Saturday, July 6, 2013

KIDNEY STORIES: PROTEST CUTS TO FUNDING FOR DIALYSIS CENTERS AND PATIENTS



 

Medicare Proposes Deep Cuts for Dialysis

 

 Posted on July 3, 2013 by nkf _advocacy

 

 

 On Monday July 1, the Centers for Medicare & Medicaid Services (CMS) released the annual proposed rule to update Medicare payment to dialysis providers beginning January 1, 2014 and to modify the Quality Incentive Program (QIP), which reduces reimbursement to providers if they don’t meet specified quality measures. What is most notable about this year’s proposed payment rule (also known as the End-stage Renal Disease Prospective Payment System – ESRD PPS) is that in response to legislation passed by Congress, CMS proposed to cut payment to dialysis providers by 9.4 percent.

 

 The American Taxpayer Relief Act (ATRA) of 2012 required CMS to reduce the payment rate based on the decline in the use of injectable drugs (and their oral equivalents), most notably, erythropoietin stimulating agents (ESA). While ATRA required CMS to reduce the payment rate it did not specify the amount of the reduction, but instead to factor in the decline in the use of these drugs and the current price of the drugs. The National Kidney Foundation (NKF) understands CMS is required by law to reduce the payment rate. However, NKF is concerned about the impact that this large of a cut may have on patient care across the country.

 

 Currently, across all dialysis providers, Medicare profit margins are only 3-4 percent (as estimated by the Medicare Payment Advisory Committee – MEDPAC). Since CMS is proposing a 9.4 percent cut to the base rate for Medicare payments, most providers will have to make considerable changes in how they operate in order to cover the most basic costs of care. NKF is concerned that some providers may not be able to withstand cuts and will have to close facilities and that many others may have to eliminate patient-focused programs, services, and benefits that improve patients’ health and quality of life. Rather than wait and see how dialysis facilities respond to the cuts, we hope that Congress and CMS will engage in a meaningful dialogue with dialysis providers, patient groups, professionals, and others involved in caring for patients to identify ways to reduce the proposed cuts while still complying with the law.

 

 Also included in this proposed rule are a number of changes to the Medicare ESRD Quality Incentive Program (QIP) that if finalized would impact Medicare payments in 2016. The QIP is a provider penalty program that has been in place since 2012. Dialysis facilities can receive a 0-2 percent reduction in Medicare payments for not meeting the specified quality measures. Each year CMS makes changes to the program to add, remove, or revise quality measures based on new standards of care, or the availability of new data. CMS is proposing to include five new measures that facilities will start being measured on in 2014.

 

 These include:

The percentage of in-center and home dialysis patients with hypercalcemia (a serum calcium level above 10.2%)

The percentage of hemodialysis (including home) patients with a bloodstream infection

The percentage of dialysis patients that the facility states have been educated and advised on the risks, benefits and options for anemia treatment

A requirement to report on iron therapy for all pediatric patients

A requirement to report certain health related conditions that each dialysis patient has. These conditions include heart disease, hypertension, diabetes, drug and alcohol dependence, tobacco use as well as others.

 If finalized, these five measures will be in addition to the six that are currently being measured.

 Given the proposed 9.4 percent cut to dialysis payments in 2014, we note that for many facilities implementing strategies to achieve some of these quality measures may be particularly challenging. However, NKF believes quality measurement is an important way to drive improvement in the quality of care patients receive. As we continue to review the proposed regulation, we will consider the impact of the proposed changes to dialysis payment and to the QIP on patient care and provide recommendations to CMS before the agency issues a final rule. As we prepare these recommendations we will call on many of our patient and professional volunteers to weigh in as the experts. Comments are due to CMS August 30, 2013 and we will be sure to share with your our final comment letter and activities around this proposed rule.

HERE IS A LINK TO PROTEST THE MEDICARE CUTS TO DIALYSIS CENTERS, ALL YOU HAVE TO DO IS FOLLOW THE LINK AND FILL IN THE INFO. TAKES 5 MINS! ACT NOW!!!!!!https://www.votervoice.net/KCP/Campaigns/32857/Respond

HERE IS A PETITION TO PROTEST THE MEDICARE CUTS TO DIALYSIS CENTERS, PLEASE SIGN AND SHARE!!!!

 
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Sunday, June 30, 2013

KIDNEY STORIES: WILL WORK FOR TYPE B KIDNEY


My name is Scarlet and I have a rare blood type. I have been on dialysis for ten years. I had a brief reprieve for two years. However, due to complications with the surgery, the graft did not last. Because of this, I am also highly sensitized.
https://www.facebook.com/WillWorkForTypeBKidney?fref=ts
www.facebook.com/kidneystories

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KIDNEY STORIES: A KIDNEY FOR MELINDA


in 2008 a year after my brother passed away from Renal Cancer i was diagnosed with Renal Failure. it is now 2013 and i'm in the process of getting on the donors list We are having a fundraiser to help get to appointments, donor after care & health care.
Description
General Information
i was diagnosed with kidney failure at the age of 23. i was having stomach pain and was rushed to the ER, where i was told my kidneys were failing, with a lot of test from my kidney specialist the reason for my kidney failure is still unknown. i have alot of up coming appointments to UCLA in which i need help to get to.
i really need to get to the bottom of whats causing my kidneys to not functio...n. i havent started dialysis yet. but i do have the Fistula in my wrist.
im a wife and a mother of 3 beautiful kids they are my world. i fight everyday just to have the strength to play or even get out of bed.
i made this page for help with my expenses for my trips to UCLA
i thank you very much and appreciate all your donations.
https://www.facebook.com/AKidneyForMelinda
 
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KIDNEY STORIES: FIND A KIDNEY FOR KYLE

 
 
 

Become a living kidney donor for Kyle Lester McKinney. Blood type A or O is compatible Dover, Arkansas
Mission
Our mission is to restore Kyle’s good health and quality of life by encouraging healthy individuals to consider being a living kidney donor. While dialysis is a temporary solution to end stage kidney failure there can often be negative side effects. Dialysis is not a fix all and the best solution to end stage kidney failure is a kidney transplant. Kyle could be on the deceased kidney donor list for years before a kidney becomes available to him. A living kidney donor is his best option. Your consideration is needed.

To be considered as a kidney donor for Kyle, contact:
University of Arkansas for Medical Sciences
Sue Weeks
(501) 526-5480
Or contact the McKinney's directly
Description
In 1996, at the age of 15, Kyle Lester McKinney was diagnosed with IgA Nephropathy, also called Berger's disease. In February 2005, the disease took a turn for the worst and Kyle started dialysis. Fortunately, his mother was a match and donated one of her kidneys to Kyle in May 2005. Nearly seven years later, the donor kidney rejected, and at 31 years old Kyle is once again in stage five kidney fa...ilure and needs a second kidney transplant. Although originally from Hector, Arkansas, Kyle and his wife Paige reside in Dover, Arkansas with their two young daughters. He has been on dialysis since February 2012. In March 2013, he was placed on the deceased kidney transplant list; it could be 2 to 5 years before a kidney becomes available to him by these means.

There is however another option for Kyle. This is to find a living kidney donor. For a healthy person, one kidney is enough to filter blood properly through the body. This leaves many with the option of donating a kidney to someone like Kyle. A kidney transplant for Kyle would mean not being tied down to dialysis and returning to a healthy, normal life. Kyle’s blood type is A+ which means he can accept a kidney from someone of blood types A and O.

Research has shown that there's little long-term risk for kidney donation, provided you're carefully screened before becoming a donor. As a potential kidney donor, you'll receive a thorough medical exam to determine whether you're a good match for the potential recipient. And you'll be carefully checked to make sure you don't have any health problems that might be made worse by donating a kidney.

To get medical updates and information about becoming a kidney donor continue to follow "FIND A KIDNEY FOR KYLE LESTER MCKINNEY" on Facebook.
 
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KIDNEY STORIES: KIDNEY FOR TONDA

 
 
 
 

Tonda is in need of a kidney transplant. She is currently on hemodialysis 3 days a week, 4 hours each day. She has been on dialysis almost 6 years. Tonda's blood type is O+, and she is working with IU Medical center in Indianapolis IN.
Description
Tonda is an amazing wife, daughter, sister, and friend. She is in need of a kidney transplant . This is her second round of hemodialysis and is currently on the transplant waiting list at IU medical center in Indianapolis Indiana. She is an O+ blood type.
Tonda began her battle at the young age of 9 when she was diagnosed with diabetes. She was insulin dependent at that time. She has been through... many struggles in life and yet is the most positive, loving and generous person I know. She is a follower of Christ and lives her life for the Lord. There is not a day that goes by that she is not thinking or doing for others and putting herself on the back burner. She is the backbone of our family and an inspiration to all.
Here is a little history of her past 12 or so yrs:
Tonda began kidney failure at he age of 27 or so and was given strict diet and fluid restriction orders to follow in order to prolong her need for dialysis. After a fee years of strict restrictions she inevitability ended up in complete renal failure. She had to start dialysis treatment if she wanted to survive. She began dialysis and was placed on the transplant list. By the grace of God, just 3 months into her journey she received a phone call from her transplant coordinator that a man passed away, and his family wanted to donate his organs. She was a perfect match not just for a kidney but a pancreas as well. We felt so very blessed by the news. Tonda underwent a very long surgery in order to receive the blessed donation. She not only was able to stop dialysis but was also able to stop taking insulin injections for the first time in 20+ years! What a blessing! The new organs that she received were such a great match for her that even the doctors were amazed!
She recovered well from the surgery and was in hope that now she may be able to start a family. She had dreams for years of being a mother and was unable to fulfill that dream due to her complications of diabetes, and constant declining health. She knew one day God would help her fulfill those dreams...
She was never able to conceive children of her own, but was able to become a great Step-mom and wonderful Grandma in which she is very grateful for.
Just five short years after her transplant, she was once again given the bad news that her new kidney was failing. Her battle was beginning again. She was placed on dialysis for a second time however her original graft that was placed just 5 years earlier was bad and not able to be used. She had to undergo yet another graft placement. She has been battling dialysis again for almost 6 years and is currently on the waiting list again.
She has also been very blessed with a best friend whom has had all necessary testing and blood work done so that she can donate her kidney to a someone in need, in return for a kidney for Tonda. (Her best friend is not a match for her)
Tonda's health has been declining rapidly over the past few years and at 39 years young, she still has so much life ahead of her. Her friends, and family would love to help anyway we can, so we are asking that you share her story as well as find a kidney central page to raise awareness on the overwhelming need for organ donation. God bless each and everyone of you.

https://www.facebook.com/AKidneyForTonda
 
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Saturday, June 29, 2013

KIDNEY STORIES: NKF'S INITIATIVE TO END THE WAIT

KIDNEY STORIES: THE NATIONAL KIDNEY FOUNDATION'S 10 YEAR PLAN TO END THE WAIT
http://www.youtube.com/watch?v=3TrW5bRlX9s&feature=player_embedded#action=share
The National Kidney Foundation’s 10 year plan to End the Wait:
Organ Donation & Transplantation RECOMMENDATIONS
Improve Outcomes of First Transplants

Financial - Cover immunosuppressive drugs for life

Education - Educate CKD Stage 4 patients about
staying as healthy as they can
the opportunities for and benefits of early transplantation
the possibility of living donations and
… the identification of potential living donors
Medical Practice -
Evaluate Stage 4 CKD patients for a transplant prior to the initiation of dialysis
Increase Deceased Donation

Financial - Ensure that OPOs have the discretion and funding to assist donor families with expenses directly related to the donation, which may include some funeral expenses

Education - Facilitate awareness of all appropriate hospital personnel about the optimal care for potential donor families

Medical Practice -
Minimize discard and maximize utilization of donated organs
Identify, recover and utilize organs from Extended Criteria Donors and from Donation after Cardiac Death donors nationwide
Increase Living Donation

Financial -
Guarantee that all living donors, without qualification, are reimbursed for all expenses involved in the donation, including lost wages. This includes non-directed donors and potential donors who are evaluated but don’t ultimately donate.
Guarantee living donors access to health care coverage for any medical expense or disability related to the donation
Guarantee living donors life insurance coverage for death related to the donation
Guarantee that living donors get their jobs, or equivalent jobs, back
Guarantee that living donors will not be discriminated against in obtaining health and life insurance
Establish a specific billing code for post-donation care of living donors
Education -
Create an NKF Living Donor Council to support the needs of living donors and potential donors
Create a “Living Donation Breakthrough Collaborative" to stimulate best practices for living donation
Inform the general public about new developments in living donation and transplantation

Medical Practice -
Increase staff and physical resources at transplant centers to minimize the time waiting for a living donation
Evaluate more than one potential living donor for a single recipient when feasible
Collect, maintain and analyze data on living donors annually, consisting of, at least, blood pressure, eGFR, proteinuria and Hb A1C
Make the donation and transplant system and processes more efficient and equitable Medical Practice -
Eliminate regional variations in the rates of consent, living donations, early transplantation, access to transplantation and follow-up care
Eliminate racial and other disparities in donating, listing, remaining active on the waiting list and receiving a transplant
Maintain uniform organ donation laws across the United States
THE NKF CONTENDS THAT IF THEY ARE SUCCESSFUL WITH THIS INITIATIVE, A PERSON ON THE LIST WILL NOT HAVE TO WAIT MORE THAN 1 YEAR ON THE LIST!
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KIDNEY STORIES: HELP FIND NURSE VAL A KIDNEY


Nurse Val is a Registered Nurse that was diagnosed with Kidney Disease 4 years ago and has been on dialysis for 3 years. She refuses to go on disability, and works 2 jobs, while on dialysis.
Mission
My name is Alexis, I am Val's daughter, and I am starting this page to try to save my mother's life by finding her a kidney, so that she can keep doing what she does best, and keep SAVING LIVES.
Description
Valda got the name "Nurse Val" from being a Nurse Full-Time (for 25yrs. now), even when she is off of work people still call her for medical help and advice. She truly has a big heart and is always there to help everybody with anything, not just medical.
She has 3 biological children, 1 legally adopted child, 1 adopted child who had no home, and a husband of 30yrs. I am starting this page to try to save my mother's life by finding her a kidney.
General Information
Blood Type O+
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