Thursday, September 30, 2021
After fighting autoimmune disease, Seaford man seeks a kidney donor
After fighting autoimmune disease, Seaford man seeks a kidney donor: Feb. 28 started out as a normal Sunday morning for Seaford resident Tyler Donohue and his family. His parents, Peter and Katherine, were preparing for a vacation in Connecticut the following weekend, …
‘I had a spare’ - Flyer inspires woman to donate kidney to father of 4
‘I had a spare’ - Flyer inspires woman to donate kidney to father of 4: The National Kidney Foundation estimates there are 100,000 people around the country waiting for a kidney transplant.
Saturday, September 25, 2021
Broadcast with Dr Eliot Heher on Pre-Emptive Kidney Transplants
Did you miss the Dr Heher Broadcast on Pre-Emptive Kidney Transplants (Best Ever!)? Catch the Instant Replay Here: https://www.facebook.com/UrbanHealthOutreachmedia/videos/3085394145038473/
Friday, September 24, 2021
My Heart Tests 3
CAR LEXISCAN STRESS TEST - Details
About this testStudy Result
Narrative
Community Healthcare System
Date of Test:
Patient is a 67-year-old male here for Lexiscan nuclear stress test.
Baseline 12-lead ECG shows sinus bradycardia, heart rate 57 beats per
minute, blood pressure 127/67. No ST-segment changes at baseline.
Regadenoson infused per protocol. ECG tracings were reviewed. There is
no evidence of ischemia.
CONCLUSION:
1. No evidence of ischemia on the ECG portion of Lexiscan nuclear
stress test.
2. Please note myocardial perfusion imaging results will be reported
separately.
Omar A Husseini, MD
OAH/sc
D:09/10/2021 17:47:50
T:09/10/2021 18:26:22
Job#:025282
Component Results
There is no component information for this result.
General Information
My Heart Tests 2
NM MYOCARD SPECT MULTI - Details
Study Result
Narrative
Report: Perf SPECT Rest-Stress Imaging
Name: MYERS, JAMES W
MRN: 10528238 Exam Date: 9/8/2021
Referring MD:HUSSEINI, OMAR Ordering MD:HUSSEINI, OMAR
Patient Class:OUTPATIENT Height: 73 in
Weight: 238 lb BSA: 2.32 m2
DOB Age: 8/3/1954,67yr Sex: M
Technologist:Sellers, E. CNMT
Reason for Exam:Chest pain nonspecific
Procedure: NM MYOCARD SPECT MULTI
Pharmacologic Agents:Lexiscan 0.4 mg/5ml
Priority: ROUTINE
Accession: 04909048IM21
Risk Factors:Hypertension, CAD
Clinical Symptoms:Chest pain, Dizziness, Dyspnea, Fatigue
Surgery / Procedures:Angioplasty
Radiopharmaceuticals:Rest dose of Tc-99m sestamibi was 10.10 mCi @1120 and
patient scanned @1215. Stress dose of Tc-99m sestamibi was 31.0 mCi @1243 and
patient scanned @1325.
------------------------------------
SUMMARY:
------------------------------------
Stress Type: The patient was stressed with Lexiscan stress.
Reason for Exam: Chest pain nonspecific.
Procedure:
The patient received an IV injection of Tc-99m Sestamibi, respectively at rest
and following IV infusion of Lexiscan 0.4 mg/5ml. Rest dose of Tc-99m
sestamibi was 10.10 mCi @1120 and patient scanned @1215., Stress dose of
Tc-99m sestamibi was 31.0 mCi @1243 and patient scanned @1325.Gated and
non-gated tomographic imaging was acquired.
Findings:
The study quality is fair.
Gated SPECT images reveal normal systolic myocardial thickening with a normal
resting left ventricular ejection fraction of 53%.
EDV: 98 ml ESV: 46 ml TID score: 0.94, TPD: [
2 ]%
Final Impression:
1. Study negative for ischemia.
2. Normal LV size with EF of 53 %.
<Electronic Signature> 09/10/2021 06:10 PM
Husseini, Omar, MD
Images
Component Results
There is no component information for this result.
General Information
Wednesday, September 22, 2021
Monday, September 13, 2021
AAKP ADVOCACY TRAINING SCRIPT
• Advocacy and Engagement Training: Top Ten Things to Know to be Effective on Camera – from Zoom to Media Interviews & How to Tell Your Story Online • Speakers: Jonathan St. John, owner and senior editor of Briar Patch Media and Jennifer Rate, AAKP Marketing & Communications Manager • Moderator: Jim Myers Thank you for joining the American Association of Kidney Patients for the Advocacy and Engagement Training session titled “Top Ten Things to Know to be Effective on Camera – from Zoom to Media Interviews & How to Tell Your Story Online.” My name is Jim Myers. My family has been profoundly impacted by polycystic kidney disease. I’ve lost 5 family members to PKD, including my father. Because of my family’s history, I was diagnosed at the age of 25, and was able to put off dialysis until the age of 58. I was on dialysis for 4 years and received a kidney transplant on April 27th, 2016. My specialty is the ability to utilize social media to help fellow kidney patients and to raise awareness of the plights of my fellow kidney warriors. As a member of the AAKP Board of Directors and an AAKP National Ambassador, I support the organization’s efforts as Chair of the AAKP Strategic Communications Committee and Chair of the AAKP Pediatric Kidney Pals Initiative. I’m also a proud recipient of the inaugural AAKP National Social Media Education and Advocacy Award. I am involved with AAKP because (insert personal thoughts). Today I am pleased to introduce two of my good friends. First, I’d like to introduce Mr. Jonathan St. John, owner and senior editor of Briar Patch Media, AAKP’s national, strategic media partner and the company, and individual, that has been responsible for the production needs of all AAKP events since 2019. His expertise and guidance are unparallel as AAKP transitioned to fully virtual events due to the Coronavirus pandemic. I’d like to also introduce Jennifer Rate, AAKP’s Marketing and Communications Manager. Jen oversees all of AAKP’s social media campaigns, publications, and national press relations. Jennifer has a strong background in the latest technologies necessary for conducting smart and innovative social media campaigns that connect people and advance principled policies. As we find ourselves in a world that has embraced more virtual interactions due to the COVID-19 pandemic, this training session is a must see. As kidney patients, we know already how important our voice is in policy and advocacy issues. Many of us have or may participate in virtual activities such as Hill Days, speaking engagements for online conferences or support group meetings, various media interview opportunities related to kidney disease issues, or requests to participate in patient advisory boards or research projects. It’s imperative that we do not let technology intimidate us but understand its power and its ability to reach individuals beyond our own networks. We must use it to our advantage to expand our independent patient voice, share our unique patient insights and stories, so we continue to be a part of every policy, advocacy, and research discussion. Without further ado, I’d like to first turn it over to Jonathan to walk us through the Top Ten Things to Know to be Effective on Camera – from Zoom to Media Interviews. (Jonathan presents) Thank you, Jonathan, for a great presentation. Your tips will help each of us become more comfortable and effective every time we step in front of a camera. I am now honored to welcome Jennifer, who will provide a presentation on how to tell your story as an effective tool for advocacy and awareness efforts. (Jennifer presents) Thank you, Jen for an excellent presentation and constructive guidance on how individuals can share their story and the importance of sharing one’s journey with kidney disease. Once again, thank you to both Jonathan and Jennifer and thank you all for tuning in. I hope you will take all the great information shared and it put it to action. See you online! (End)
Saturday, September 4, 2021
My Blog for PKD AWARENESS DAY 2021
PKD AWARENESS DAY 2021 BLOG
PKD Awareness Day is designed to bring to the attention of people everywhere the need for continued research to find a cure for polycystic kidney disease (PKD). According to the PKD Foundation, "On September 4th, we celebrate PKD Awareness Day. A day dedicated to educating and inspiring our friends, families, and communities to learn about PKD. When more people learn about PKD, more people get involved. And that means more resources dedicated to finding treatments and a cure."
https://pkdcure.org/what-to-know-about-pkd-awareness-day/
To honor the occasion, I want to tell you a story about my Father that heightened and raised my awareness of PKD, and is the direct reason I am such a persistent advocate for PKD/Kidney Patients everywhere. I have lost 5 members of my family to polycystic kidney disease, including my Dad. My Dad passed away on September 18th, 1983. He died of congestive heart failure and uremic poisoning secondary to polycystic kidney disease at St. Margaret's Hospital in Hammond, Indiana.
For the last month of his life, he was hospitalized. He would never return to his home in Cedar Lake, Indiana ever again. Worse yet, he knew he was sick, he knew he was dying. But yet, when the doctors and the nurses asked him to speak to another patient about peritoneal dialysis, he would do it.
Peritoneal dialysis was new in Lake County, Indiana by 1983, and my Dad was one of the first that was willing to try it. He had been on In Center Hemodialysis previously and he was told this would be better for him and enable him to continue working at his Certified Grocery Store. He and my Mother had built that business from a tiny corner store in 1948, to 2 large supermarkets by 1966. It was his pride and joy, his life, his reason to be. Next to his family, he loved those stores. For this reason, he accepted PD.
The last month of his life while hospitalized, I came to stay with him every single day. I owed him so much, my life, my education, my profession as an attorney. One morning near the end of his life, his doctor asked him to speak to a new dialysis patient who was hospitalized. He accepted. They unhooked him from the machinery that was keeping him alive, put him in a wooden wheel chair and asked me to wheel down the hall to this patient's room.
When we arrived, my Dad spoke to the man about the pros and cons of peritoneal dialysis. My Dad was not like me and my Mother. He was an introvert by his nature. If you went out to dinner with him, you had better be prepared to carry the conversation, because he may go through the whole meal without saying a word. He studdered and he stammered. He struggled to get through his talk. Several times he had to stop and catch his breath. Several times I asked him, 'are you ok?' and 'do you want to go back to your room?' He finally finished. The man thanked him and I wheeled him back to his room. I had to wrap my arm under both his arms and cross his chest to keep him in the wheelchair. 3 nurses had to help him back into his bed. He was exhausted. He died later that month. After his death, the hospital published a newsletter, with my Dad on the front page extolling the virtues of peritoneal dialysis and their services. The article left the impression that my Dad was still alive and thriving.
I was livid. I felt they had used my Dad for profit.
But I realize now that they did all of this with my Father's knowledge and consent. He wanted to do this. He wanted to help his fellow PKD/CKD patients. He wanted to help them to avoid some of the pain and misfortune he went through as a PKD patient. He wanted to "educating and [inspire] our friends, families, and communities to learn about PKD."
So on this September 4th, 2021, PKD Awareness Day, I remember my Father, the PKD/Kidney Advocate, who set the example for me, and hopefully now, for you as well. Happy PKD Awareness Day my friends.
Lisa Smallwood-Belk Broadcast
Did you miss PKD Patient/Advocate Lisa Smallwood-Belk's Broadcast? Replay It!
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