Thursday, May 30, 2013

KIDNEY STORIES: DONATIONS ARE UP

Anonymous kidney donation is on the rise, fueled by compassion

Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America Heart Institute, not only wears a Donate Life bracelet, but already has donated one of her kidneys to someone she never met.



Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America Heart Institute, not only wears a Donate Life bracelet, but already has donated one of her kidneys to someone she never met.
Aimee Bultemeier of Lee's Summit, a nursing assistant at the Mid America Heart Institute, not only wears a Donate Life bracelet, but already has donated one of her kidneys to someone she never met. (Fred Blocher, McClatchy-Tribune)


•Living Kidney DonorsFind More Information About How to Be a Hero & Save a Life at UW. UWHealth.org/LivingDonor

By James A. Fussell, The Kansas City Star
6:36 p.m. CDT, May 29, 2013

The idea kept nagging at Aimee Bultemeier.
"I have two perfectly good kidneys, and I only need one," the 37-year-old nursing assistant thought. "I could save somebody's life."
Here's the thing: She had no idea who that somebody was.
It wasn't a friend or family member. Just another human being who was waiting for a chance at a new life.
For Bultemeier, that was enough. The single mother of two called the Midwest Transplant Network in Westwood, Kan., and volunteered to have major surgery to save the life of a stranger.
She is one of a growing number of anonymous kidney donors nationwide. Such altruistic, nondirected organ donations have grown in recent years, experts say, thanks to the Internet, emotional videos on YouTube and the reach of social media.
In 2011, the latest year complete statistics are available, there were 159 anonymous kidney donors in the United States.
"This was unheard of until the late '90s," said Anne Paschke, a spokeswoman for the United Network for Organ Sharing in Richmond, Va. "The first ones we recorded were in 1998. And if you go back a dozen years, there were only 30."
The Midwest Transplant Network also has seen more interest in such donations.
"We've seen a steady increase in calls each year," said Catherine Nash, the network's family services coordinator. "We probably get 30 to 40 people a year calling with questions. Of those, about 20 follow through. Then, on average, two of those (donate).
"But 100 percent of our callers are coming from an altruistic standpoint. They want to help. They've seen the statistics about people dying waiting for a kidney."
While people are born with two kidneys, organs that make urine and filter waste from the blood, they can function normally with just one.
"We think about greed and narcissism and all the shootings," psychologist Bruce Manley said. "But we forget that there is still a very large number of people who are doing good and decent things for other human beings. This is just an example of that. Then if we look at the role that social media plays, we can start to see why this is happening at this moment."
Psychologist Renee Dietchman has another theory.
"Typically when times are tough, such as in the Great Depression, people want to help," she said. "If they can't help financially, maybe they help out by giving more of themselves."
Bultemeier works on the transplant floor at the Mid-America Heart Institute at St. Luke's Hospital in Kansas City, Mo., and is familiar with such cases.
"In 2010, I became close to two guys waiting for heart transplants," she said. "They were both single parents and both close to my age. It just really touched me; more or less broke my heart. I mean, that could be any of us.
"I just couldn't imagine being young and single and a parent and needing an organ to live, you know? And so pretty much that's when it just was clear as day to me."
Before making her final decision, she did a lot of praying and Internet research. Then she told her mother, Kathy Hood, who worried.
After all, Bultemeier's former husband, the father of their daughter, Lexi, had died of a brain aneurysm.
"I worried that Aimee might be the only match for her if she ever needed (a kidney)," Hood said. "She said, 'Mom, the chances of that happening are so slim, and I could help save a life now!'"
Also, there is no guarantee a parent will be a match for a child.
After Bultemeier contacted the Midwest Transplant Network in September 2010, it took nine months of interviews, medical tests, mental health screenings, background checks and in-person interviews to make sure she was a good candidate.
Nash said donors must not only undergo multiple screenings, they also must realize that they're purposely putting their body at risk to help another person.
Bultemeier passed on all counts.
"She is just so amazing and so positive," Nash said. "Her wanting to donate reflects how she lives her life."
The hospital where Bultemeier works gave her eight weeks of paid time off to donate and recover.
"My boss was amazing and supportive," she said. "I wish more businesses would do that."
A year and a half after donating, Bultemeier doesn't know much about the person who received her kidney.
"A few months after I donated, about October of 2011, I received a card from my recipient," she said. "It was very short and sweet. I know it's a guy. He said he was eternally grateful and he is doing great, and he hopes to meet me one day and get to know me."
She wants to meet him and to hear his story. She imagines she might have helped save someone with a wife and children.
"It's hard," she said in a quavering voice. "I knew going in that I might never meet my recipient. And that's OK."
The need is great
Nationally about 95,000 people are waiting for a kidney, according to the United Network for Organ Sharing. On average, 13 a day die, according to the National Kidney Foundation. More than 400,000 people in the U.S. are on dialysis.
For more information on kidney disease and organ donation, visit the National Kidney Foundation website at kidney.org.
sunday@tribune.com
http://www.chicagotribune.com/health/sc-health-0529-anonymous-kidney-donation-20130529,0,7168758,full.story
www.facebook.com/kidneystories
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Sunday, May 19, 2013

KIDNEY STORIES: KIDNEY FOR DAVE WILSON


I am on a mission to get David Wilson a kidney, he is 48 and has been on Dialysis for 5 years and it is taking a toll on him emotionally and physically.
Description
He is in need of a Kidney and I can't donate since I do not match his blood type. He is type O and therefore only type O can donate, which makes this an even harder task. He has given and helped people his whole life and now he needs help to get his life back.
 
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KIDNEY STORIES: MY DAUGHTER IS LOOOKING FOR A KIDNEY DONOR




 
 
 
Living with kidney disease myself, I am passionate about fighting this deadly disease. I know someone somewhere will benefit from my strength and struggle.



Being diagnosed at 22 with end-stage kidney disease was a shock. I cried. I was depressed and discouraged. But I was surrounded by special people who loved and encouraged me. I know now that instead of life ending with this devastating diag...nosis, life began for me. I am not defined by this disease, but by who I am. Today, people tell me I inspire them with my smile and my energy, even after three hours of treatment at the dialysis center.



I feel empowered when I help empower others. Living with kidney disease myself, I know what it means to receive desperately needed support. That's why I decided to join the fight against kidney disease.

I manage school, work, dialysis and add a little fun to my life. I am a survivor. I am a living testimony of what happens when you believe!!


ANYONE INTERESTED IN BECOMING A LIVING KIDNEY DONOR FOR MY DAUGHTER PLEASE CONTACT SAINT BARNABUS HOSPITAL LIVINGSTON NJ 973-322-5646 HER name is ADDRISA ANKRAH, BLOOD TYPE IS O OR EMAIL US at LUVMIWRITE@yahoo.com THANK YOU!!
IF YOU ARE LOCATED IN PA CONTACT PENN MEDICINE HOSPITAL 215-662-6035 thank you and God bless you all. I believe God can & God will!!!
https://www.facebook.com/MyDaughterIsLoookingForAKidneyDonor
www.facebook.com/kidneystories

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KIDNEY STORIES: KIDNEY FOR OUR SISTER ANNA MARIE RUFFATTOLA MCKINNEY


In 2009, Anna had her left kidney removed due to cancer. During the surgery, they made a mistake & clamped off the blood supply to her right kidney, which caused it to die.Loss of her son @ the age of 31. She needs someone with blood Type A or O
Description
We are writing to you about our sister Anna Marie Ruffattola McKinney. It’s to let you know about her current health challenges, and how you can help. This is not an easy letter for us to write, but we know that without sending this, someone who might be interested in helping won’t have that opportunity.
In 2009, our sister Anna underwent surgery to remove her left kidney due to cancer. When the... surgeons were operating to remove her left kidney using a da Vinci robot, they made a mistake and clamped off the blood supply to her right kidney which caused it to die. Because of that error, she was left with no renal function and she currently suffers from kidney failure.
Anna has been on dialysis for almost three years. She began doing dialysis in a local clinic three days a week; however, that did not work for her. She never had a day where she felt well - she was always exhausted. They looked for other options, and researched at-home dialysis. Although the daily dialysis is much better, it is very difficult for Anna to have a normal life – everything must center on the dialysis, which takes 3-4 hours a day – sometimes longer. In addition to frequent leg cramps and blood pressure issues, Anna suffers from exhaustion and shortness of breath. Life as a dialysis patient is not easy.
Anna has always been there to help others, and she really has a positive attitude about her health issues, despite everything that has happened to her. When her older son J.T. was five-years-old, he was diagnosed with leukemia. He was in remission for three years but then required a bone marrow transplant when his condition declined. He beat the odds and survived. However, at the age of 30, he developed hepatitis from a blood transfusion he received before the transplant. In 2002, one month before his 31st birthday, J. T. lost his battle. We all miss J.T. and our hearts ached for our sister as she deals with the loss. Now, our hearts ache again because Anna is the one who needs help.
In January, Anna was placed on the list for a kidney transplant; however, we realize it could take years to find a donor. My younger sister and I both have high blood pressure, so we are not able to donate a kidney. The wait for a deceased donor is quite long, yet the benefits of receiving a kidney from a living donor are much greater. The wait for a deceased donor is 5+ years and a kidney from a living donor lasts twice as long as one from a deceased donor.
“Anna needs a new kidney, and we hope you will consider being tested to be a donor.” I know that the need for kidney transplants is extensive, and that the need is grave. Anna, as well as many, many others needs and deserves a second chance of regaining her life back.
If you can help, please do. If you know anyone who might, please forward this on. Forwarding this to your family, friends, work, school, congregation, or any other communities you belong to would be most gratefully appreciated. Any assistance anyone would be able to offer would be greatly appreciated.
If you would like to learn more about living kidney donation, please feel free to contact us or Anna’s transplant coordinator, Katrina Reedus - Kidney Transplant Clinic Coordinator, IU Medical Center, 500 n. University Blvd, Room 4601, Indianapolis, IN 46202 @ 317-944-4370 or kreedus@iuhealth.org.
Thank you so much!
Jeannette Ruffattola Fulmer jr.fulmer@comcast.net
Mary Ann Ruffattola Nicoson manicoson@gmail.com
 
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Tuesday, May 14, 2013

KIDNEY STORIES: KIDNEY TRANSPLANT FOR KENNY MOSES JOHNSON


In need of a transplant
Description
Are you an A+ or O+ Blood TYPE???????

A transplant is Kenny's best option for survival and having a good quality of life. His Kidney disease has progressed and has officially been referred for a Kidney transplant after his kidney function dropped below 20%. However, the wait for a deceased-donor kidney is longer than he may have. As a single father of two, Kenny's situation threatens his entire family. So, we now turn to his friends, family and community:
Will you step forward and give Kenny the gift of life?

This page is dedicated to finding Kenny a donor. There is no cost to you to take the test. There will be more info to follow on where you can take a test to see if you are a match. Please post your love, thoughts and prayers and share on your wall as well to get the word out. We need a donor NOW. Even if you DON'T know Kenny please share this information. Thank you.
Got the letter today I am officially on the national kidney list for a donor. Also UCSF called me today and told me that someone signed up to be my donor filled out the information but somehow they did not get the persons name They can fill it out again at ucdonor.org or call Don at UCSF telephone #(415) 3534642
 
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KIDNEY STORIES: MANNY MONTOAYS KIDNEY DONOR SEARCH


Kidney donor search and fundraising page. Our fundraising will include events to help fund our donor with expenses not covered by our insurance such as transportation, hotel etc. during the transplant process.
Description
Donating one's kidney to someone in need of a transplant is an important decision and a unique gift. Kidney transplantation enables a patient suffering from kidney disease to stop dialysis treatments, and enjoy a life filled with more freedom, energy and productivity. This page is set up for our kidney donor to assist with funds that may accrue during down time through the donation. Travel, Hotel, Wages . After care as well as any Medical not covered by our insurance.
My husband developed Type II Diabetes in his early thirties. He started out with medication and then on to insulin. Manny was diagnosed with renal failure about five years ago. His number were low but doctors were able to raise them a bit. Two years later we were in surgery inserting a peritoneal catheter in Manny's lower abdomen. Manny now does xchanges 4 to 5 times daily. We've had several screeners and inquiries about how to get tested but yet to find a match. Manny is O+ and so am I, however I was unable to test any further do to medical issue myself. I had to figure a way to get our story out. I began with a Facebook page posting bits of information on donation as well as fund raising for our donor. Manny and I would like to pay for extra expenses our insurance will not cover such as Air Fare (transportation), Hotel, etc. We have had a yard sale with many donated items from co-workers which was a success. Upcoming event we have planned a family car wash. All proceeds to go to the donor fund along with other event in the future.
 
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Saturday, May 11, 2013

KIDNEY STORIES: A KIDNEY FOR KIMBERLY L THOMPSON

 
 
 
 
 
Look for a Kidney transplant
Description
Looking for a Kidney transplant, , My blood type is O positive and I'm also Registered at Upstate hospital. 
Looking for a Donor O positive blood type for a Kidney! to see if your qualify to be a donor or would like to get tested Please Contact R. Ellen havens @ Upstate Medical university at 750 East Adams Street, Syracuse NY 13210 The Phone number is 3154645413 or you can email her @ havens@upstate.edu or you may visit the website www.upstate.edu! Thank you
 
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