Showing posts with label National Kidney Foundation. Show all posts
Showing posts with label National Kidney Foundation. Show all posts

Friday, February 26, 2016

SUPPORT HR 4616 & S 2584 THE LIVING DONOR PROTECTION ACT


SUPPORT THE LIVING DONOR ACT!

Please help advance new bipartisan legislation that would eliminate barriers to living donation and help increase access to lifesaving transplants. barriers to living donation and help increase access to lifesaving transplants.

• Kidney health providers and patients commend Congress for today’s introduction of the Living Donor Protection Act of 2016 and urge its swift passage to help the more than 100,000 Americans currently waiting for a kidney transplant.

THE NEW LEGISLATION COULD POTENTIALLY SAVE MEDICARE BETWEEN $565 MILLION AND $1.2 BILLION OVER 10 YEARS.
Every 14 minutes a patient is added to the kidney waitlist and 12 Americans die every day waiting for a kidney transplant
Newswise — Washington, DC (February 25, 2016) — The American Society of Nephrology (ASN) is one of 16 kidney patient and health professional organizations joining together to commend Congress for introducing new bipartisan legislation to increase access to lifesaving kidney transplants.
“ASN commends Rep. Nadler (D-NY), Rep. Burgess (R-TX), Sen. Kirk (R-IL), and Sen. Gillibrand (D-NY) for their leadership in introducing the Living Donor Protection Act of 2015. More than 20 million Americans have kidney disease, and transplantation is the optimal therapy for most patients whose kidneys fail,” said ASN President Raymond C. Harris, MD, FASN. “ASN is proud to endorse this important legislation, which will help eliminate barriers and increase access to transplantation.”
The bipartisan Living Donor Protection Act of 2016 introduced in both houses of Congress today would help increase access to kidney transplants by:
• Protecting Donors: The bill prohibits life, disability, and long-term care insurers from denying or limiting coverage or from charging higher premiums to living organ donors
• Securing Jobs: The legislation clarifies that living organ donors can use FMLA time to recover from donation surgery and maintain their job security
• Educating Americans: The bill directs HHS to educate Americans about living organ donation
“More than 100,000 people are on the waiting list for a kidney transplant,” said ASN Secretary-Treasurer and Public Policy Board Chair John R. Sedor, MD, FASN. “Congress can help them by enacting commonsense legislation that promotes organ donations by ensuring insurance coverage and job security for donors.”
Many patients will die waiting for a kidney transplant. In 2014, 101,168 patients were on the waiting list for a kidney but only 17,106 transplants were performed. Transplantation is the optimal therapy for most people with kidney failure, and on average is a more cost effective treatment compared to hemodialysis.
If the Living Donor Act increases donation by 536 donors (10% of the number of living donor transplants in 2014) every year for 10 years, the Medicare program could save between $565 million and $1.2 billion.
16 kidney health organizations urged Congress to support this legislation during the 2015 Kidney Community Advocacy Day. Their efforts helped garner Senate sponsorship for the bill and propel the vital legislation’s introduction in both houses of Congress.
To learn more about the Living Donor Act of 2015, please visit https://www.asn-online.org/policy/ and follow #LivingDonorAct on Twitter.
Kidney Health Organizations Advancing the Living Donor Act of 2016
• Alport Syndrome Foundation
• American Association of Kidney Patients
• American Kidney Fund
• American Nephrology Nurses Association
• American Society of Nephrology
• American Society of Pediatric Nephrology
• American Society of Transplant Surgeons
• American Society of Transplantation
• Home Dialyzors United
• IGA Nephropathy Foundation of America
• National Kidney Foundation
• National Renal Administrators Association
• NephCure Kidney International
• Oxalosis and Hyperoxaluria Foundation
• Polycycstic Kidney Disease Foundation
• Society for Transplant Social Workers
**EXPERT AVAILABLE FOR COMMENT**
ASN Secretary-Treasurer John R. Sedor, MD, FASN is available to discuss the Living Donor Protection Act of 2016. Please contact Kurtis Pivert at 202-699-0238 or kpivert@asn-online.org to arrange interviews.


Sunday, April 28, 2013

KIDNEY STORIES: HELP SAVE TWO LIVES, DONATE!



This page was created to help find two willing Live Kidney
donors for Kidney Transplant of mother & daughter suffering with Kidney Failure
Description
My daughter and I suffer from an inherited kidney disease called Focal Segmental Glomeruloscierosis or FSGS. FSGS is when the kidneys are scarred and do not filter out toxins through the urine. When this happens, dialysis is required to sustain life. Although dialysis is sustaining our life now, it also causes other health issues... like heart disease. To lead a more normal & healthier life a kidn...ey transplant is needed for the both of us. We ask that you learn more about the donation process and consider donating to us. Thank You!
To learn more about Kidney Transplantation Please visit: www.ochsner.org click on services at the very top of page, click on Multi organ transplants in drop down menu, under programs choose kidney & kidney/pancreas transplants.

Our blood type is O+, which means we are able to receive a kidney from someone who has a blood type of O+ or O-.

For testing to see if you are a good candidate for possible donation please contact: Kidney Transplant Coordinator- Yolanda @ (504) 842-3925
 
 
 
 
 
TAGS:  Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,

Saturday, April 27, 2013

KIDNEY STORIES: STACIE NEEDS A KIDNEY


I have FSGS/Nephrotic Syndrome and I need a kidney so I can live to see my children get married and have grandchildren! Please click "About" for more info!
Description
I have FSGS/Nephrotic Syndrome. My blood type is A+, but I was told today that I only need someone with either A or O blood type to be tested. If you would like to be tested to see if you are a match for Stacie York, please call Loma Linda Kidney Transplant Center at 1-909-558-3636, press option "5" for the Living Donor office and they will assist you from there. The link to their website is: http://lomalindahealth.org/medical-center/our-services/transplantation/services-and-procedures/kidney-transplant/index.page
I would love to have a healthy kidney so I can live to see my children get married and have grandchildren!
 
 
TAGS:  Stacie needs a kidney,
Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,

KIDNEY STORIES: POLLY'S KITCHEN




I am a 41 year old single mother of 3 needing a kidney transplant. My blood type is O and my transplant center is located in Indiana. I've been on dialysis since August 1, 2011. Contact Valerie at Lutheran Transplant (260) 435-6275. Please help me.....
Description
I was diagnosed with kidney disease at the age of 14 and had my 1st transplant at 15; the kidney came from my mother. It lasted 21 years and I had no issues at all. But it rejected in 2007. My 2nd transplant was in 2008 from my brother. However, it only lasted 3 years before it rejected due to medication complications. I started on peritoneal dialysis but soon found out that I have a leak in my di...aphram that's causing fluid to enter into my lung cavity. So I am now on hemo dialysis until the leak can be repaired. My body does not tolerate hemo very well. I'm very sick and fatigued while on it making me worthless to my children. I am in desperate need of another transplant. I just need one more chance at this life. Please consider donating your spare kidney and help save my life and give my children their mother back; healthy and whole. I don't know how long I can tolerate living this way. I'm just existing...I want to be living. Thank you!




Tags:  polly needs a kidney, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,