KIDNEY STORIES: LAVON'S HOPE

Lavon went into Kidney failure on June 28, 2012. His Kidney function was at 5%. He has went threw rounds of hemo now he is doing PD. He is in need of a kidney transplant.

Description

Lavon was diagnosed as a child with diabetes, he went into Kidney failure on June 28, 2012, His Kidney function was at 5%. He has went threw rounds of hemo, now he is on peritoneal dialysis (PD), He is in need of a kidney transplant & on the waiting list at UAB Birmingham, AL (Blood Type B+) he also has a life-threatening heart condition called ventricular arrhythmias, he had a 90% blockage they put 2 heart stents in &, they put in a implantable cardioverter defibrillator (ICD) on Jan 16, 2013.

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KIDNEY STORIES: PROJECT MOM

Project MOM (Mom on a Mission) honors the life of Brittany Stark by promoting the Donate Life California Registry. Please consider signing up to be an organ and tissue donor in her memory at www.donateLIFEcalifornia.org/Brittany.

Description

Brittany has now been gone almost as long as she lived.  But she continues to inspire to this very day.  Her mom currently is riding a bike from San Francisco to raise awareness. She'll arrive at Children's Hospital in San Diego by Mother's Day.

 

My Crazy Idea: I promised Brittany I would promote organ and tissue donation always. I don't want other families to face the loss we did. This next birthday is big. It's been 15 years since my 14-year-old died. I wanted to do something spec.al. Hence, the idea of a bike trip from San Francisco to San Diego.
My plan is to start April 29 (Donate Life Month) and arrive at Rady Children's by Mother's Day. Rady is where Brittany died and where I'm blessed to work as a Parent Liaison.

My 620-mile bike route is outlined in black along the coast. My tentative plans are to visit hospitals, churches, DMVs, and Donate Life Champions like the Salt Creek Grille restaurant.

 

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KIDNEY STORIES: FIND A KIDNEY FOR SHELLEY

My name is Shelley Jackson-Robertson. I am a 44 year old woman. I have been on dialysis since June 2007. My blood type is B+ and UCLA in California is my transplant center. The telephone number for the living donor line is (866) 672-5333.

Description

A little about me, I have been married for almost 2 years now to a wonderful man. I have a 21 year old son who I am very proud of. My husband and my son in addition to my sister are my biggest supporters. I have been on dialysis since June 2007 and on the transplant list since then. My kidneys failed due to uncontrolled high blood pressure. Even though dialysis takes up a lot of my time, I  still am able to work a full time job and work my Tupperware business.
I am the oldest of three children. Last year we lost our beautiful mother on January 11, 2012 and on May 28, 2012 we lost our father as well. Most people would be ready to give up but not me! I am continuing to push forward and not let this get the best of me!! I appreciate all the love that has been shown to me!!
Please continue to share this page for me!! My goal is to find a donor!! I love you all and GOD BLESS!!!!!

 

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KIDNEY STORIES: KIDNEY FOR SONIA

*Searching for a living donor
*My blood type is O+
*Transplant Center is University of Chicago(UIC)

Description

Hi everyone, my name is Sonia and I am 57 years old and i am currently seeking for a Kidney Donor.
I am a married women to a great husband for 40 years and we have 4 beautiful children.
I am a grandmother of 11 granchildren that i adore with all my heart.
I was diagnosed with Renal Failure a couple of years ago and since July of 2012 I have been on dialysis and need a transplant.
Dialysis has bee...n hard at times but i try to make the best of it because i want to live a long life for my family.
I am sadden that such a thing had to happen to me but im fortunate to still be here.
I am just now looking for a Living Kidney Donor because this is the best way for me to go while i continue to do all my testing so that i can be placed on the waiting list for a deceased donor which we all know might be years from now.
If there is anyone out there that is willing to donate a Kidney to myself it would be greatly appreciated just for the fact that the good Lord has given you a great heart to donate to someone in need.
I hope and pray that soon i can find a donor because im working very hard to live a long beautiful life.

A couple of things about the transplant that a donor would like to know:
*My Transplant Center is at the University of Chicago (UIC)
*I am O+
*Donor can not have diabetes or high blood pressure.
*Any donor would have to contact the coordinator at the UIC and will have to
undergo blood work in order to be a match with myself.
* also all Surgery is paid for by my insurance, so donor does not have to
pay ANYTHING...
*****If anyone would like to donate a kidney out of the kindness of there heart
or knows of anyone who would like to donate, please feel free to contact my
UIC Transplant Coordinator- Her name is Xenia @ 1-312-413-9489
or email my daughter Cindy at Corteznenalinda@aol.com and she will provide
you with all the info you will need*****

Thank You and i hope to find a donor soon....GOD BLESS EVERYONE...

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KIDNEY STORIES: A KIDNEY FOR ASHLYN

Hi, my name is Ashlyn Poss. I was diagnosed with Stage 5 kidney failure when I was 16. I have been on dialysis since then, about 3 1/2 years. My blood type is A. I am listed at UAB in Birmingham, AL. 205-996-9408

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KIDNEY STORIES: PULVERIZING KIDNEY DISEASE

We are the Pulver family and Brian is battling stage 5 renal failure and is searching for a donor for transplant. He is 34 and O blood type. Join us on our journey.

Description

Brian is currently battling stage 5 kidney failure and hoping to find a living donor for transplant. Days are currently filled with appointments, labs, procedures, and a lot of waiting. Brian keeps his sense of humor while we hold on to faith that God is in control.

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KIDNEY STORIES: HELP SAVE TWO LIVES, DONATE!

This page was created to help find two willing Live Kidney
donors for Kidney Transplant of mother & daughter suffering with Kidney Failure

Description

My daughter and I suffer from an inherited kidney disease called Focal Segmental Glomeruloscierosis or FSGS. FSGS is when the kidneys are scarred and do not filter out toxins through the urine. When this happens, dialysis is required to sustain life. Although dialysis is sustaining our life now, it also causes other health issues... like heart disease. To lead a more normal & healthier life a kidn...ey transplant is needed for the both of us. We ask that you learn more about the donation process and consider donating to us. Thank You!
To learn more about Kidney Transplantation Please visit: www.ochsner.org click on services at the very top of page, click on Multi organ transplants in drop down menu, under programs choose kidney & kidney/pancreas transplants.

Our blood type is O+, which means we are able to receive a kidney from someone who has a blood type of O+ or O-.

For testing to see if you are a good candidate for possible donation please contact: Kidney Transplant Coordinator- Yolanda @ (504) 842-3925

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KIDNEY STORIES: PATTY NEEDS A KIDNEY

KIDNEY STORIES: PATTY NEEDS A KIDNEY


I was diagnosed with chronic renal failure 12 & 1/2 yrs ago and remained stable up until the past 2 & 1/2yrs (April 22, 2011) which began my journey on dialysis. My blood type is A+.
Description
I’m currently on the transplant wait list at Piedmont Hospital in Atlanta Georgia patiently waiting for “the call” that a kidney is available. I’ve had over 50 plus surgeries/diagnostic procedures since April 22, 2011 due to complications of which arose from ESRD with two more surgeries to be scheduled within the next two to four weeks. My husband of almost three years as well as my family and …friends are very supportive but unfortunately none are healthy enough to be considered as a possible donor. My goal is to find a living donor vs a cadaver donor as you know my body would be less likely to reject a live kidney not to mention they function longer and I wouldn’t have to wait an additional 5 to 8 yrs on the transplant list. I do feel my body getting weaker each year that passes with all of the dialysis and surgeries so I’m searching for that “angel” who would love to give me “the gift of life” a kidney.
I am in need of a donor with blood type A or O due to I’m A positive.
I’m listed at Piedmont Hospital in Atlanta ! Potential donors call 404 605-4605 and speak with a Living Donor Coordinator.

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KIDNEY STORIES: STACIE NEEDS A KIDNEY

I have FSGS/Nephrotic Syndrome and I need a kidney so I can live to see my children get married and have grandchildren! Please click "About" for more info!

Description

I have FSGS/Nephrotic Syndrome. My blood type is A+, but I was told today that I only need someone with either A or O blood type to be tested. If you would like to be tested to see if you are a match for Stacie York, please call Loma Linda Kidney Transplant Center at 1-909-558-3636, press option "5" for the Living Donor office and they will assist you from there. The link to their website is: http://lomalindahealth.org/medical-center/our-services/transplantation/services-and-procedures/kidney-transplant/index.page
I would love to have a healthy kidney so I can live to see my children get married and have grandchildren!

 

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TAGS:  Stacie needs a kidney,

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KIDNEY STORIES: PATTI'S KIDNEY CAMPAIGN

KIDNEY STORIES: PATTI'S KIDNEY CAMPAIGN


I have systemic lupus, an autoimmune disease that can damage virtually any organ or system in the body. In my case, lupus has caused joint pain, bone deterioration, and kidney failure. I am looking for someone to donate their spare Kidney.
Description
My name is Patti Schultz. I’m 36 years old and live in Interlochen, Michigan. I’m married to my best friend of 14 years, Kurt Schultz, and we have an energetic 10-year-old son, Kalob.

I enjoy photography, scrapbooking, and spending time with my family. Previous to my illness, I worked in occupational therapy. I took great pride in my career and enjoyed helping others regain their independence af…ter illness or injury.

I have systemic lupus, an autoimmune disease that can damage virtually any organ or system in the body. In my case, lupus has caused joint pain, bone deterioration, and kidney failure.

I need a kidney transplant and am currently preparing for dialysis as I wait for a donor. Because my transplant center, the University of Michigan, participates in paired donation, a person of any blood type can be a living donor for me. If you would like to be tested to see if you are a match, please call my transplant coordinator, Ann Gray, toll-free at 1-800-333-9013 or locally at 734-615-1850. Or, if you prefer, you may e-mail her at anngray@med.umichedu.

My insurance covers all medical expenses, and you do not have to be a resident of Michigan to be a donor. Programs that cover the cost of transportation, lodging, meals, and car rental are available.

Thank you for taking the time to read my story and for considering giving me the Gift of Life. If you are unable to donate but would like to help, please pass my story on to others. Thanks so much.

Sincerely,
Patti Schultz


Read more: Hi!
My name is Patti Schultz. I’m 36 years old and live in Interlochen, Michigan. I’m married to my best friend of 14 years, Kurt Schultz, and we have an energetic 10-year-old son, Kalob.
I enjoy photography, scrapbooking, and spending time with my family. Previous to my illness, I worked in occupational therapy. I took great pride in my career and enjoyed helping others regain their independence after illness or injury.
I have systemic lupus, an autoimmune disease that can damage virtually any organ or system in the body. In my case, lupus has caused joint pain, bone deterioration, and kidney failure. 
I need a kidney transplant and am currently preparing for dialysis as I wait for a donor. Because my transplant center, the University of Michigan, participates in paired donation, a person of any blood type can be a living donor for me. If you would like to be tested to see if you are a match, please call my transplant coordinator, Ann Gray, toll-free at 1-800-333-9013 or locally at 734-615-1850. Or, if you prefer, you may e-mail her at anngray@med.umichedu. 
My insurance covers all medical expenses, and you do not have to be a resident of Michigan to be a donor. Programs that cover the cost of transportation, lodging, meals, and car rental are available.
Thank you for taking the time to read my story and for considering giving me the Gift of Life. If you are unable to donate but would like to help, please pass my story on to others. Thanks so much.
                                                  Sincerely,
                                                  Patti Schultz    




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KIDNEY STORIES: SAVING SUPERMAN SAM

This page is created to share awareness about kidney disease. Samuel was born with a rare form of kidney disease called Congenital Nephrotic Syndrome the Finnish type.

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KIDNEY STORIES: POLLY'S KITCHEN

I am a 41 year old single mother of 3 needing a kidney transplant. My blood type is O and my transplant center is located in Indiana. I've been on dialysis since August 1, 2011. Contact Valerie at Lutheran Transplant (260) 435-6275. Please help me.....

Description

I was diagnosed with kidney disease at the age of 14 and had my 1st transplant at 15; the kidney came from my mother. It lasted 21 years and I had no issues at all. But it rejected in 2007. My 2nd transplant was in 2008 from my brother. However, it only lasted 3 years before it rejected due to medication complications. I started on peritoneal dialysis but soon found out that I have a leak in my di...aphram that's causing fluid to enter into my lung cavity. So I am now on hemo dialysis until the leak can be repaired. My body does not tolerate hemo very well. I'm very sick and fatigued while on it making me worthless to my children. I am in desperate need of another transplant. I just need one more chance at this life. Please consider donating your spare kidney and help save my life and give my children their mother back; healthy and whole. I don't know how long I can tolerate living this way. I'm just existing...I want to be living. Thank you!

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KIDNEY STORIES: CHARLIE'S ROAD TO A KIDNEY TRANSPLANT

KIDNEY STORIES: CHARLIE'S ROAD TO A TRANSPLANT

Meet Charlie……..
.
Robert Shivley aka “Charlie”, is a Christian man who was born in Columbia, SC.He was married to Sherrie on July 31, 2011.  They currently live in San Antonio, TX.  Charlie is the father of 2 daughters, Melissa and Emily.  Both are married and have children.  Melissa is married to Bobby and they have 2 daughters, Kailey and Samantha.  Emily is married to Jon and they have a daughter, Ava.  He also has 2 step children Wayne who is married to Jacqueline and has 4 children, Ashlyn, Isabella, and Jonathon and Zacchaeus.  Kimberly who is married to Micheal and has a son, Dalton.
He was diagnosed with Type II Diabetes in1990.  From 1990 to 2005 he battled the disease but was rather non compliant.  He didn’t always have the medication that he needed and that played into the worsening of the disease.  He began losing his sight in 2003 when he was diagnosed with Diabetic Retinopathy.  He got progressively worse and was totally blind in 2005.  Prior to becoming totally blind, Charlie led a very active life, he was an avid sky diver, rock climber, did many white water rapids runs, enjoyed painting and photography and he was a fire fighter and paramedic in Columbia South Carolina.
At the same time that he went blind he was diagnosed with End Stage Renal Disease (ESRD).  It was then that he was placed on dialysis and his road to needing a kidney began. Charlie has now been on dialysis for 8 years and on the Kidney Transplant list for the same amount of time.
Every Tuesday, Thursday and Saturday morning, for the last 8 years Charlie has spent 3 1/2 hours in the dialysis chair.  He gets up at 5am and gets to dialysis at 6:30.  On dialysis day he is gone until around noon and then comes home and eats lunch.  He is very worn out so he usually lays down for a nap after lunch and sleeps until dinner time. He very much looks forward to getting a kidney and being able to do things without having to schedule it all around dialysis. Right now everything he does is scheduled around dialysis, that includes his school schedule, all doctor appointments, events, movies, date nights…and the list goes on. It also includes going home to South Carolina to see family, without having to schedule with a dialysis unit there.
In addition to his ESRD and the blindness, the Diabetes has also caused him to develop Coronary Artery Disease and Peripheral Vascular Disease, and neuropathy in his feet and legs.  He had to have a double by-pass in August of 2011 because two arteries in his heart had become 100 percent and 80 percent occluded with plaque.  In January and February of 2012 the arteries in his legs had to be cleaned of plaque. This summer he will have to have both eyes removed as they are dying and causing him great pain. Living with all of the complications means living with many restrictions.  There’s having to schedule everything around dialysis days. Checking your sugars multiple times a day. Giving yourself insulin shots at each meal and bedtime.  Constant monitoring of feet for ulcers or sores. Doctor appointments for heart, kidney, feet…..and the list goes on.  As you can imagine the bills that go along with all of these aliments are never ending as are the bills for medications.
When asked if there was one thing that he could go back and do all over again what would it be?  Charlie’s response was “take my Diabetes seriously”.  His hope is that people will see him and where he is now and not ignore the disease.  He would like to be a positive example of how to live with the Disease and the complications, so that those who are diagnosed can see that there are things you can do even if you are disabled.
Charlie is a wonderful Christian man who maintains a pretty positive attitude considering all that he is dealing with.   Even with all of the negative forces at work around him he still relies on God to help him with any issues that are put in his path.  He is currently a student at San Antonio College, where he is taking all of his main courses and then will transfer to Wayland Baptist University on his road to becoming a pastor.  In addition to his schooling he has been very busy. In January of 2012 he started a movie ministry.  The ministry shows free, family friendly movies to the community one Saturday a month. It has given him great joy to be able to do something positive in the community. He also joined the church choir last year and has been given the privilege of being selected as a Yoke Fellow (Deacon in training) at his church. If anyone is interested in talking with Charlie about Diabetes or Kidney failure please email to gsservant@gmail.com.  He will be happy to share his insight with you individually or to a group.
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KIDNEY STORIES: FIND A CERTAIN KIDNEY

Jack Certain needs a new kidney from a donor with blood type O. If you or someone you know can help, please contact us via this page or call the University of Minnesota Transplant Office, 612.625.5115.

Description

Jack can blame his twin brother Sam for their early entry into the world on Sept 14, 2005. Sam's water broke 8 1/2 weeks early and the boys made an abrupt but safe journey into the world. Jack, weighing in at 4 lbs, needed immediate surgery to treat posterior urethal valves (PUV). As a result of PUV, both kidneys were damaged and Jack began making plans to receive his mamas kidney.

Jack made i...t 2 ½ years before receiving his first transplant at the U of MN on May 2nd, 2008. The first year post transplant yielded some of the most grace-filled moments and some of the most frightening moments. We packed our bags and headed back to the hospital many times to treat mini rejection episodes and high fevers. Ultimately, Jack assimilated his new kidney and by the time we celebrated his one year kidney anniversary his parents decided to now expand their family. Lucy arrived easefully and on time. Whew!

4 years passed before Jack’s kidney health began to deteriorate again. In Dec of 2011, another trip the hospital and biopsy later revealed he had Glomerulopathy (a condition where the filters of the kidney are ‘gummed’ up and acting like an aged kidney). Jack was moved to stage 5 renal failure and began making plans to now receive his dads kidney. Dad was approved as a donor in 2008 but they chose Mom’s kidney because it was smaller and a better ‘fit’ for Jack. Upon reconfirming that dad was still a match last month, we learned that Jack has developed significant antibody against Dad’s tissue no longer making them a “match”.

Jack will have a feeding tube and his dialysis catheters placed the first week of 2013. Dialysis will follow right away and continue until he finds his kidney. Due to the high level of antibody that Jack has, he will be a hard match to find. Jack also has proteinuria (protein leaking in his urine) which may require that Jack’s current kidney be removed prior to finding his next one.

As Jack’s mama, I have never asked “why him?” or “why us?”. I am very clear that Jack chose our family and that we have the capacity to navigate him and our family through this. However, we need help. We need a willing donor that has a blood type 0 to take this next step forward.



** Follow us and read more of our story at acertainkidney.blogspot.com

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KIDNEY STORIES: IN NEED OF KIDNEY

RECEIVING A NEW KIDNEY blood type AB+

Description

Hello My Name Is Edwin Mansour I Am A 44 Year Old Male With Kidney Failure Which I Received From Hereditary situation I been on HEMO DIALASIS 3 TIMES A WEEK SOME TIMES 4 TIMES A WEEK DEPENDING ON HOW I AM FEELING getting dialysis for 3 years now I have never been sick and this took me by surprise my family is suffering emotionally seeing me slowly waste away this is some thing I wouldn't wish on my worst enemy it is just a matter of time before my clock stops ticking THAT'S WHY I AM MAKING THIS PLEA " I NEED A KIDNEY" ANY HELP IN THIS MATTER WOULD BE APPRECIATED!!

transplant coordinator: ARIELLA TOMBACK 212-659-8596
FROM MOUNT SINAI MEDICAL CENTER NEW YORK CITY

My Blood Type Is AB+

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TAGS:  IN NEED OF A KIDNEY,

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KIDNEY STORIES: KIDNEY 4 MAGGIE

KIDNEY STORIES: KIDNEY 4 MAGGIE


I’m looking for a B+ or O Blood type kidney. 13 people die everyday waiting for a kidney transplant. Please share to spread the word ♥
Description
My name is Margaret Leon, also known as Maggie. I was diagnosed with type 1 diabetes when I was 6 years old. Today I am 33 years old. My diabetes is causing both my kidneys to fail. Ive been in stage 5 kidney failure for 2 years now. That means I have to do dialysis 3 days a week for 3 hour each treatment to stay alive.

I am currently looking for a B or O kidney donor. I am also currently listed… at UCLA, California for a kidney and pancreas. If I can find a living donor, my chances of my new kidney are greater on lasting me a longer life, then one of a deceased donor.

I have been doing dialysis for 2 years now to maintain life. I have a loving husband and 3 children at home. Our youngest daughter who is 12, has Cerebral Palsy. She cant wait for the day when I can have the energy to play with her again like I used to when she was little.

The symptoms I’m having at Stage 5 kidney failure includes:

General ill feeling and fatigue
Generalized itching and dry skin
Headaches
Hair loss
Weight loss without trying
Loss of appetite
Nausea
Bone pain
Brain and nervous system symptoms, Drowsiness and confusion
Problems concentrating or thinking
Numbness in the hands, feet, or other areas
Muscle twitching or cramps
Easy bruising, nosebleeds
Excessive thirst
Frequent hiccups
Sleep problems, such as insomnia
Swelling of the feet and hands
Vomiting

Doing dialysis is a struggle for me. I have had many surgeries and still continuing to have surgeries to keep my fistula going in my arm so I can receive treatment. Sitting there in the chair for 3 hours straight, freezing and hurting because the needles aren’t small is very hard. I try to have a great attitude about it, but sometimes its over whelming.

If you or any you know would like to donate, please send me an email or IM

kidney4maggie@gmail.com

Ive been told my wait time on the list can be up to 5 years. Remember I have already gone through 2 years of dialysis and I have 1 year of wait time on the list so far. That leaves me 3-4 years of dialysis until my chance of getting a deceased donor for my blood type.

To learn more about kidney donation, please feel free to check out www.kidney.org

If you would like to donate, remember that my insurance will cover your surgery and hospital stay. Please call my coordinator:

UCLA Violet Castro (310) 267-6948
or
UCLA Mishon Surprenant (310) 267-6903

https://www.facebook.com/pages/Kidney4maggie/437079296366862

www.facebook.com/kidneystories


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KIDNEY STORIES: FIND STEVE A KIDNEY

KIDNEY STORIES: FIND STEVE A KIDNEY

Starting the process again. Needing to find someone to donate a Kidney for Steve. Has 2 kids and a wife that need him very much. Anyone interested contact MVH @ 937-208-8000 and talk to Ann Taylor. Or OSU medical center is 614-293-6724.
Description
I’m in need for a special person to give the gift of life to my family and I. I’m 36 years old with a wife and two kids. I received the gift of life (Kidney transplant) in June 2012. Recently I had a biopsy and it showed a new disease called FSGS. Since then my creatinine level jumped from 2 to 8.4. And I’m starting this process again. It is hard for me to find the right match because I also received a kidney back in 2004 from my mother that rejected 3 years later. So I now have a high level of antibodies that make it very hard to find the right match. My blood type is A- so A and O will work. If interested in donation please contact MVH @ 937-208-8000 and talk to transplant, or contact OSU medical center @ 614-293-6724. The transplant centers will walk you through the testing process. U might be our hero.

https://www.facebook.com/pages/Find-Steve-a-Kidney/158341700952207?id=158341700952207&sk=info

www.facebook.com/kidneystories

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KIDNEY STORIES: DYING FOR A KIDNEY

49 year old wife and mom waiting on transplant list for 3 years. Please help save my life and get my living back

TAGS: dying for a kidney,

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KIDNEY STORIES: KIDNEY FOR TERESA

Hailing from sunny Arizona, Teresa is looking for a kidney donor that will help brighten her future. She has Type O+ blood and is treated at the University of Arizona Medical Center (Tucson, AZ). Lend a hand, share this page!

Description

Diagnosed at the age of 10 with Rapidly Progressive Glomerulonephritis from untreated strep throat (at the time of being diagnosed 50% function of both kidneys were gone), had been in remission until last year. I am 44 years old.

https://www.facebook.com/pages/Find-a-Kidney-for-Teresa/151349485026268?id=151349485026268&sk=info

www.facebook.com/kidneystories

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KIDNEY STORIES: KIDNEY 4 CRAIG

 

 

 

 

If You Would Like to Get Tested to See if You Can Donate your Kidney

By Catherine Grand and Bonita Landreau in Kidney 4 Craig (Files)

Thank you!

First step: Obtain your blood type from your doctor.

Then: Please contact the Ottawa Hospital ....Brenda at 613-738-8400 extension 81744, or if you're calling long distance, call toll free at 1-866-428-2241, option 3, then option 8.

You can also email to mrada@toh.on.ca.

Once you receive and read the package, you need to contact Mary Rada again to confirm that you wish to proceed with the donation process.

If you are not a blood-type match for Craig but would still like to donate a kidney, there is a way do so and get Craig a kidney through participating in the Living Donor Paired Exchange (LDPE) registry. Mary Rada (613-738-8400 ext. 82778, mrada@toh.on.ca) is the contact for LDPE.

Paired exchange, at its simplest, is a program that registers incompatible pairs into a database with other incompatible donor/recipient pairs to hopefully create an opportunity for two recipients to receive kidneys from each other’s living donor. Read more here:

http://www.organsandtissues.ca/s/english-public/living-kidney-donation

Thank you again!
Craig Dunbar
By: Andrew Dunbar


 Craig Dunbar was born on June 28, 1972 in Ottawa, Ontario but nobody could ever imagine what he would have to go through during his life. Craig was the third child born in his family and the youngest. He grew up in a big house in Carp where he loved to go swimming and play sports. He was a very athletic smart kid. When he was young he played hockey and won many trophies and awards.
 Craig attended St. Michaels School while he lived in Carp. After high school, he went to a police/firefighter college. Craig was a garbage truck driver until he graduated college and became a firefighter. Craig saved many lives as a firefighter and was on T.V and in newspapers all across Ottawa.


 Craig married Heather Andrew in 2006 at the Canadian Golf Course. Craig doesn’t have any kids yet but he has three dogs Petey, Phinny and Abby. In May 2007, Craig’s kidneys failed and now he is waiting for a kidney transplant. He also now works for the Kidney Foundation of Canada because he can no longer be a firefighter due to his kidneys. He has showed people with and without kidney failure that you can still play sports and be physically fit with kidney failure. He is an inspiration to everyone who meets him or hears him speak. On October 17th 2012 he was on CTV morning live talking about the Kidney Foundation and how you can help.


 Craig has raised over $60,000 for the Kidney Foundation by doing fundraisers and receiving donations. Examples of this are he does yearly runs, walks, dances, car washes, and BBQ’s. Since he works for the Kidney Foundation he also helps plan many fundraisers and events for the Kidney Foundation. Craig
has also accomplished many goals he set about raising money and awareness for the Kidney Foundation.    
 Craig Dunbar has inspired many people to help the Kidney Foundation. Craig is hoping to get a kidney transplant in the next few years. Craig’s family has supported him and does the best they can to help whenever they can. As a result Craig is an energetic, athletic person that will never give up no matter what.

 

 

Our son/husband/brother/uncle/ cousin/nephew/fellow fire fighter/coworker and beloved friend, Craig Dunbar, is in need o...f a kidney... badly... the purpose of this page is to get the information out there and to find a kidney for Craig!!
His kidneys failed in 2007. He currently does home hemo dialysis six days a week which keeps him alive. Craig's current dialysis access is failing and he is quickly running out of access options.
The only option for him now is a living kidney transplant, and soon! Please get tested and see if you can change his life!!

Check out the Files section for information on how to become a donor, to learn about Craig and his journey, living kidney donation and other items we thought you may find interesting...


you can also follow us on twitter! #kidney4craig, @kidney4craig

and visit us at www.kidney4craig.com

You only need one kidney to have a happy healthy life!!

Craig Dunbar
Hello All,
 
I feel odd writing this, knowing that I am sending it out to be seen by 4000 people who have joined this group to support me and my family in our effort.   
4000
I can’t properly put into words what that number means to me. Until 6 days ago, I bore this burden alone, shielding my family and friends from the worst of my condition. I’ve become used to hiding details of my condition, unless it’s to raise awareness of the disease and advocate for others. I know that many dialysis patients are very sick, and I’ve been very lucky so far in that I’ve been able to do my own treatments at home, and by receiving more dialysis have been healthier. 
When I reached out, I never dreamed that things would take off like this. To go from bearing this alone, to having 4000 new friends, to being the top story on the news, having Strombo and others tweet in support of the campaign... I’m stunned. I sat here in front of an empty page for quite a while trying to find words to express how I feel right now... Anything I try to write just seems to fall short. 
I’ve completely lost track of the messages I’ve been getting, and for that I apologize. Each and every comment I’ve received is greatly appreciated. I just haven’t been able to respond to all of them, and at times have been so overwhelmed I’ve been completely speechless and unable to respond. 
I’d like to thank everyone very deeply for the outpouring of support. Even though this has been a very bad week for my dialysis, I feel stronger than I have in a long time. That light at the end of the tunnel is getting brighter every day.
C

https://www.facebook.com/groups/Kidney4Craig/

www.facebook.com/kidneystories

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KIDNEY STORIES: KATELYNN'S KIDNEY JOURNEY

Anyone interested in being considered as a donor for Katelynn Ernst's kidney transplant should contact Vicky Reilly at Penn State Hershey; 717-531-6092 or vreilly@hmc.psu.edu
Donors can be between age 18-70 with no known health issues.

Mission

To spread the word about Hemolytic Uremic Syndrome (E-Coli) and to promote organ donation.

Company Overview

Description

Katelynn was almost 2 years old when she got sick. After being seen by her pediatrician he informed us that she just had the flu. The following day after checking on her my wife found her having seizures. She was taken to an area hospital where they thought she had meningitis. After sedating her she was medevac’d to Penn State Hershey Children’s Hospital. We had no idea what was going on and ...we were not able to see her. After Katelynn was there for 5 hours the doctor came to speak with us. She informed us Katelynn was indeed in kidney failure. Katelynn had been placed on the ventilator her body was being attacked by hemolytic-uremic syndrome (HUS). Katelynn had somehow contracted the E-Coli virus and would need to undergo dialysis. She needed 3 blood transfusions and had dialysis 10 hours each day. After coming home on dialysis on her 2nd birthday her nephrologist informed us some of her kidney function had returned. Thankfully she got back 30% of her kidney function and did not need dialysis.
See More

General Information

Katelynn suffers from end stage kidney failure. She is currently on 10 mediciations daily some of which she take 3 times a day. She has high blood pressure and takes 2 blood pressure medicines to regulate her blood pressure. She has a vitamin d deficiency and also has high cholesterol.

https://www.facebook.com/KatelynnsKidneyJourney/info

www.facebook.com/kidneystories

TAGS: katlynn's kidney journey,

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KIDNEY STORIES: AMY NEEDS A KIDNEY DONOR

Click on "About" to learn more. Amy suffered from Polycystic Kidney Disease (PKD). Her kidneys were removed in 2006. She's been on the waiting list for a donor kidney for nearly 9 years, on dialysis nearly 11, needing an angel donor with BLOOD TYPE 0. 

Description

Amy suffered from Autosomal Dominant Polycystic Kidney Disease (ADPKD), the most frequent life-threatening, hereditary disease. Amy was diagnosed with PKD at the age of 21. She married her sweetheart and raised a family of five children including a set of twins. Their sons are serving in the military. They now have 9 grandchildren. Due to damaged kidneys from this disease she went into Stage... 5 kidney disease or End Stage Renal Failure requiring dialysis to live which is equal to daily life support.

She has been on dialysis nearly 11 years (started dialysis at age 44) and on the deceased donor list for nearly 9 years has never had a transplant. By the numbers she has had so far approximately 3000 treatments lasting more than 24,000 hours over the years. She has had more than 13 major surgeries and 75 procedures. She is running out of veins to use for dialysis. She is still young (just turned 54) and has so much left to do, see, accomplish. Amy needs a kidney transplant as soon as possible. Once she receives a healthy kidney, her chances for a full recovery and healthy, long life increase drastically. With so many people waiting for a transplant (currently 93,000 waiting for a kidney) finding a living donor is the best option!

Amy and her family live in southwest Missouri, USA and she is currently listed at KUMC Transplant center in Kansas City Kansas.

The following are the most important things to know about organ donation.

* Most people are born with 2 kidneys. Studies show that kidney donors live a normal, healthy life with only one kidney and are no more likely to suffer kidney failure. To read a study from the “New England Journal of Medicine” about kidney donors’ health after their transplant, go to:
www.lkdn.org/Long_Term_Effect_Kidney_Donors_Health.pdf
An interesting fact to realize is 1 in every 750 people are born with one kidney and their life expectancy is the same as someone who is born with 2 kidneys.

* As a result of new anti-rejection drugs, the “matching” of donor/recipient has become much easier. For situations where the donor/recipient are not compatible, “kidney paired exchange” programs allow these donors to be paired and matched with other incompatible pairs. To learn more about the matching process go to:
www.lkdn.org/LKDN_Matching.pdf
For more information about kidney paired exchanges go to:
www.lkdn.org/LKDN_Paired_Exchanges.pdf

* Organ donors need to be in good health, without high blood pressure, diabetes, kidney, heart, liver or other major health issues. For more details on donor qualifications go to:
www.lkdn.org/who_can_be_living_donor.html

* Donating a kidney involves a major surgical procedure and the donor is usually in the hospital 1-3 days. The recuperation period is anywhere from 14-21 days for those with an office job, and about 6 weeks if the individual’s work entails more physical labor. The majority of the procedures are done laparoscopically, with 3-4 small holes for the instruments. A small incision is made to remove the transplanted kidney.

* Medical expenses relating to the transplant are completely paid by the recipient’s insurance company.

In 2005 Amy suffered a severe and life-threatening blood infection (sepsis). This left her suffering from what is known as hemolysis and needing 11 blood transfusions. The transfusions drastically increased her antibody levels which make her a very very difficult match. While others at her transplant center typically only wait about 2 years before receiving a deceased donor organ, Amy has been waiting 8 years and still no transplant. Amy has also gone through what is known as IVIG therapy numerous times in an effort to lower her antibodies and enable her to be a better match for a donor organ. She is still a tough match.

Amy started out on in-center dialysis and after about 8 months switched over to home hemodialysis with her loving husband as a care partner. She has been doing home hemodialysis for over 9 years and has had numerous surgeries, procedures etc. She just lost her 10th arm access for hemodialysis. She recently had a PD (peritoneal dialysis) catheter placed in her belly to try and do home dialysis using the peritoneum in her abdomen. After just a few weeks it was evidently not working (another hospital stay) and she is back on home hemodialysis. Amy and her family are praying and hoping this dialysis will last her long enough to find a donor organ and be dialysis free. She has endured countless procedures, surgeries and "hiccups" along her journey, including another infection requiring hospitalization in May 2012 - that will make her 5th bout of MRSA sepsis.

Diabetes is the #1 cause of needing dialysis in the U.S., with high blood pressure the #2 cause. An estimated 100,000 people join the ranks of dialysis patients each year, yet the number of those remaining on dialysis remains the same due to the high mortality rate. If more people signed an organ donor card or stepped forward to donate blood, bone marrow, tissue and organs like kidneys while still living so many more lives could be saved and those waiting (the current 93,000 for kidneys) would be able to live longer, healthier lives.

If you are interested in donating for/to Amy or anyone else remember that just a few days in the hospital for you could give Amy or another person waiting 15 or more years of dialysis free living. You must have blood type O (for Amy)and be in good health.

Amy's transplant coordinator is at

University of Kansas Medical Center
Transplant center
Tham Hoffman
913-588-5049
email jhoffman@kumc.edu

Even if you don't match Amy you could be a match for one of the other 93,000 waiting on the deceased donor list in the United States and could be a life-saving option for someone else. While you are at it, PLEASE like her page and spread the word about living organ donation and especially help Amy fulfill her dreams and wishes. Thank you kindly. Blessings & Peace,


http://donatelife.net/
http://www.lkdn.org/
http://www.unos.org/
http://www.transplantliving.org/living-donation/facts/
http://kidneyschool.org/
http://homedialysis.org/
http://www.kidney.org/
http://www.aakp.org/
http://www.kidneyfund.org/
www.pkdcure.org

https://www.facebook.com/AmyNeedsALivingDonorKidney

www.facebook.com/kidneystories

TAGS:  amy needs a kidney,

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KIDNEY STORIES: A KIDNEY FOR LYSA

I started this page for my mom Lysa. She is currently on dialysis and needs a kidney transplant. Her blood Type is O- She is currently on dialysis and lives in the New York Metro area. She is a mom and grandma to my little girl. If you know anyone who is looking to donate a kidney please contact us. My moms email is lovesmykidssomuch@aol.com
https://www.facebook.com/AKidneyForLysa
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