20 People Volunteer to Save 9 yr Old Kidney Patient's Life
https://nbc25news.com/news/local/9-year-old-boy-needs-a-new-kidney
Tuesday, December 31, 2019
Monday, December 30, 2019
Kidney For Kelli: Husband Stands Outside With Sign To Find Donor For His Wife
Kidney For Kelli: Husband Stands Outside With Sign To Find Donor For His Wife
https://local12.com/news/local/kidney-for-keli-husband-stands-outside-with-sign-to-try-to-get-wife-kidney-donor-cincinnati
https://local12.com/news/local/kidney-for-keli-husband-stands-outside-with-sign-to-try-to-get-wife-kidney-donor-cincinnati
Saturday, December 28, 2019
'Thank You For My Kidney', 3 Year Old Gets the Gift of Life
Thank you for my kidney': 3-year-old Langhorne boy gets gift of life for Christmas https://6abc.com/health/thank-you-for-my-kidney-3-year-old-gets-gift-of-life-for-christmas--/5792949/… via @6abc
Friday, December 27, 2019
Girl Battling Kidney Disease Goes to Disney
Selby girl battling two diseases granted Disney World wish https://aberdeennews.com/entertainment/selby-girl-battling-two-diseases-granted-disney-world-wish/article_5aa85fac-22a1-11ea-8734-57ee9a57ec65.html?utm_medium=social&utm_source=twitter&utm_campaign=user-share… via
@aberdeennews
I
PKD Man Needs A Kidney
PKD Man Needs A Kidney
http://www.news-herald.net/news/lenoir-city-man-needs-kidney/article_3a928c5d-c06b-555d-92c5-64b4fb19c36d.html
http://www.news-herald.net/news/lenoir-city-man-needs-kidney/article_3a928c5d-c06b-555d-92c5-64b4fb19c36d.html
3 Year Old Girl Gets A Kidney From A Stranger
Norman Girl, 3, Gets New Kidney For Christmas, Donated By Stranger
https://www.news9.com/story/41496361/norman-girl-3-gets-new-kidney-for-christmas-donated-by-stranger#.Xga247Abq4g.twitter
Thursday, December 26, 2019
Man Received Best Christmas Present Ever- A Kidney
Man gets his best Christmas Present Ever- A Kidney
https://www.khou.com/mobile/article/life/heartwarming/army-veterans-wish-comes-true-one-year-later/285-8af559c0-17f6-4ad5-b00f-fb699bfab379
Man Received Kidney Transplant From His Dentist
Man Receives Kidney Transplant From his Dentist
https://www.journalnow.com/news/local/he-got-a-new-kidney-from-his-dentist-now-though/article_0857d825-c051-5e1f-b8ff-1c811462ef74.html
After A Kidney Transplant, Hobart Man Wishes To Give Back
After Kidney Transplant, Hobart Man Wishes to Give Back
https://www.chicagotribune.com/suburbs/post-tribune/ct-ptb-reyes-decade-st-1227-20191226-hhvk7l4fyratjhxuj7eohndyu4-story.html?outputType=amp
PKD Man Receives Miracle Kidney
Divine Intervention: PKD Man Receives Miracle Kidney
https://www.news-daily.com/news/divine-intervention-jonesboro-resident-receives-life-saving-kidney-transplant/article_cb39216c-20fc-11ea-87b3-139ae7e63eb4.html
3 Year Old Receives Transplant From A Stranger
3 yr Old Receives Life-saving Kidney Transplant
https://kitchen.kidneyfund.org/eating-healthy-with-kidney-disease/kidney-disease-stage-5-on-dialysis/
Wednesday, December 25, 2019
The Gift of a Lifetime: A Kidney for Christmas
The Gift of a Lifetime: A Kidney for Christmas
https://www.postregister.com/news/local/the-gift-of-life-a-kidney-in-time-for-christmas/article_8880ce16-bbd5-54b3-84c5-e9445606936e.html
A Perfect Match: Husband Married 51 Years Donates Kidney to Wife Right Before Christmas
A Perfect Match: Married 51 Years, Husband Donates a Kidney to his Wife, Right Before Christmas
https://www.firstcoastnews.com/mobile/article/news/health/man-donates-kidney-to-wife-during-holidays/269-2412e29b-cdc4-44e1-96d9-6fc9012df01b
Tuesday, December 24, 2019
PKD Man Given Kidney By His Brother
PKD man Given Kidney By His Brother
https://m.albertleatribune.com/2019/12/austin-man-given-the-gift-of-a-kidney-by-his-brother/
Fire Chief Donates Kidney to Stranger
Fire Chief donates kidney to 18-year-old girl he had never met
https://katv.com/news/local/maumelle-fire-chief-donates-kidney-to-18-year-old-girl-he-had-never-met
https://katv.com/news/local/maumelle-fire-chief-donates-kidney-to-18-year-old-girl-he-had-never-met
WHY THE LIVING DONOR PROTECTION ACT IS IMPORTANT
WHY
THE LIVING DONOR PROTECTION ACT IS IMPORTANT
INTRODUCTION
Recently, I received an
IM on my Facebook Messenger. The writer
told me she had a donor in the State of Indiana who wanted to donate a kidney
to her and was a match. The problem was
her potential donor's employer would only agree to give him 1 day to accomplish
this task and expected him back at work.
It put the donor in an untenable situation. He wanted to donate his kidney to the needy
recipient to save her life but was risking the loss of his lifelong
employment. Also, any insurance coverage
he had through his work, would also be lost. She was concerned that she might
lose her kidney donor. There was also
the unstated fear of being unable to find another perfect match donor, leading
to the unspeakable, inevitable result all potential transplant patients fear. [i]
THE ISSUE
The Living Donor
Protection Act (LDPA) (S.511/H.R. 1224), was introduced by Senators Kirsten
Gillibrand (D-NY) and Tom Cotton (R-AR) and Representative Jerrold Nadler
(D-NY) and Jaime Herrera Beutler (R-WA).[ii] The purpose of the LDPA
is to protect living organ donors and to help remove barriers to donation. Barriers have including the loss/altering of
employment and the loss/altering of insurance obtained through employment or
otherwise directly from the carrier.[iii]
There is a need for kidney/organ
donors, but there is a shortage of available living organ donors. Frequently, people are willing to donate, but
discouraged from doing so due to problems with their employment and the
potential changes or loss of necessary insurance coverage.
The issue is what steps need to be taken to overcome
these obstacles?
THE NEED
Currently, there are
approximately 80 million people in America, 1 in 3 who are at risk for Chronic
Kidney Disease (CKD). [iv]
·
CKD effects an estimated 37 million people
in the U.S., 15% of the adult population, more than 1 in 7 adults[v];
·
90% of those who have CKD, don’t even know
they have it![vi]
·
In 2016, 726, 331 Americans had kidney
failure, requiring either dialysis or a kidney transplant to survive[vii];
·
Nearly 700,000 patients currently receive
dialysis to replace their kidney function[viii];
·
In 2016, 215,000 Americans were fortunate
enough to live with a kidney transplant, Currently, 185,000 people are living
with a kidney transplant.[ix];
·
Currently, 94,789 Americans are on
the waiting list for a kidney[x];
·
Over 3000 new patients are added to
the kidney waiting list each month. That’s one every 14 minutes[xi];
·
13 people die every day on average
waiting for a kidney transplant. 3600 people died on the waiting list before
ever receiving a kidney in 2018[xii];
·
In 2018, only 21,200 kidney
transplants were performed, only 1/3 of those (6,442) came from living donors. Living
donors make a substantial contribution to increasing the number of transplants
performed each year[xiii].
Obviously, with
approximately, 100,000 people on the waitlist and transplanting only 20,000
people a year, we need to encourage more kidney donation to meet the need. There simply is no good excuse to lose 13
qualified kidney transplant candidates every single day.
THE BARRIERS
Like my friend, donors
have faced discrimination obtaining, affording and maintaining life, disability
or long-term care insurance. Higher
premiums, cancellation or denial of coverage has all to frequently been based
solely on the fact that they are kidney donors.
In 2015, a study by John
Hopkins University of 1,046 kidney transplant patients, 186 donors who changed
or initiated life insurance after donation, 25% reported difficulty in
obtaining their desired coverage, 12% were denied altogether, 15% were charged
a higher premium and 9% were told they had a pre-existing condition because
they were kidney donors.[xiv] This is at odds with the facts that to donate
an organ you go through rigorous examinations to meet strict health standards. Often, donors are in better health then the
general population. Their life
expectancy is similar to non-donors and in many cases exceeds that. Most donors go on to lead normal, healthy
lives. There is no current study or
medical evidence that insurance carriers are at increased financial risk for
insuring living organ donors. There is
no objective reason to charge higher premiums, deny or limit coverage because
someone has donated an organ.[xv]
Outside of Idaho and New
York, there currently are no legislative protection to prevent insurance
discrimination against kidney/organ donors.
Although last year the Department of Labor issued a regulatory opinion
that they consider the Family Medical Leave Act, and it’s 12 weeks of leave to
cover living donation, it is not law.
The FMLA does not apply to businesses with less than 50 employees.[xvi]
Obviously, kidney
donation requires a surgical procedure.
This requires some time away from work for surgery and subsequent
recovery. Outside of Idaho and New York, there currently are no legislative
protection to prevent insurance discrimination against kidney/organ
donors. Although last year the
Department of Labor issued a regulatory opinion that they consider the Family
Medical Leave Act, and it’s 12 weeks of leave to cover living donation, it is
not law. The FMLA does not apply to
businesses with less than 50 employees. All to frequently, this puts the
donor’s job at risk. There is no
fairness or equity in this situation resulting in discouraging someone from
donating. Some donors have lost their
jobs after donating to save the recipient’s life.[xvii]
Fear of a lack of
insurance, higher premiums, altered employment status or job loss are barriers
to a kidney/organ donor. When we should
be taking every step we can to encourage kidney donation to prevent loss of the
ability to remain on the list, or death from the failure to transplant, these
barriers remain.
THE COST SAVINGS TO
MEDICARE
There is one other aspect
that must be discussed here, and that is the savings to Medicare to have
someone with a transplanted kidney as opposed to being on dialysis.
·
In 2016, Medicare spend over $89,000 per
dialysis patient, per year;[xviii]
·
Medicare Part B spends $2,303 on immunosuppressive
drugs per year for kidney transplant patients[xxi];
·
The removal of the employment and
insurance barriers would result in an approximate savings of $55,000/year with
a vast improvement in their quality of life.[xxii]
THE SOLUTION
The Living Donor Protection resolves these issues in 3 ways[xxiii]:
·
It prohibits life, disability and
long-term care insurance companies from denying or limiting coverage and from
charging higher premiums to living organ donors;
·
It amends the Family Medical Leave Act of
1993 to specifically include living organ donation as a serious health
condition for private and civil service employees; and
·
It directs HHS to update their materials
on live organ donation to reflect these new protections and encourage more
individuals to consider donating an organ.
The LDPA provides
critical protection to living donors by:
·
Removing economic roadblocks;
·
Ensuring donors have enough time to heal;
·
Ensuring donors can afford and maintain
their insurance;
·
Gives the organ donor more certainty and
encouragement to donate an organ;
·
Saves Medicare millions of dollars.
COSTS TO THE FEDERAL
GOVERNMENT TO IMPLEMENT THE LDPA
According to experts, the
proposed law has never received a CBO (Congressional Budget Office) score. The NKF has discussed its opinion here:
“2017 Living Donor Protection Act:
Q: Are the Living Donor Protection Act changes really important
enough to result in more living donors?
A: These changes—which don’t cost anything to
implement—address specific issues that we know are challenging living donors
today. Magnanimous Americans are out there, are ready to become living donors –
and by eliminating unnecessary trade-offs such as “job security vs. saving
someone’s life” we can empower them to give the gift of life. Moreover,
transplants are not only the best therapy for most patients, they are also
significantly more cost effective (about $30,000 for a transplant vs. nearly
$90,000 for dialysis each year).
Q: What is the life insurance industry’s position on this
bill?
A: In both the previous Congress and this current Congress,
there has been zero opposition from the insurance industry regarding this
legislation. In fact, our organizations and more than a dozen other groups who
have endorsed it are unaware of any pushback from any entities
whatsoever.
Q: What’s the status of that immunosuppressive drug coverage
bill?
A: The Comprehensive Immunosuppressive Drug Coverage Bill
was legislation widely supported by the kidney and transplant communities in
several prior Congresses. The bill has not been re-introduced in this Congress.
Q: Does the Living Donor Protection Act cover just kidney
donation, or other kinds of live donation?
A: The bill would cover live donors who are donating every
type of organ. However, live kidney donation is by far the most common type of
living donor transplant.
Q: What is the expected cost of the Living Donor Protection
Act?
A: The sponsors anticipate that this is a no-cost bill.
Q: How did you develop these potential savings
estimates?
A: It is important to recognize that this data is simply a
model, not a prediction per se, but it highlights that increasing access to
living donor transplantation is the right thing to do for patients and could
portend advantages from a Medicare cost perspective. This particular estimate
looked at the number of people who currently receive transplants from living
donors who have non-Medicare insurance nationwide and calculated what effect
increasing that number by 10% per year for 10 years could save by preventing
these transplant recipients from going onto the Medicare ESRD program due to
kidney failure. The lower amount ($250 million) reflects what Medicare would
avoid paying for the average cost of dialysis care only; the higher amount
($780 million) reflected.
From GOA Report 2014
Congressional Budget Office (CBO)
Cost Estimates for H.R.1224 [116th]Close
As of 12/20/2019 a CBO Cost Estimate for this measure has not been received.
[xxiv]
About CBO Cost Estimates
CBO produces cost estimates for select bills and resolutions. Bills for which the Library has received CBO Cost Estimate data link to the CBO Cost Estimates. CBO Cost Estimates can be searched from CBO's Cost Estimates Search page.”
STATE ACTION OF THE LDPA
There are several States’
Laws that are patterned after the proposed Federal LDPA Law. To date, there 15 States and DC that have
some type of Donor Leave Law that impact state employees. The Donor Leave Laws offer state employees up
to 30 days leave (paid or unpaid) for acting as a living organ donor. These states include: Arkansas, California, Colorado, Connecticut,
Hawaii, Louisiana, Maine, Minnesota, Nebraska, New York, Oregon, Pennsylvania,
South Carolina, West Virginia, and Wisconsin.[xxv] 20 States have enacted tax deductions or
credits to living donors.
Currently, there are 12
states that have some version of the LDPA.
Those states include Arizona, Arkansas, California, Colorado, Idaho,
Illinois, Kansas, Maine, Maryland, New York, Oklahoma, and Oregon.[xxvi]
CONCLUSION
The barriers to
kidney/organ donation have been serious enough to prevent people from
donating. The potential loss/alteration
of employment, status or benefit may prevent reasonable dedicated persons from
a life-saving kidney/organ donation.
This is devastating to both the donor and the recipient. The
loss/altering of insurance benefits, without honest justification is also an
incredible barrier to organ donation.
The need for kidney donation is great, with almost 100,000 people on the
waiting list and last year transplanting 20,000 and only 6440 living kidney
donors, what is required is more protection for kidney donors and less
devasting barriers.
The Living Donor
Protection Act is the solution to these issues. It provides that the Family
Medical Leave Act applies to living donors and that their employment cannot be
terminated or altered in any way.
Insurance companies cannot discriminate against the living donor by
cancelling or altering the life, long-term care or disability coverage of the
living donor. The savings to Medicare
would be substantial if enacted. The
costs to the Federal Government are non-existent to implement the Act. States have enacted their own version of the
Act to protect both living donors and recipients. The bottom line is this: the LDPA should be
enacted to enhance organ/kidney donation to save lives now! It is a no-brainer. We need to take steps to
protect the brave kidney/organ donor, who generously wishes to give the Gift of
Life to some worthy recipient. This is
why we need the Living Donor Protection Act!
ENDNOTES
[ii]Nadler, Herrera Beutler, Gillibrand, Cotton Introduce
Bipartisan Living Donor Protection Act to Protect Organ Donors, www.kidney.org/news/national-kidney-foundation-applauds-congressional-champions-legislation-to protect-living-organ, (February 14, 2019);
nadler.house.gov/press-release/Nadler-herrera-beutler-gillibrand-cotton-introduce-bipartisan-living-donor-protection(February
15, 2019); https://www.healio.com/nephrology/transplantation/news/online/%7B90a026c2-d2d6-4252-abdb-54d12879c932%7D//congress-introduces-bill-to-protect-living-organ-donors (February 15, 2019).
[iii]
Kribs, https://www.kidneynews.org/policy-advocacy/leading-edge/the-living-donor-protection-act-of-2019-reintroduced-in-house-and-senate
(2019).
Iv Tighe, Congress and Congressional Process, A
Positive Force for Patients & Research Advancement, PPT, https://documentcloud.adobe.com/link/track?uri=urn%3Aaaid%3Ascda$3AUS%3Ab7fa3450-11b1-4bd0-a2ee-6ced1a3dd9bf
(May 23, 2019); ASN, AAKP Join Forces to Advance Living Donor Protection Act, https://www.kidneynews.org/kidney-news/policy-update/asn-aakp-join-forces-to-advance-living-donor-protection-act
(2019); 2019 Kidney Patient Summit Policy Talking Points (2019); NKF
Infographic, 6th Annual Kidney Patient Summit, Co-Sponsor and help
pass: The Living Donor Protection Act (S.511/H.R. 1224) (2019); Support the Living
Donor Protection Act, https://www.kidney.org/blog/kidney-cars/support-living-donor-protectiion-act
(2019).
v. Chronic
Kidney Disease in the United States, 2019, Chronic Kidney Disease Initiative,
Centers for Disease Control & Prevention , https://www.cdc.gov/kidneydisease/publications-resources/2019-national-facts.html
(2019); Advocacy and Public Policy Challenges By The
Numbers, http://kidney.org/news/newsroom/factsheets/CKD-A-Growing-Problem (2019); Note: For complete
sources/references, see NKF's Kidney Disease: The Basics fact sheet located at:
https://nkf.egnyte.com/dl/DWdaLPWST6/
United States Renal
Data System. 2018 USRDS annual data report: Epidemiology of kidney disease in
the United States. Bethesda, MD: National Institutes of Health, National
Institute of Diabetes and Digestive and Kidney Diseases; 2018. Available at:
https://www.usrds.org/reference.aspx
[2018 ADR
Reference Tables; Volume 1; K. Healthcare Expenditures for CKD; Tab K.1; Column
V, Row 35]
United States
Renal Data System. 2018 USRDS annual data report: Epidemiology of kidney
disease in the United States. Bethesda, MD: National Institutes of Health,
National Institute of Diabetes and Digestive and Kidney Diseases; 2018.
Available at: https://www.usrds.org/adr.aspx
[2018 ADR
Chapters; Volume 1; Chapter 7: Healthcare Expenditures for Persons with CKD;
Spending for CKD and Related Chronic Comorbidities; Beneficiaries Aged 65 and
Older; Fee-For-Service Medicare; line 9]
vi. Id., Chronic
Kidney Disease in the United States, 2019, Chronic Kidney Disease Initiative,
CKD is Common Among Adults, Fast Facts, Centers for Disease Control & Prevention
, https://www.cdc.gov/kidneydisease/publications-resources/2019-national-facts.html
(2019).
vii. Id., Chronic
Kidney Disease in the United States, 2019, Chronic Kidney Disease Initiative,
CKD is Common Among Adults, Fast Facts, Centers for Disease Control &
Prevention , https://www.cdc.gov/kidneydisease/publications-resources/2019-national-facts.html
(2019).
vii. Advocacy and Public Policy Challenges By The
Numbers, http://kidney.org/news/newsroom/factsheets/CKD-A-Growing-Problem
(2019); Note: For complete sources/references, see NKF's Kidney Disease: The
Basics fact sheet located at: https://nkf.egnyte.com/dl/DWdaLPWST6/
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/reference.aspx
[2018 ADR Reference Tables; Volume 1; K. Healthcare
Expenditures for CKD; Tab K.1; Column V, Row 35]
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/adr.aspx
[2018 ADR Chapters; Volume 1; Chapter 7: Healthcare
Expenditures for Persons with CKD; Spending for CKD and Related Chronic
Comorbidities; Beneficiaries Aged 65 and Older; Fee-For-Service Medicare; line
9]
viii. Id., Number
of people in need of renal replacement therapy is rising, https://www.eurekalert.org/pub_releases/2019-12/e-nop121919.php
(December 19, 2019).
ix. Advocacy and Public Policy Challenges By The
Numbers, http://kidney.org/news/newsroom/factsheets/CKD-A-Growing-Problem
(2019); Note: For complete sources/references, see NKF's Kidney Disease: The
Basics fact sheet located at: https://nkf.egnyte.com/dl/DWdaLPWST6/;
Organ Donation And Transplantation Statistics, https://www.kidney.org/news/newsroom/factsheets/Organ-Donation-and-Transplantation-Stats
(2019); McDonnell, Kidney Transplant, https://www.emedicinehealth.com/kidney_transplant/article_em.htm
(2019).
x. Id.
xi. Advocacy and Public Policy Challenges By The
Numbers, http://kidney.org/news/newsroom/factsheets/CKD-A-Growing-Problem
(2019); Note: For complete sources/references, see NKF's Kidney Disease: The
Basics fact sheet located at: https://nkf.egnyte.com/dl/DWdaLPWST6/
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/reference.aspx
[2018 ADR Reference Tables; Volume 1; K. Healthcare
Expenditures for CKD; Tab K.1; Column V, Row 35]
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/adr.aspx
[2018 ADR Chapters; Volume 1; Chapter 7: Healthcare
Expenditures for Persons with CKD; Spending for CKD and Related Chronic Comorbidities;
Beneficiaries Aged 65 and Older; Fee-For-Service Medicare; line 9]
Organ Donation and Transplantation Statistics, https://www.kidney.org/news/newsroom/factsheets/Organ-Donation-and-Transplantation-Stats
(2019); McDonnell, Kidney Transplant, https://www.emedicinehealth.com/kidney_transplant/article_em.htm
(2019).
xii. Id
xiii. Id., UNOS,
2018 transplants by organ, https://unos.org/transplant/
(December 24, 2019) (19,360).
xiv. Advocacy
and Public Policy Challenges By The Numbers, http://kidney.org/news/newsroom/factsheets/CKD-A-Growing-Problem
(2019); Note: For complete sources/references, see NKF's Kidney Disease: The
Basics fact sheet located at: https://nkf.egnyte.com/dl/DWdaLPWST6/
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/reference.aspx
[2018 ADR Reference Tables; Volume 1; K. Healthcare
Expenditures for CKD; Tab K.1; Column V, Row 35]
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/adr.aspx
[2018 ADR Chapters; Volume 1; Chapter 7: Healthcare
Expenditures for Persons with CKD; Spending for CKD and Related Chronic
Comorbidities; Beneficiaries Aged 65 and Older; Fee-For-Service Medicare; line
9]
Organ Donation and Transplantation Statistics, https://www.kidney.org/news/newsroom/factsheets/Organ-Donation-and-Transplantation-Stats
(2019); McDonnell, Kidney Transplant, https://www.emedicinehealth.com/kidney_transplant/article_em.htm
(2019).
xvi. Experiences obtaining insurance after live kidney
donation
https://onlinelibrary.wiley.com/doi/full/10.1111/ajt.12819
(July 20, 2014).
xvii. 2019
Kidney Patient Summit Policy Talking Points (2019); Mitchell, Could Donating a
Kidney Put Your Life Insurance at Risk?, https://www.bestlifequote.com/blog/could-donating-a-kidney-put-life-insurance-at-risk/
(May 29, 2019) (“And if you work for an insurer, and you’re reading this, and
in the unlikely instance where your company does discriminate against donors,
you have everything backwards. Instead of shying away from them, you should be
going to the kidney donors to ask if they have life insurance, and if they
don’t, you should be trying to get them to sign up.”)
xviii. 2019 Kidney Patient Summit Policy Talking Points
(2019).
xviii. Id.
[xvii]
Id.
[xviii]
Advocacy and Public Policy Challenges By The Numbers, http://kidney.org/news/newsroom/factsheets/CKD-A-Growing-Problem
(2019); Note: For complete sources/references, see NKF's Kidney Disease: The
Basics fact sheet located at: https://nkf.egnyte.com/dl/DWdaLPWST6/
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/reference.aspx
[2018 ADR Reference Tables; Volume 1; K. Healthcare
Expenditures for CKD; Tab K.1; Column V, Row 35]
United States Renal Data System. 2018 USRDS annual data
report: Epidemiology of kidney disease in the United States. Bethesda, MD:
National Institutes of Health, National Institute of Diabetes and Digestive and
Kidney Diseases; 2018. Available at: https://www.usrds.org/adr.aspx
[2018 ADR Chapters; Volume 1; Chapter 7: Healthcare
Expenditures for Persons with CKD; Spending for CKD and Related Chronic
Comorbidities; Beneficiaries Aged 65 and Older; Fee-For-Service Medicare; line
9]
US Renal Data System 2019 Annual Data Report: Epidemiology
of Kidney Disease in the United States
xix. Id. University of California, San Francisco, The
Kidney Project,
Creating a bioartificial kidney as a permanent solution
to end stage renal disease, Statistics, Costs, https://pharm.ucsf.edu/kidney/need/statistics
(2018) (Medicare spending for ESRD patients is at $35 billion in 2016.
Hemodialysis care costs the Medicare system an average
of $90,000 per patient annually in the United States, for a total of $28
billion.
Spending for transplant patient care is $3.4 billion.);
United States Renal Data System. 2018 USRDS annual data report: Epidemiology of
kidney disease in the United States. National Institutes of Health, National
Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2018.
Publications based on USRDS data reported in the Annual
Data Report or on the USRDS web site or supplied upon request must include the
above citation and the following notice: The data reported here have been
supplied by the United States Renal Data System (USRDS). The interpretation and
reporting of these data are the responsibility of the author(s) and in no way
should be seen as an official policy or interpretation of the U.S. government.
Kidney X Innovation Accelerator Statistics Accessed
9/19/19; NKF Statement on Landmark Legislation Signed by Oklahoma Governor to
Protect Living Organ Donors, https://www.kidneyx.org/;
https://www.kidney.org/news/nkf-statement-landmark-legislation-signed-oklahoma-govenor-to-protect-living-organ-donors
(April 11, 2019) (“Living
organ donation not only saves lives, it saves money. Each year, Medicare spends
$87,000 per dialysis patient and less than half, $32,500, for a transplant
patient.”
xx. Id.
xxi. Id.
xxii. Id.
xxiii. Nadler,
Herrera Beutler, Gillibrand, Cotton Introduce Bipartisan Living Donor
Protection Act to Protect Organ Donors, www.kidney.org/news/national-kidney-foundation-applauds-congressional-champions-legislation-to
protect-living-organ, (February 14, 2019);
nadler.house.gov/press-release/Nadler-herrera-beutler-gillibrand-cotton-introduce-bipartisan-living-donor-protection(February
15, 2019); https://www.healio.com/nephrology/transplantation/news/online/%7B90a026c2-d2d6-4252-abdb-54d12879c932%7D//congress-introduces-bill-to-protect-living-organ-donors
(February 15, 2019).
[xxiv]
NKF Interview (2014); H.R.1224 - Living Donor Protection Act of 2019, CBO Costs
Estimates (February 14, 2019).
xxv. National
Kidney Foundation, Donor Leave Laws and Tax Deductions/Credits for Living
Donors, https://documentcloud.adobe.com/link/track?uri%3Ascds%3AUS%3A7c6e1564-06a0-4f36-988e-761e2f1d59a3
(2019).
xxvi. Id.
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