindas@georgelopez.com
Executive Director
lindas@georgelopez.com
Board Members
George P. LopezGeorge Lopez is Co-Founder and Director of The Lopez Foundation. Mr. Lopez has channeled his charitable energy in the nonprofit world to improve and save the lives of people confronting the challenges of chronic kidney conditions. One of the entertainment industry’s premier comedic talents, Mr. Lopez serves as Founder and Principal of TRAVIESO PRODUCTIONS, a film and television production company. Time Magazine recognized Mr. Lopez as one of “The 25 Most Influential Hispanics in America”, Harvard University honored his artistic work and charitable endeavors with its “Artist of the Year and Humanitarian Award”, The ADCOLOR Industry Coalition honored George Lopez with The All-Star Award, and People For the American Way bestowed its “Spirit of Liberty Award” on him.
Linda D. Small
Linda D. Small is the Director/CFO/Secretary/Executive Director of The Lopez Foundation. Her consistent, compassionate commitment to improving lives in the Los Angeles community includes 24-years as a member of the Junior League of Los Angeles where Ms. Small served as the President and CEO, Development Director and Training Director. She began her eight years of service with the National Kidney Foundation of Southern California and Southern Nevada in 2002 as Development Director. Within two years Ms. Small became the Executive Director where she remained until she left to head The Lopez Foundation. Linda is a highly respected, successful leader in the not-for-profit sector.
Dr. Lilly Barba
Lilly Barba is a Director of The Lopez Foundation. Dr. Barba received her medical training at the State University of New York-Buffalo, and completed her residency training in Internal Medicine at USC Medical Center followed by fellowship training in Nephrology and Hypertension at Harbor-UCLA Medical Center in Torrance, California.
Christy Haubegger
Christy Haubegger is a Director of The Lopez Foundation. Christy Haubegger founded “Latina” magazine in 1996 following her graduation from Stanford Law School. “Latina” grew to a monthly publication just a year after its launch with Ms. Haubegger serving as its Publisher, President and CEO until 2001. Christy moved into the world of entertainment in 2002 and served as Associate Producer on “Chasing Papi” and Executive Producer on “Spanglish”. She now works with Creative Artist Agency (CAA) providing insights on multicultural markets to CAA. Ms. Haubegger is a popular speaker and the recipient of numerous awards and media recognition for her achievements.
Lawrence J. Kohl
Lawrence J. Kohl is a Director of The Lopez Foundation. Based in Los Angeles, Lawrence Kohl’s occupation is in Wealth Management working for the Kohl family office. Previously, Mr. Kohl was President and Founder of Atomic3D, an original animated content company and software developer for streaming delivery on the internet. Started in 1995, the company was one of the leading providers of animated content for the internet. Previously Mr. Kohl was the President and Founder of Paradigm Software Corporation from 1989- 1992 where he formed a sales and marketing team to focus on the integration of 2D and 3D technologies. Mr. Kohl has a MBA from the University of Miami. His BA in Business Administration is from Kendall College in Chicago. Mr. Kohl is concentrating his efforts in charitable work that benefits children, primarily as a board member of the Santa Monica Boys and Girls Club and previously for the Zimmer Children’s Museum.
Stacey Kohl
Stacey Kohl is a Director of The Lopez Foundation. Business woman, Stacey Zinman Kohl is the creator of Bloom Love, a incredibly successful and admired children’s clothing line. She was first inspired to enter the fashion industry after the birth of her daughter, Elizabeth. Charmed by her sweet innocence, Stacey set out to create clothing that would convey that feeling with softness and comfort. She started by shopping a few samples around town – talking her way into Los Angeles’ chic boutiques and not leaving until she made a sale. She also showed pieces to her celebrity friends who fell in love with the line. Before she knew it, the line was in demand and available in top stores all around the country such as Neiman Marcus, Bloomingdales, Fred Segal and many others.
Laura LaRocca
Laura LaRocca is a Director of The Lopez Foundation. Laura LaRocca has established herself as a force in the beauty industry. A born entrepreneur with the kind of drive it takes to build a multi-million dollar company from the ground up, Laura’s business acumen has been taking shape since before she can remember. After graduating from the University of Wisconsin and the Aveda Institute, Laura worked in the entertainment industry as a Managing Hair Stylist for print media, movies and hit television shows such as Felicity and Scrubs. In 1998 she became Co-Founder/CEO of DuWop – one of the most innovative brands in the beauty industry. Laura grew the brand from an idea to $20 million in annual sales. Laura is leading the personal care industry as the CEO of LaRocca Skincare with a focus of growing sales, giving back to the community and protecting the environment.
Michael G. Wilson
Michael Wilson was born in Kentucky, but raised in Oklahoma and Texas. He graiduated from the University of Oklahoma in 1979 with a Bachelor’s degree in Business Administration/Finance. He was a 5-time All American Gymnast at OU and NCAA Champion in floor exercise in 1979. Michael was also a member of the World Cup and World Championship teams in 1978 and 1979. In addition, he earned a spot on the 1980 Men’s Olympic Gymnastics team.During his business career, Michael has successfully developed and owned numerous companies in the health care industry including at TPA in Oklahoma, PPO networks in both Oklahoma and Texas, a Benefit Consulting firm in Texas and several other industry-related companies. Michael currently owns and manages three organizations in Plano, Texas in the healthcare industry including Century Healthcare, Corporate Health Plans of America, and Healthcare Highways. Michael also is privileged to participate as a member of several organizations’ Board of Directors.Hard work and perseverance have provided Michael with numerous opportunities throughout his life and he is fortunate to be able to “give back” and help others.
Cynthia Stafford
Cynthia Stafford is a dynamic entrepreneur, philanthropist and mother of five. She focuses her efforts on empowerment in both education, particularly in children with special needs and women’s rights, with a global agenda of ventures and causes she endows and capitalizes. While raising her deceased brother’s children, Ms. Stafford won the California Lottery on Mother’s day in 2007. Ms. Stafford is one of the top philanthropists in Los Angeles. She has personally donated $1million to Geffen Playhouse where she currently serves on the Board of Directors and is a special liaison to the Geffen Theatre’s Education Advisory Board. Ms. Stafford was selected by the Lifetime Network as one of its prestigious “Remarkable Women”, alongside Michelle Obama, Hillary Clinton, and Maria Shriver. Ms. Stafford is also the CEO of Queen Nefertari Productions LLC. Queen Nefertari Productions recently released two award-winning films which include: the multicultural coming of age tale “Polish Bar”, currently on the film festival circuit and a supernatural thriller “The Inheritance”, released by Image Entertainment.
Brooke Kaufman
Is a celebrity Real Estate Agent who has a strong passion for bringing awareness to kidney disease and supporting the children’s camp.
TAGS:the lopez foundation,Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY FOR HEATHER
Heather is a single mother of three boys in need of a kidney. YOU could be the living donor who changes Heather's life. Please click on the About button and read the Description for more details. Please share with your friends and spread the word.
Description
Heather is a 42 year "young" single mother of 3 boys living in Mankato, MN. In 2000 Heather was diagnosis with IgA nephropathy. IgA is a protein called an antibody that helps the body fight infections. IgA nephropathy (Berger's disease) occurs when too much of this protein is deposited in the kidneys. IgA builds up inside the small blood vessels of the kidney. Structures in the kidney called glo...meruli become inflamed and damaged. To learn
more click on the link www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001500/
In 2012 Heather's kidneys had decreased enough that she needed to start dialysis. On Feburary 7th, 2012 Heather had her first dialysis treament. She now continues to go three times a week for 3 hours each time. She is thankful that dialysis has allowed her to continue to work and be a mother to her boys. But a new kidney would give Heather an even better chance at a better quality of life. May 30th, 2012 Heather was placed on the kidney donation list. Heather's blood type is O+. The wait for a deceased donor is about 5 years. Living donation is more effective and kidneys from a living donor are always healthier.
Please help us to keep spreading the word about Heather and her need for a donor. If you or anyone you know is interested in being Heather's donor PLEASE call: 612-625-5115 or 800-328-5465 for a consultation and to request a kit. Mention that you are interested in donating for Heather Sandland.
more click on the link www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001500/
In 2012 Heather's kidneys had decreased enough that she needed to start dialysis. On Feburary 7th, 2012 Heather had her first dialysis treament. She now continues to go three times a week for 3 hours each time. She is thankful that dialysis has allowed her to continue to work and be a mother to her boys. But a new kidney would give Heather an even better chance at a better quality of life. May 30th, 2012 Heather was placed on the kidney donation list. Heather's blood type is O+. The wait for a deceased donor is about 5 years. Living donation is more effective and kidneys from a living donor are always healthier.
Please help us to keep spreading the word about Heather and her need for a donor. If you or anyone you know is interested in being Heather's donor PLEASE call: 612-625-5115 or 800-328-5465 for a consultation and to request a kit. Mention that you are interested in donating for Heather Sandland.
www.facebook.com/kidneystories
Newspaper article about Heather:
February 3, 2013
Woman in need of kidney transplant spreading the word about organ donation
She arrives early and begins the routine. Or is it a ritual?
Step on scale. Wash hands. Make way to chair in corner. Sit.
Nurse Mary Gerndts comes over and says hello. She’s been working with Heather Sandland for about a year now.
On the inside of Sandland’s left forearm is a fistula, a device that facilitates dialysis treatments by allowing easy access for blood to be pulled out, cleaned, then returned.
As Gerndts prepares to insert those needles, Sandland grows uncomfortable. She’s never been a needle lover anyway, and this process will involve three of them.
The first is for an injection of a drug called Lidocain, a process that comes with a little irony. Injected with a tiny needle, its purpose is to numb the skin so that when the big, 15-gauge dialysis needles make their charge, it won’t be as painful.
“This is one of the worst parts,” Sandland says.
Gerndts looks for the right place.
“I’ll just poke around, here, to find the spot,” the nurse says.
Gerndts finds the spot and pokes. As the Lidocain enters her arm, Sandland bows her head, grows silent and grimaces. Within minutes, the other, much-larger needles are in, too. Blood races through a tube and into a sophisticated machine that scrubs the blood clean of anything that shouldn’t be there. The blood is then sent, through another tube, back to Sandland.
The machine — for three hours, three days a week — does the job her kidneys can’t.
Without these visits, she would die.
And eventually, Sandland will need a new kidney. She can’t live forever on dialysis. So to look down the road into her future, where she envisions watching her sons grow and spending plenty of time with them, it’s all dependent on one thing: a kidney transplant.
Unless modern medicine comes up with a way for people to live without functioning kidneys, she’s going to have to find one, whether one comes available via a death or someone comes forward as a match. Until then, dialysis is her way of life.
A quick look around the room reveals Sandland isn’t alone, neither in the dialysis center nor her plight.
“Every patient (undergoing dialysis) needs a kidney,” said Mayo Clinic Health System in Mankato nephrologist Fawad Qureshi. “But not every patient in there can get one.”
Anyone who has had a previous organ transplant is out. Anyone who is obese is normally not a good candidate for a transplant. The very old are typically not good candidates, nor are people with other health concerns, such as heart disease.
The best scenario is a new kidney, but some can’t withstand a surgery. There are 100,000 people on the list for a kidney transplant.
“Most of them won’t get a kidney,” Qureshi said. “And the list is expanding 3,000 to 4,000 patients every year.”
Sandland says she’s hopeful. Her kidney failure was brought on by something called IgA nephropathy, a condition in which high amounts of retained protein do damage to the kidneys over time. Her doctors in the Twin Cities, where she goes for her kidney failure treatment, have told her the average wait for a kidney from a deceased person is about five years.
Asking for help, though, has been difficult for Sandland. She said it’s just not in her nature to aggressively pursue possible donors. So she’s stuck to spreading a more neutral pro-organ donation message.
“It’s hard for me,” she said. “I just try to tell my story and help get the word out.”
Sandland has three sons, ages 22, 15 and 12. For the younger two, they’ve had to figure out how to get up, get dressed and get off to school on their own three days a week.
“It can get hard at times,” she said. “I can’t do what other parents can do.”
Her struggle with kidney failure has meant she’s had to miss a lot of her kids’ activities, including much of her son’s soccer season — “That was really hard. I never miss my kids’ things.”
And living with a mom enduring kidney failure has opened their eyes to what could be.
“They know it could get to the point where, if I don’t get a kidney, people die waiting for kidneys,” she said.
To pass the time, she listens to music or watches TV. She tries not to watch the clock on the dialysis machine, the pie-shaped indicator that could drive you crazy if you let it.
The only thing worse than waiting in the chair is waiting for a kidney.
The wait for a kidney can be longer or shorter depending on blood type. The shortest waits come to people with blood type AB. Blood type B is the longest wait and blood type O is the second longest.
The most important thing, Qureshi said, is spreading the word.
“People have a lot of pride when it comes to these kind of things,” he said. “They do not want to ask, and I think it is very important that we give people the opportunity to help.”
MCHS has dialysis units in Fairmont (24 chairs), New Ulm (24 chairs) and Mankato (70 chairs).
As Qureshi says, most people who need a kidney won’t get one.
“Kidney failure is a very poor diagnosis,” he said. “For someone who is old, it’s sometimes worse than getting a diagnosis of colon cancer.”
For those patients, the end usually comes with medical professionals keeping a patient comfortable until they die. Death by kidney failure is a quiet one. Patients get very tired and die in their sleep.
TAGS: find a kidney for heather, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Step on scale. Wash hands. Make way to chair in corner. Sit.
Nurse Mary Gerndts comes over and says hello. She’s been working with Heather Sandland for about a year now.
On the inside of Sandland’s left forearm is a fistula, a device that facilitates dialysis treatments by allowing easy access for blood to be pulled out, cleaned, then returned.
As Gerndts prepares to insert those needles, Sandland grows uncomfortable. She’s never been a needle lover anyway, and this process will involve three of them.
The first is for an injection of a drug called Lidocain, a process that comes with a little irony. Injected with a tiny needle, its purpose is to numb the skin so that when the big, 15-gauge dialysis needles make their charge, it won’t be as painful.
“This is one of the worst parts,” Sandland says.
Gerndts looks for the right place.
“I’ll just poke around, here, to find the spot,” the nurse says.
Gerndts finds the spot and pokes. As the Lidocain enters her arm, Sandland bows her head, grows silent and grimaces. Within minutes, the other, much-larger needles are in, too. Blood races through a tube and into a sophisticated machine that scrubs the blood clean of anything that shouldn’t be there. The blood is then sent, through another tube, back to Sandland.
The machine — for three hours, three days a week — does the job her kidneys can’t.
Without these visits, she would die.
And eventually, Sandland will need a new kidney. She can’t live forever on dialysis. So to look down the road into her future, where she envisions watching her sons grow and spending plenty of time with them, it’s all dependent on one thing: a kidney transplant.
Unless modern medicine comes up with a way for people to live without functioning kidneys, she’s going to have to find one, whether one comes available via a death or someone comes forward as a match. Until then, dialysis is her way of life.
A quick look around the room reveals Sandland isn’t alone, neither in the dialysis center nor her plight.
“Every patient (undergoing dialysis) needs a kidney,” said Mayo Clinic Health System in Mankato nephrologist Fawad Qureshi. “But not every patient in there can get one.”
Anyone who has had a previous organ transplant is out. Anyone who is obese is normally not a good candidate for a transplant. The very old are typically not good candidates, nor are people with other health concerns, such as heart disease.
The best scenario is a new kidney, but some can’t withstand a surgery. There are 100,000 people on the list for a kidney transplant.
“Most of them won’t get a kidney,” Qureshi said. “And the list is expanding 3,000 to 4,000 patients every year.”
Sandland says she’s hopeful. Her kidney failure was brought on by something called IgA nephropathy, a condition in which high amounts of retained protein do damage to the kidneys over time. Her doctors in the Twin Cities, where she goes for her kidney failure treatment, have told her the average wait for a kidney from a deceased person is about five years.
Asking for help, though, has been difficult for Sandland. She said it’s just not in her nature to aggressively pursue possible donors. So she’s stuck to spreading a more neutral pro-organ donation message.
“It’s hard for me,” she said. “I just try to tell my story and help get the word out.”
Sandland has three sons, ages 22, 15 and 12. For the younger two, they’ve had to figure out how to get up, get dressed and get off to school on their own three days a week.
“It can get hard at times,” she said. “I can’t do what other parents can do.”
Her struggle with kidney failure has meant she’s had to miss a lot of her kids’ activities, including much of her son’s soccer season — “That was really hard. I never miss my kids’ things.”
And living with a mom enduring kidney failure has opened their eyes to what could be.
“They know it could get to the point where, if I don’t get a kidney, people die waiting for kidneys,” she said.
To pass the time, she listens to music or watches TV. She tries not to watch the clock on the dialysis machine, the pie-shaped indicator that could drive you crazy if you let it.
The only thing worse than waiting in the chair is waiting for a kidney.
The wait for a kidney can be longer or shorter depending on blood type. The shortest waits come to people with blood type AB. Blood type B is the longest wait and blood type O is the second longest.
The most important thing, Qureshi said, is spreading the word.
“People have a lot of pride when it comes to these kind of things,” he said. “They do not want to ask, and I think it is very important that we give people the opportunity to help.”
MCHS has dialysis units in Fairmont (24 chairs), New Ulm (24 chairs) and Mankato (70 chairs).
As Qureshi says, most people who need a kidney won’t get one.
“Kidney failure is a very poor diagnosis,” he said. “For someone who is old, it’s sometimes worse than getting a diagnosis of colon cancer.”
For those patients, the end usually comes with medical professionals keeping a patient comfortable until they die. Death by kidney failure is a quiet one. Patients get very tired and die in their sleep.
TAGS: find a kidney for heather, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Monday, May 6, 2013
KIDNEY STORIES: DONATE A KIDNEY FOR DANNY STEPHENS
Joseph 'Danny' Stephens been on dialysis since July 2011. He has Polycystic Kidney Disease, his blood type is 'O+'. If you want more info or want to donate a kidney call Barbara O'Neal at the Piedmont Transplant Institute in Atlanta, Ga. 404-605-4128
Description
I have set this page up to find a donor for my husband Danny/Steve Stephens. He has been on dialysis since July 2011. His blood type is 'O+'. You can contact Barbara O'Neal at Piedmont Transplant Institute in Atlanta, Ga 404-605-4128 she will then ask you some questions about your general health in order to see if you might be a good donor. Please make the call
Many know him as Steve and/or Joe. H...is family and friends growing up called him Danny, he is a retired Army Sgt and his military buddies called him Steve, and then there are the business people he dealt with while he had his trucking business called him Joe. I know a lot of names, that's what I thought when I first met him, lol, thinking what's up with this guy. We have been married for almost 15 years, he has been a great father to my kids and a wonderful grandfather for our grandkids.
Many know him as Steve and/or Joe. H...is family and friends growing up called him Danny, he is a retired Army Sgt and his military buddies called him Steve, and then there are the business people he dealt with while he had his trucking business called him Joe. I know a lot of names, that's what I thought when I first met him, lol, thinking what's up with this guy. We have been married for almost 15 years, he has been a great father to my kids and a wonderful grandfather for our grandkids.
www.facebook.com/kidneystories
TAGS: donate a kidney forr danny stephens, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: HELP FIND JERRY A LIVING KIDNEY DONOR
Jerry Wellin (my father) is a living breathing walking miracle! If you would like to help him and our family PLEASE FEEL FREE to contact me on here.
Biography
Hello my father's name is Jerry Wellin. He is 45 years old. I'm his oldest daughter Jara Wellin and I've made this page for my father because he is having a hard time with dealing with all of his sicknesses.
I'm not only reaching out for help for him and to show my father there are people out there just like him and in similar situations. Also to show him that people do care support and want to help him get threw this and everything else.
I'm also made this for myself to have support with dealing with my fathers sickness and knowing that I'm not alone.
My father also has another daughter named Shaye Wellin. And this page is also to help her in letting her know that there are people all over who dose care and want to help our daddy.
Jerry is in deepest need of a kidney transplant. He has already have had to have 1 kidney removed from his body and the other 1 is still there but completely nonfunctional and dead.
Jerry has been on kidney dialysis for 6 years now. His health is heading down hill fast. Lately its been one thing or another that's started going wrong with his body.
Jerry is needing a donor with the blood type of either B or O. Please help my father in any way that you are able to. Even if its just posting that you care about him, that your hear to support him and his family, and that he is not alone in his situation and sicknesses.
All your help and support is greatly apprecated from our whole family and my father.
If you would like to know anymore information about my father and his situation PLEASE FEEL FREE to contact me on here by messaging me and or posting on the wall and I will get back to you as soon as I able to.
Once again Jerry and My Whole Family would like to thank you for all your help, support, and showing all of us that you care about us, we are not alone, and there is also other people in similar situations that can help us out even though that you may not know us. It honestly helps a lot!
Sincerely,
JaraLynne, Jerry, Shaye, Dalasa, and the rest of our family
God Bless
I'm not only reaching out for help for him and to show my father there are people out there just like him and in similar situations. Also to show him that people do care support and want to help him get threw this and everything else.
I'm also made this for myself to have support with dealing with my fathers sickness and knowing that I'm not alone.
My father also has another daughter named Shaye Wellin. And this page is also to help her in letting her know that there are people all over who dose care and want to help our daddy.
Jerry is in deepest need of a kidney transplant. He has already have had to have 1 kidney removed from his body and the other 1 is still there but completely nonfunctional and dead.
Jerry has been on kidney dialysis for 6 years now. His health is heading down hill fast. Lately its been one thing or another that's started going wrong with his body.
Jerry is needing a donor with the blood type of either B or O. Please help my father in any way that you are able to. Even if its just posting that you care about him, that your hear to support him and his family, and that he is not alone in his situation and sicknesses.
All your help and support is greatly apprecated from our whole family and my father.
If you would like to know anymore information about my father and his situation PLEASE FEEL FREE to contact me on here by messaging me and or posting on the wall and I will get back to you as soon as I able to.
Once again Jerry and My Whole Family would like to thank you for all your help, support, and showing all of us that you care about us, we are not alone, and there is also other people in similar situations that can help us out even though that you may not know us. It honestly helps a lot!
Sincerely,
JaraLynne, Jerry, Shaye, Dalasa, and the rest of our family
God Bless
TAGS: help find jerry a living kidney donor, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: BENEFIT FOR JESSICA FRYSZ
Local Woman's Plea For A Kidney
By WKBW News
March 3, 2012Updated Mar 3, 2012 at 1:15 AM EDTBUFFALO, N.Y. ( WKBW ) More than a 100,000 people in this country are in need of a lifesaving organ transplant, and an average of 18 people die every day waiting for a donor.
A local woman, who is need of a kidney transplant, is making a public plea for help. 24-year old Jessica Frysz lost the use of her kidneys at a very young age, and now her only hope is for a stranger to come forward to donate.
Eyewitness News Anchor Joanna Pasceri has her story.
Jessie has been on dialysis since she was a year old. The process is taking a toll on her life. It's causing her veins and arteries to shrink and harden, and she now receives dialysis through her legs.
Jessie had a kidney transplant when she was 11. The donor was a 40-year old woman who died in a car crash, but the organ was rejected, and it was back to dialysis.
Jessie's doctors are now putting hope in a living donor and a new drug that they believe will allow her to accept the kidney transplant.
A simple blood test will reveal if someone is a compatible donor. Her family is not an option because her disease is genetic.
If you or someone you know is interested in taking a blood test to see if it's compatible, contact Jessie by phone or email. She can be reached at (716) 507-5981 or at shortfry06@aol.com.
A local woman, who is need of a kidney transplant, is making a public plea for help. 24-year old Jessica Frysz lost the use of her kidneys at a very young age, and now her only hope is for a stranger to come forward to donate.
Jessie has been on dialysis since she was a year old. The process is taking a toll on her life. It's causing her veins and arteries to shrink and harden, and she now receives dialysis through her legs.
Jessie had a kidney transplant when she was 11. The donor was a 40-year old woman who died in a car crash, but the organ was rejected, and it was back to dialysis.
Jessie's doctors are now putting hope in a living donor and a new drug that they believe will allow her to accept the kidney transplant.
A simple blood test will reveal if someone is a compatible donor. Her family is not an option because her disease is genetic.
If you or someone you know is interested in taking a blood test to see if it's compatible, contact Jessie by phone or email. She can be reached at (716) 507-5981 or at shortfry06@aol.com.
www.facebook.com/kidneystories
TAGS: benefit for jessica frysz, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: BRYAN NEEDS A NEW BEAN
This is just my little page to hopefully find a viable kidney donor and to share updates concerning my journey with End Stage Renal Disease.
Description
Hi. I'm Bryan. I'm 35 years old and I'm living with End Stage Renal Disease. I was diagnosed with Stage 3 Chronic Kidney Disease during a routine check-up in May 2012. Not knowing anything about the disease and not really believing it, I didn't pay much attention. On my follow-up visit a few months later, my blood labs had indicated that I was now in Stage 4 of the disease. My kidney function... had continued to decline and I was told that I would need dialysis soon.
Having been born with a horseshoe kidney (conjoined), I was no stranger to hospitals when I was growing up. Recently, my doctor has further diagnosed me with Alport's Syndrome which is a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. Significant hearing loss, eye abnormalities, and progressive kidney disease are more common in males with Alport syndrome than in affected females. I put off starting dialysis for a few months and during that time, I was hospitalized three times for various electrolyte imbalances. I was told that my potassium had grown to such a high level that I was in danger of having a heart attack. Things seemed pretty grim.
I reluctantly succumbed to dialysis on January 13, 2013 after receiving a call from my kidney doctor urging me to go straight to the ER for an emergency treatment. I go to these treatments three times a week and they last approximately 4.5 hours. During that time, my blood is taken out and passed through an artificial kidney to keep me alive. Dialysis is kind of a last resort thing to keep me alive until I can get a kidney. Getting a kidney transplant is NOT A CURE. Donated kidneys don't last forever but they do provide some semblance of a normal life and they give the recipients freedom from being tethered to the dialysis machine for the rest of their lives. If donating your kidney sounds like something you would like to know more about, I urge you to visit the National Kidney Foundation's page for more information or simply message me. Thanks for taking the time to read about my cause.
https://www.facebook.com/BryanNeedsANewBean
Having been born with a horseshoe kidney (conjoined), I was no stranger to hospitals when I was growing up. Recently, my doctor has further diagnosed me with Alport's Syndrome which is a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. Significant hearing loss, eye abnormalities, and progressive kidney disease are more common in males with Alport syndrome than in affected females. I put off starting dialysis for a few months and during that time, I was hospitalized three times for various electrolyte imbalances. I was told that my potassium had grown to such a high level that I was in danger of having a heart attack. Things seemed pretty grim.
I reluctantly succumbed to dialysis on January 13, 2013 after receiving a call from my kidney doctor urging me to go straight to the ER for an emergency treatment. I go to these treatments three times a week and they last approximately 4.5 hours. During that time, my blood is taken out and passed through an artificial kidney to keep me alive. Dialysis is kind of a last resort thing to keep me alive until I can get a kidney. Getting a kidney transplant is NOT A CURE. Donated kidneys don't last forever but they do provide some semblance of a normal life and they give the recipients freedom from being tethered to the dialysis machine for the rest of their lives. If donating your kidney sounds like something you would like to know more about, I urge you to visit the National Kidney Foundation's page for more information or simply message me. Thanks for taking the time to read about my cause.
https://www.facebook.com/BryanNeedsANewBean
TAGS: bryan needs a new bean, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,