Sunday, June 30, 2013
KIDNEY STORIES: WILL WORK FOR TYPE B KIDNEY
My name is Scarlet and I have a rare blood type. I have been on dialysis for ten years. I had a brief reprieve for two years. However, due to complications with the surgery, the graft did not last. Because of this, I am also highly sensitized.
https://www.facebook.com/WillWorkForTypeBKidney?fref=ts
www.facebook.com/kidneystories
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KIDNEY STORIES: A KIDNEY FOR MELINDA
in 2008 a year after my brother passed away from Renal Cancer i was diagnosed with Renal Failure. it is now 2013 and i'm in the process of getting on the donors list We are having a fundraiser to help get to appointments, donor after care & health care.
Description
General Information
i was diagnosed with kidney failure at the age of 23. i was having stomach pain and was rushed to the ER, where i was told my kidneys were failing, with a lot of test from my kidney specialist the reason for my kidney failure is still unknown. i have alot of up coming appointments to UCLA in which i need help to get to.
i really need to get to the bottom of whats causing my kidneys to not functio...n. i havent started dialysis yet. but i do have the Fistula in my wrist.
im a wife and a mother of 3 beautiful kids they are my world. i fight everyday just to have the strength to play or even get out of bed.
i made this page for help with my expenses for my trips to UCLA
i thank you very much and appreciate all your donations.
https://www.facebook.com/AKidneyForMelinda
i really need to get to the bottom of whats causing my kidneys to not functio...n. i havent started dialysis yet. but i do have the Fistula in my wrist.
im a wife and a mother of 3 beautiful kids they are my world. i fight everyday just to have the strength to play or even get out of bed.
i made this page for help with my expenses for my trips to UCLA
i thank you very much and appreciate all your donations.
https://www.facebook.com/AKidneyForMelinda
TAGS:kidney for melinda, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY FOR KYLE
Become a living kidney donor for Kyle Lester McKinney. Blood type A or O is compatible Dover, Arkansas
Mission
Our mission is to restore Kyle’s good health and quality of life by encouraging healthy individuals to consider being a living kidney donor. While dialysis is a temporary solution to end stage kidney failure there can often be negative side effects. Dialysis is not a fix all and the best solution to end stage kidney failure is a kidney transplant. Kyle could be on the deceased kidney donor list for years before a kidney becomes available to him. A living kidney donor is his best option. Your consideration is needed. To be considered as a kidney donor for Kyle, contact:
University of Arkansas for Medical Sciences
Sue Weeks
(501) 526-5480
Or contact the McKinney's directly
Description
In 1996, at the age of 15, Kyle Lester McKinney was diagnosed with IgA Nephropathy, also called Berger's disease. In February 2005, the disease took a turn for the worst and Kyle started dialysis. Fortunately, his mother was a match and donated one of her kidneys to Kyle in May 2005. Nearly seven years later, the donor kidney rejected, and at 31 years old Kyle is once again in stage five kidney fa...ilure and needs a second kidney transplant. Although originally from Hector, Arkansas, Kyle and his wife Paige reside in Dover, Arkansas with their two young daughters. He has been on dialysis since February 2012. In March 2013, he was placed on the deceased kidney transplant list; it could be 2 to 5 years before a kidney becomes available to him by these means.
There is however another option for Kyle. This is to find a living kidney donor. For a healthy person, one kidney is enough to filter blood properly through the body. This leaves many with the option of donating a kidney to someone like Kyle. A kidney transplant for Kyle would mean not being tied down to dialysis and returning to a healthy, normal life. Kyle’s blood type is A+ which means he can accept a kidney from someone of blood types A and O.
Research has shown that there's little long-term risk for kidney donation, provided you're carefully screened before becoming a donor. As a potential kidney donor, you'll receive a thorough medical exam to determine whether you're a good match for the potential recipient. And you'll be carefully checked to make sure you don't have any health problems that might be made worse by donating a kidney.
To get medical updates and information about becoming a kidney donor continue to follow "FIND A KIDNEY FOR KYLE LESTER MCKINNEY" on Facebook.
There is however another option for Kyle. This is to find a living kidney donor. For a healthy person, one kidney is enough to filter blood properly through the body. This leaves many with the option of donating a kidney to someone like Kyle. A kidney transplant for Kyle would mean not being tied down to dialysis and returning to a healthy, normal life. Kyle’s blood type is A+ which means he can accept a kidney from someone of blood types A and O.
Research has shown that there's little long-term risk for kidney donation, provided you're carefully screened before becoming a donor. As a potential kidney donor, you'll receive a thorough medical exam to determine whether you're a good match for the potential recipient. And you'll be carefully checked to make sure you don't have any health problems that might be made worse by donating a kidney.
To get medical updates and information about becoming a kidney donor continue to follow "FIND A KIDNEY FOR KYLE LESTER MCKINNEY" on Facebook.
TAGS: kidney for kyle, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: KIDNEY FOR TONDA
Tonda is in need of a kidney transplant. She is currently on hemodialysis 3 days a week, 4 hours each day. She has been on dialysis almost 6 years. Tonda's blood type is O+, and she is working with IU Medical center in Indianapolis IN.
Description
Tonda is an amazing wife, daughter, sister, and friend. She is in need of a kidney transplant . This is her second round of hemodialysis and is currently on the transplant waiting list at IU medical center in Indianapolis Indiana. She is an O+ blood type.
Tonda began her battle at the young age of 9 when she was diagnosed with diabetes. She was insulin dependent at that time. She has been through... many struggles in life and yet is the most positive, loving and generous person I know. She is a follower of Christ and lives her life for the Lord. There is not a day that goes by that she is not thinking or doing for others and putting herself on the back burner. She is the backbone of our family and an inspiration to all.
Here is a little history of her past 12 or so yrs:
Tonda began kidney failure at he age of 27 or so and was given strict diet and fluid restriction orders to follow in order to prolong her need for dialysis. After a fee years of strict restrictions she inevitability ended up in complete renal failure. She had to start dialysis treatment if she wanted to survive. She began dialysis and was placed on the transplant list. By the grace of God, just 3 months into her journey she received a phone call from her transplant coordinator that a man passed away, and his family wanted to donate his organs. She was a perfect match not just for a kidney but a pancreas as well. We felt so very blessed by the news. Tonda underwent a very long surgery in order to receive the blessed donation. She not only was able to stop dialysis but was also able to stop taking insulin injections for the first time in 20+ years! What a blessing! The new organs that she received were such a great match for her that even the doctors were amazed!
She recovered well from the surgery and was in hope that now she may be able to start a family. She had dreams for years of being a mother and was unable to fulfill that dream due to her complications of diabetes, and constant declining health. She knew one day God would help her fulfill those dreams...
She was never able to conceive children of her own, but was able to become a great Step-mom and wonderful Grandma in which she is very grateful for.
Just five short years after her transplant, she was once again given the bad news that her new kidney was failing. Her battle was beginning again. She was placed on dialysis for a second time however her original graft that was placed just 5 years earlier was bad and not able to be used. She had to undergo yet another graft placement. She has been battling dialysis again for almost 6 years and is currently on the waiting list again.
She has also been very blessed with a best friend whom has had all necessary testing and blood work done so that she can donate her kidney to a someone in need, in return for a kidney for Tonda. (Her best friend is not a match for her)
Tonda's health has been declining rapidly over the past few years and at 39 years young, she still has so much life ahead of her. Her friends, and family would love to help anyway we can, so we are asking that you share her story as well as find a kidney central page to raise awareness on the overwhelming need for organ donation. God bless each and everyone of you.
https://www.facebook.com/AKidneyForTonda
Tonda began her battle at the young age of 9 when she was diagnosed with diabetes. She was insulin dependent at that time. She has been through... many struggles in life and yet is the most positive, loving and generous person I know. She is a follower of Christ and lives her life for the Lord. There is not a day that goes by that she is not thinking or doing for others and putting herself on the back burner. She is the backbone of our family and an inspiration to all.
Here is a little history of her past 12 or so yrs:
Tonda began kidney failure at he age of 27 or so and was given strict diet and fluid restriction orders to follow in order to prolong her need for dialysis. After a fee years of strict restrictions she inevitability ended up in complete renal failure. She had to start dialysis treatment if she wanted to survive. She began dialysis and was placed on the transplant list. By the grace of God, just 3 months into her journey she received a phone call from her transplant coordinator that a man passed away, and his family wanted to donate his organs. She was a perfect match not just for a kidney but a pancreas as well. We felt so very blessed by the news. Tonda underwent a very long surgery in order to receive the blessed donation. She not only was able to stop dialysis but was also able to stop taking insulin injections for the first time in 20+ years! What a blessing! The new organs that she received were such a great match for her that even the doctors were amazed!
She recovered well from the surgery and was in hope that now she may be able to start a family. She had dreams for years of being a mother and was unable to fulfill that dream due to her complications of diabetes, and constant declining health. She knew one day God would help her fulfill those dreams...
She was never able to conceive children of her own, but was able to become a great Step-mom and wonderful Grandma in which she is very grateful for.
Just five short years after her transplant, she was once again given the bad news that her new kidney was failing. Her battle was beginning again. She was placed on dialysis for a second time however her original graft that was placed just 5 years earlier was bad and not able to be used. She had to undergo yet another graft placement. She has been battling dialysis again for almost 6 years and is currently on the waiting list again.
She has also been very blessed with a best friend whom has had all necessary testing and blood work done so that she can donate her kidney to a someone in need, in return for a kidney for Tonda. (Her best friend is not a match for her)
Tonda's health has been declining rapidly over the past few years and at 39 years young, she still has so much life ahead of her. Her friends, and family would love to help anyway we can, so we are asking that you share her story as well as find a kidney central page to raise awareness on the overwhelming need for organ donation. God bless each and everyone of you.
https://www.facebook.com/AKidneyForTonda
TAGS: kidney for tonda, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Saturday, June 29, 2013
KIDNEY STORIES: NKF'S INITIATIVE TO END THE WAIT
KIDNEY STORIES: THE NATIONAL KIDNEY FOUNDATION'S 10 YEAR PLAN TO END THE WAIT
http://www.youtube.com/watch?v=3TrW5bRlX9s&feature=player_embedded#action=share
The National Kidney Foundation’s 10 year plan to End the Wait:
Organ Donation & Transplantation RECOMMENDATIONS
Improve Outcomes of First Transplants
Financial - Cover immunosuppressive drugs for life
Education - Educate CKD Stage 4 patients about
staying as healthy as they can
the opportunities for and benefits of early transplantation
the possibility of living donations and
… the identification of potential living donors
Medical Practice -
Evaluate Stage 4 CKD patients for a transplant prior to the initiation of dialysis
Increase Deceased Donation
Financial - Ensure that OPOs have the discretion and funding to assist donor families with expenses directly related to the donation, which may include some funeral expenses
Education - Facilitate awareness of all appropriate hospital personnel about the optimal care for potential donor families
Medical Practice -
Minimize discard and maximize utilization of donated organs
Identify, recover and utilize organs from Extended Criteria Donors and from Donation after Cardiac Death donors nationwide
Increase Living Donation
Financial -
Guarantee that all living donors, without qualification, are reimbursed for all expenses involved in the donation, including lost wages. This includes non-directed donors and potential donors who are evaluated but don’t ultimately donate.
Guarantee living donors access to health care coverage for any medical expense or disability related to the donation
Guarantee living donors life insurance coverage for death related to the donation
Guarantee that living donors get their jobs, or equivalent jobs, back
Guarantee that living donors will not be discriminated against in obtaining health and life insurance
Establish a specific billing code for post-donation care of living donors
Education -
Create an NKF Living Donor Council to support the needs of living donors and potential donors
Create a “Living Donation Breakthrough Collaborative" to stimulate best practices for living donation
Inform the general public about new developments in living donation and transplantation
Medical Practice -
Increase staff and physical resources at transplant centers to minimize the time waiting for a living donation
Evaluate more than one potential living donor for a single recipient when feasible
Collect, maintain and analyze data on living donors annually, consisting of, at least, blood pressure, eGFR, proteinuria and Hb A1C
Make the donation and transplant system and processes more efficient and equitable Medical Practice -
Eliminate regional variations in the rates of consent, living donations, early transplantation, access to transplantation and follow-up care
Eliminate racial and other disparities in donating, listing, remaining active on the waiting list and receiving a transplant
Maintain uniform organ donation laws across the United States
THE NKF CONTENDS THAT IF THEY ARE SUCCESSFUL WITH THIS INITIATIVE, A PERSON ON THE LIST WILL NOT HAVE TO WAIT MORE THAN 1 YEAR ON THE LIST!
TAGS:Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life, END THE WAIT
The National Kidney Foundation’s 10 year plan to End the Wait:
Organ Donation & Transplantation RECOMMENDATIONS
Improve Outcomes of First Transplants
Financial - Cover immunosuppressive drugs for life
Education - Educate CKD Stage 4 patients about
staying as healthy as they can
the opportunities for and benefits of early transplantation
the possibility of living donations and
… the identification of potential living donors
Medical Practice -
Evaluate Stage 4 CKD patients for a transplant prior to the initiation of dialysis
Increase Deceased Donation
Financial - Ensure that OPOs have the discretion and funding to assist donor families with expenses directly related to the donation, which may include some funeral expenses
Education - Facilitate awareness of all appropriate hospital personnel about the optimal care for potential donor families
Medical Practice -
Minimize discard and maximize utilization of donated organs
Identify, recover and utilize organs from Extended Criteria Donors and from Donation after Cardiac Death donors nationwide
Increase Living Donation
Financial -
Guarantee that all living donors, without qualification, are reimbursed for all expenses involved in the donation, including lost wages. This includes non-directed donors and potential donors who are evaluated but don’t ultimately donate.
Guarantee living donors access to health care coverage for any medical expense or disability related to the donation
Guarantee living donors life insurance coverage for death related to the donation
Guarantee that living donors get their jobs, or equivalent jobs, back
Guarantee that living donors will not be discriminated against in obtaining health and life insurance
Establish a specific billing code for post-donation care of living donors
Education -
Create an NKF Living Donor Council to support the needs of living donors and potential donors
Create a “Living Donation Breakthrough Collaborative" to stimulate best practices for living donation
Inform the general public about new developments in living donation and transplantation
Medical Practice -
Increase staff and physical resources at transplant centers to minimize the time waiting for a living donation
Evaluate more than one potential living donor for a single recipient when feasible
Collect, maintain and analyze data on living donors annually, consisting of, at least, blood pressure, eGFR, proteinuria and Hb A1C
Make the donation and transplant system and processes more efficient and equitable Medical Practice -
Eliminate regional variations in the rates of consent, living donations, early transplantation, access to transplantation and follow-up care
Eliminate racial and other disparities in donating, listing, remaining active on the waiting list and receiving a transplant
Maintain uniform organ donation laws across the United States
THE NKF CONTENDS THAT IF THEY ARE SUCCESSFUL WITH THIS INITIATIVE, A PERSON ON THE LIST WILL NOT HAVE TO WAIT MORE THAN 1 YEAR ON THE LIST!
TAGS:Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life, END THE WAIT
KIDNEY STORIES: HELP FIND NURSE VAL A KIDNEY
Nurse Val is a Registered Nurse that was diagnosed with Kidney Disease 4 years ago and has been on dialysis for 3 years. She refuses to go on disability, and works 2 jobs, while on dialysis.
Mission
My name is Alexis, I am Val's daughter, and I am starting this page to try to save my mother's life by finding her a kidney, so that she can keep doing what she does best, and keep SAVING LIVES.
Description
Valda got the name "Nurse Val" from being a Nurse Full-Time (for 25yrs. now), even when she is off of work people still call her for medical help and advice. She truly has a big heart and is always there to help everybody with anything, not just medical.She has 3 biological children, 1 legally adopted child, 1 adopted child who had no home, and a husband of 30yrs. I am starting this page to try to save my mother's life by finding her a kidney.
General Information
Blood Type O+
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KIDNEY STORIES: KIDNEY FOR THERESA
Theresa (Harroun) Gliha, blood type A, lives in Michigan
Description
I am a 58 year old wife, mother and grandmother living in the southeast Michigan area. I was diagnosed with CKD (Interstitial Nephritis) in January 2012, most likely due to NSAID toxicity. I had been on a daily dose of a prescription NSAID (meloxicam) for my degenerative disk disease for about 7 years. My kidney functionality had been steadily declining over those years but my physician never noti...ced or did not make me aware of it until I was in Stage 5, with a GFR of 11. By the time I was referred to a nephrologist it was too late. Irreparable damage had already been done, my only options were a life on dialysis or a kidney transplant. Please don't let this happen to you. Ask for copies of all your tests whenever blood or urine is taken. Make your Dr. explain the results to you. If my kidney disease would have been caught when I was in Stage 3, we may have been able to reverse some of the damage. I will have to start dialysis soon, but I will continue to search for a kidney donor. My kidney donor would need to be blood type A or O. My daughter was tested and was a match for me, but she was disqualified due to blood pressure problems. 4 other potential donors have been tested to no avail. I am praying for a miracle now. If you or anyone you know might be able to help, please contact me via this site or call the University of Michigan Transplant Center at 734.763.4228.
TAGS:End, Facebook, Failure, Foundation, Indiana, Jim, Journal, Kidney, Live, Myers, More…NCS, National, Ning, Renal, Stage, Stories, Tumblr, University, Weebly, WordPress, a, awareness, blood, chronic, diabetic, dialysis, disease, donate, donation, donor, find, for, fundraiser, kidney, life, list, living, my, organ, polycystic, recipient, save, seeking, share, sharing, spare, theresa, transfusion, transplant
Friday, June 28, 2013
Renalvations: Milestones
Renalvations: Milestones: A couple weeks after Mom's evaluation, UAB Transplant Board officially approved her as an active kidney transplant candidate. It wa...
Tuesday, June 18, 2013
KIDNEY STORIES: FISHIN' FOR A KIDNEY
Bob Watkins has been on Dialysis for 3 years due to undiagnosed diabetes. He needs a donor with B or O blood type. to see if you're a match please contact The transplant coordinator at UMass Memorial Medical Center in Worcester, Massachusetts
Description
Call 508 334-1000 and ask for the transplant coordinatorThe website has great information about living donation. The message board is for questions and sharing experiences with other donors or potential donors.
www.LivingDonorsOnline.org
Please share with everyone you know! The more people that view this page the higher the chances to find a match :)
TAGS: fiwhin' for a kidney, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: MY SISTER NEEDS A KIDNEY TRANSPLANT
This is my sister Patty and she is in desperate need of a kidney transplant. She is in end-stage renal failure and has been living on a dialysis machine since Jan 2012 . She has no family match. Please click below on "About" to read more information.
Description
Please help!! My sister Patty is a loving wife and mother of 4 beautiful and supportive children - 2 boys and 2 girls who are her world. Patty comes from a large family with 5 sisters, 3 of whom are not a compatible match and 2 who are not medically eligible to donate. Our mother is heartbroken that that she can't save her daughter because she is too old to donate at 86 and our father is not al...ive. Her loving husband, her 4 children and multiple people outside of the family have been tested, and sadly, no compatible match. I had hoped so much that I could donate my spare kidney to her immediately, and it was devastating news to learn I was not a compatible match. In desperation to save my sister's life, I've created this page to reach out to the public to ask if you - or anyone you know - would ever consider donating a kidney to my sister if you matched or could participate in the paired exchange program via the National Kidney Registry?
Since I can't donate a kidney to her, I and other family members are participating in a "paired exchange program" in which the National Kidney Registry is trying to find someone out there like my sister needing a kidney who one of us may match and can donate a kidney to, and at the same time find someone who matches my sister willing to donate a kidney to her. It is more than a year that we are participating in this pair exchange and the Registry has not been able to find a compatible donor for Patty and she cannot sustain life on a dialysis machine. Her love and passion for life is enormous, but dialysis makes her sick and her anemia leaves her with little energy to enjoy a life of quality.
If you, or someone you know, would be willing to be tested to see if you are a match for my sister and have the heart to donate one of your kidneys if you are, please call JANICE GLIDEWELL , TRANSPLANT MANAGER, at Allegheny General Hospital in Pittsburgh at 412-359-6558. Her email is JGLIDEWE@wpahs.org. My sister's name is Patty Chapman.
Patty was diagnosed with end-stage kidney failure and uncontrolled hypertension of unknown etiology (cause). She has been living on a dialysis machine since January 2012. We have no known history of kidney disease in our family and doctors have been unable to determine what caused her condition. The waiting list for a cadaver (dead) kidney is very long - approximately 4-5 years or more, and Patty will not live this long. A number of people outside of the family have been tested but still no compatible match.
Patty needs a donor whose blood type is either B or O. It doesn't matter where you live in the USA or Canada to be tested, and It's okay if you don't know what your blood type is. The transplant center can test your blood (for free, of course). When you call Janice she will ask you some questions about your medical history which will help determine if you could be a potential donor, and if so, you would then be asked donate a few tubes of blood to determine your blood type and whether you match. All testing is completely free.
Please feel free to message me if you have any questions you would like to ask.
If you wish to learn more, please visit the National Kidney Registry for information on how you can help. http://www.kidneyregistry.org/index.php
Pay it forward! Even if you have no interest in being a kidney donor, you can still help Patty enormously by sharing this information with others. Clicking on "Like" and "Share" will help spread the word. The most effective way of spreading this information is by sharing the link to this page on your own Facebook (by clicking "Share"). Please consider being a kidney donor to my sister, and even if you can't "share your spare", please help me to reach as many people as possible with this urgent plea in the hopes that someone can save Patty's life. It only takes one Hero!!
Thank you so much!!
Since I can't donate a kidney to her, I and other family members are participating in a "paired exchange program" in which the National Kidney Registry is trying to find someone out there like my sister needing a kidney who one of us may match and can donate a kidney to, and at the same time find someone who matches my sister willing to donate a kidney to her. It is more than a year that we are participating in this pair exchange and the Registry has not been able to find a compatible donor for Patty and she cannot sustain life on a dialysis machine. Her love and passion for life is enormous, but dialysis makes her sick and her anemia leaves her with little energy to enjoy a life of quality.
If you, or someone you know, would be willing to be tested to see if you are a match for my sister and have the heart to donate one of your kidneys if you are, please call JANICE GLIDEWELL , TRANSPLANT MANAGER, at Allegheny General Hospital in Pittsburgh at 412-359-6558. Her email is JGLIDEWE@wpahs.org. My sister's name is Patty Chapman.
Patty was diagnosed with end-stage kidney failure and uncontrolled hypertension of unknown etiology (cause). She has been living on a dialysis machine since January 2012. We have no known history of kidney disease in our family and doctors have been unable to determine what caused her condition. The waiting list for a cadaver (dead) kidney is very long - approximately 4-5 years or more, and Patty will not live this long. A number of people outside of the family have been tested but still no compatible match.
Patty needs a donor whose blood type is either B or O. It doesn't matter where you live in the USA or Canada to be tested, and It's okay if you don't know what your blood type is. The transplant center can test your blood (for free, of course). When you call Janice she will ask you some questions about your medical history which will help determine if you could be a potential donor, and if so, you would then be asked donate a few tubes of blood to determine your blood type and whether you match. All testing is completely free.
Please feel free to message me if you have any questions you would like to ask.
If you wish to learn more, please visit the National Kidney Registry for information on how you can help. http://www.kidneyregistry.org/index.php
Pay it forward! Even if you have no interest in being a kidney donor, you can still help Patty enormously by sharing this information with others. Clicking on "Like" and "Share" will help spread the word. The most effective way of spreading this information is by sharing the link to this page on your own Facebook (by clicking "Share"). Please consider being a kidney donor to my sister, and even if you can't "share your spare", please help me to reach as many people as possible with this urgent plea in the hopes that someone can save Patty's life. It only takes one Hero!!
Thank you so much!!
TAGS: my sister needs a kidney transplant, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
KIDNEY STORIES: FIND A KIDNEY DONOR FOR BRAD
This Facebook page is an attempt to broaden our search for a kidney donor for my husband, Brad Weeman. While we've been intensely private about Brad's situation thus far, we are becoming more desperate to find a donor.
Description
My husband Brad suffers from Chronic Renal Failure and in July 2011, he entered stage 5 renal failure and had to begin dialysis. Brad is officially on the cadaver kidney transplant list for MA/New England, with an average wait of 5 years. If Brad were to find a living donor, that wait would be immediately eliminated.
We have been intensely private about Brad's situation, but at this point we ha...ve decided we need to broaden our search to as many channels as possible. Therefore, we have created this Facebook page in an effort to find someone with blood type O who might be interested in being a donor for Brad. We would greatly appreciate your consideration in this matter, even if it's to just "share" this page and spread the word.
For those with questions and/or those of you who would like to move forward with being tested, I have listed the donor transplant coordinator Kristen's contact information below. You can also contact me or Brad with questions, and access additional information on donation on the NKF's website.
Thank you,
Meredith and Brad Weeman
meredithlaurabrown@gmail.com
Kristen Pelletier RN, BSN
Brigham and Women's Hospital, Boston, Massachusetts
617.732.8683
kpelletier@partners.org
We have been intensely private about Brad's situation, but at this point we ha...ve decided we need to broaden our search to as many channels as possible. Therefore, we have created this Facebook page in an effort to find someone with blood type O who might be interested in being a donor for Brad. We would greatly appreciate your consideration in this matter, even if it's to just "share" this page and spread the word.
For those with questions and/or those of you who would like to move forward with being tested, I have listed the donor transplant coordinator Kristen's contact information below. You can also contact me or Brad with questions, and access additional information on donation on the NKF's website.
Thank you,
Meredith and Brad Weeman
meredithlaurabrown@gmail.com
Kristen Pelletier RN, BSN
Brigham and Women's Hospital, Boston, Massachusetts
617.732.8683
kpelletier@partners.org
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KIDNEY STORIES: KIDNEY 4 NICK
In search of a Kidney Donor for Nick Crouse.
Description
Nick is a 22 year old small engine mechanic who enjoys fixing things. His hobbies include going dirt bike riding and playing video games. He's a beloved son, grandson, brother, nephew, uncle and friend. On November 14th 2012, Nick was diagnosed with End Stage Renal Failure at Abington Memorial Hospital Trauma Center. He was given emergency Dialysis, Plasmapheresis and received several pints of blood. His week stay in the hospital was the starting point to a new and very difficult lifestyle for him as well as his loved ones. Since then Nick has endured multiple surgeries and is in need of a Kidney Transplant. He has chose Penn Medicine Transplant Center to be where he will undergo his transplant. More information will be included to inform potential donors as well as to lead them in the right direction to be a kidney donor to Nick. Nicks blood type is O positive which means he's compatible with O positive and O negative blood types. There are further tests to be completed to ensure the potential donor is a complete match. Please share this page with everyone you know because if not you someone you know could be the miracle Nick needs. Thank you!
Website to Penn Medicines Kidney Transplants
http://www.pennmedicine.org/transplant/patient-care/transplant-programs/kidney-transplant/
To become a Donor - Follow these steps
1.Go to Website above
2. Click on Transplant Process
3.Right underneath click on Evaluations
4. Choose the last printable File "Kidney Living Donor Referral Form"
5.Fill out and Contact Via Message to arrange a convenient Pick up or Drop off or simply mail it to Penn's Transplant Center; address given on the Form. Thank you.
Email: Kidney4Nick@gmail.com or Message Facebook Page!
Website to Penn Medicines Kidney Transplants
http://www.pennmedicine.org/transplant/patient-care/transplant-programs/kidney-transplant/
To become a Donor - Follow these steps
1.Go to Website above
2. Click on Transplant Process
3.Right underneath click on Evaluations
4. Choose the last printable File "Kidney Living Donor Referral Form"
5.Fill out and Contact Via Message to arrange a convenient Pick up or Drop off or simply mail it to Penn's Transplant Center; address given on the Form. Thank you.
Email: Kidney4Nick@gmail.com or Message Facebook Page!
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KIDNEY STORIES: KIDNEY NEEDED FOR JULIA ZOOK
I am in need of a kidney! To see my description, click on About.
Description
Hi! My name is Julia Zook. I am 30 years old and single and I live in Harlan, IN. In September, 2008, I went to my doctor because I was having some issues. He did some tests and I was diagnosed with kidney disease (PKD). At that time I was in Stage 4 and on February 12th, 2009 I started dialysis (Stage 5). I do not know how I got the disease or when it started. I am currently on hemodialysis at a center in Auburn, IN. I go there three times a week, three and a half hours each time. My blood type is A+, so anyone with A or O blood type is able to donate to me. If anyone is interested in donating, you can contact my transplant coordinator at (260)435-6211. I would prefer a living donor.
TAGS: Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
Sunday, June 16, 2013
Saturday, June 8, 2013
KIDNEY STORIES: JEAN NEEDS A KIDNEY
Hi! My names is Jean and I am one of 94,000 that need a kidney transplant. Please read the About section to find out how you can help me find one. Thanks so very much!
Description
Hi! My names is Jean and I am one of 94,000 that need a kidney transplant. Late 2011 I was diagnosed with medullary sponge kidney (MSK) and stage 3 chronic kidney disease (CKD). A short five months later my disease had progressed quickly and I was informed a kidney transplant would be needed soon.
MSK is a congenital disease. That means I was born with it. I do not have the typical symptoms o...f MSK, instead my MSK has led to nephrocalcinosis, shrunken kidneys and low functioning kidneys. I do not have any other health issues and have fortunately been able to avoid dialysis. But it is only a matter of time. I am hoping to have a kidney transplant before dialysis is needed.
I am listed at IU Health in Indy and the University of Louisville Hospital. My blood type is A. But any blood type can donate! I have some loving family members who have gone thru the testing but are unable to donate for various reasons. They are heroes in my book!
If you have an interest in being a living kidney donor to me or any of the other 94,000 kidney patients you can contact me at jeaniekaste@gmail.com or call the IU Transplant Center at 317-944-4370.
If you cannot donate a kidney but wish to help, please share my page and encourage others to share it also. It could lead to a miracle!
Thank you!
Jean
MSK is a congenital disease. That means I was born with it. I do not have the typical symptoms o...f MSK, instead my MSK has led to nephrocalcinosis, shrunken kidneys and low functioning kidneys. I do not have any other health issues and have fortunately been able to avoid dialysis. But it is only a matter of time. I am hoping to have a kidney transplant before dialysis is needed.
I am listed at IU Health in Indy and the University of Louisville Hospital. My blood type is A. But any blood type can donate! I have some loving family members who have gone thru the testing but are unable to donate for various reasons. They are heroes in my book!
If you have an interest in being a living kidney donor to me or any of the other 94,000 kidney patients you can contact me at jeaniekaste@gmail.com or call the IU Transplant Center at 317-944-4370.
If you cannot donate a kidney but wish to help, please share my page and encourage others to share it also. It could lead to a miracle!
Thank you!
Jean
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KIDNEY STORIES: KIDNEY TRANSPLANT AND FUNDRAISER FOR DARWIN
Monetary donations to the Darwin & Carolyn Rittgers Fund can be mailed to: Darwin & Carolyn Rittgers Medical Fund c/o Veridian Credit Union, 315 Oak Ridge Circle, Waverly, Iowa 50677
Company Overview
Friends and family of Darwin Rittgers created this page to inform others about his condition and how they can help.
Darwin, age 54, long-time resident of Waverly, IA and former Waverly Police Officer, was informed by doctors in August of 2009 that his kidneys were losing function and that dialysis was a certainty in the near future unless he had a kidney transplant. Doctors continued monitoring ...his blood levels closely and he was placed on the National Donor List which has a waiting period of 3-5 years.
Several friends and relatives offered to donate; however, for various reasons, they were unable to do so. Darwin was told that a spouse is normally not a good candidate for a match, but after a routine blood donation to the Red Cross they found that Carolyn had the same blood type! Both Darwin and Carolyn went through comparative blood typing and DNA testing and they received the wonderful news that Carolyn was a match and could possibly be Darwin’s donor! They went to Iowa City at the end of October for further testing to confirm this, but when Carolyn went through testing, they discovered she has a cyst the size of a softball on her ovaries. She will be getting this taken care of before the transplant will take place. Darwin continues to have his levels and functions checked monthly as they prepare for an upcoming transplant, hopefully with Carolyn being the donor.
This whole situation has put a tremendous strain on Darwin & Carolyn physically, emotionally, as well as financially, as you can imagine. It is common for transplant patients to be asked to raise money prior to a transplant to cover such things as: anything not covered by insurance, medicine co-pays, travel expenses (gas food, hotel stays), outside testing, loss of income before and after the surgery, etc. This is a unique situation, in that, if Carolyn is the donor, they will both be off of work for quite some time following the surgery. We want to ensure that the last thing they need to worry about is their finances….that they can focus on their recovery.
That is the purpose of this group. We know that many people love Darwin & Carolyn, have been impacted by their lives, and would want to help. This page will be a way that we can keep everyone updated as to how they are doing, where they are at in the process, and how you can help in some way. We will be planning benefits for the family to raise funds, and have set up an account at the First National Bank in Waverly in their name that people can donate to. We are also encouraging groups and individuals to think of ways that they can help…either by planning your own fundraiser ( garage sale, bake sale, car wash, love-offering, raffles, collection jars in businesses, etc. ) through your group, church, organization, or place of employment, promoting this page, or getting involved in helping us get the word out.
If everyone will help in some way , we know Darwin & Carolyn will be forever grateful. We hope you will check back to this page often to see how you can help! Thank you!!
Donations to the Darwin & Carolyn Rittgers Fund can be mailed to :
Darwin & Carolyn Rittgers Medical Fund
c/o Veridian Credit Union
315 Oak Ridge Circle
Waverly, Iowa 50677
Darwin, age 54, long-time resident of Waverly, IA and former Waverly Police Officer, was informed by doctors in August of 2009 that his kidneys were losing function and that dialysis was a certainty in the near future unless he had a kidney transplant. Doctors continued monitoring ...his blood levels closely and he was placed on the National Donor List which has a waiting period of 3-5 years.
Several friends and relatives offered to donate; however, for various reasons, they were unable to do so. Darwin was told that a spouse is normally not a good candidate for a match, but after a routine blood donation to the Red Cross they found that Carolyn had the same blood type! Both Darwin and Carolyn went through comparative blood typing and DNA testing and they received the wonderful news that Carolyn was a match and could possibly be Darwin’s donor! They went to Iowa City at the end of October for further testing to confirm this, but when Carolyn went through testing, they discovered she has a cyst the size of a softball on her ovaries. She will be getting this taken care of before the transplant will take place. Darwin continues to have his levels and functions checked monthly as they prepare for an upcoming transplant, hopefully with Carolyn being the donor.
This whole situation has put a tremendous strain on Darwin & Carolyn physically, emotionally, as well as financially, as you can imagine. It is common for transplant patients to be asked to raise money prior to a transplant to cover such things as: anything not covered by insurance, medicine co-pays, travel expenses (gas food, hotel stays), outside testing, loss of income before and after the surgery, etc. This is a unique situation, in that, if Carolyn is the donor, they will both be off of work for quite some time following the surgery. We want to ensure that the last thing they need to worry about is their finances….that they can focus on their recovery.
That is the purpose of this group. We know that many people love Darwin & Carolyn, have been impacted by their lives, and would want to help. This page will be a way that we can keep everyone updated as to how they are doing, where they are at in the process, and how you can help in some way. We will be planning benefits for the family to raise funds, and have set up an account at the First National Bank in Waverly in their name that people can donate to. We are also encouraging groups and individuals to think of ways that they can help…either by planning your own fundraiser ( garage sale, bake sale, car wash, love-offering, raffles, collection jars in businesses, etc. ) through your group, church, organization, or place of employment, promoting this page, or getting involved in helping us get the word out.
If everyone will help in some way , we know Darwin & Carolyn will be forever grateful. We hope you will check back to this page often to see how you can help! Thank you!!
Donations to the Darwin & Carolyn Rittgers Fund can be mailed to :
Darwin & Carolyn Rittgers Medical Fund
c/o Veridian Credit Union
315 Oak Ridge Circle
Waverly, Iowa 50677
www,facebook.com/kidneystories
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KIDNEY STORIES: FIND A KIDNEY FOR OUR DADDY
Bilal is a 32 yr. old member of the U.S. Air Force. Needs living kidney donor- Blood Type 0. Transplant center is Denver, CO. Click ABOUT for more info...
Description
Bilal is 32 years old and is a member of the U.S. Air Force. We have been married for almost 14 years, and have two beautiful children together who are 8 and 4. We are praying for a wonderful person to step forward and help save his life by donating their spare kidney. He is such a vibrant and happy person, and nothing brings him more joy than playing with our children. Bilal leads a very active l...ife, and is a Black Belt in both Tae Kwon Do and Tang Soo Do, as well as a private pilot. Unbeknownst to most, Bilal is also a very talented pianist, and was actually a piano instructor before he joined the military. Bilal first found out he had chronic kidney disease when he was 25 years old and began having problems with his blood pressure. At the time, he was training for a marathon, and was otherwise in perfect health. Over the last few years his kidney function has declined dramatically, and we found out on June 6th, 2013 that he would have to go on the national transplant list. Dealing with all of this has been difficult for our family, but we are remaining optimistic. Bilal's nephrologist told us his best option is to find a living donor. We are currently searching for a donor with BLOOD TYPE * O * If you or someone you know is interested in being tested for a match, please contact us via this page, or at bilalneedsakidney@yahoo.com. His current transplant center will be Denver, CO, but he may also be on the list for Nashville, TN or Orlando, Fl. Thank you for taking the time to look over this page, and God Bless.
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Wednesday, June 5, 2013
KIDNEY STORIES: DEBORAH DONNELL NEEDS A KIDNEY
Debbie has PKD. Both of her kidneys were removed in November 2012. She has been on dialysis for 4 years and has been waiting for a transplant. We need a living kidney donor! Contact us for more info!
Description
Debbie has Polycystic Kidney Disease (PKD). She is a wife, mother, grandmother, teacher, and scout leader. She has been on dialysis for 4 years and has been waiting for a transplant. In November 2012, she had a bilateral nephrectomy (both kidneys were removed) because they were so large they were further degrading her quality of life. Since being on the waiting list she has received two calls, but neither kidney was viable. You can become her guardian angel by being her living donor. Or simply spread the word about her cause, please help us find a match!www.facebook.com/kidneystories
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KIDNEY STORIES: FIND A KIDNEY FOR JACK
Jack Cox is a wonderful person. He is currently on dialysis here in Richmond, Indiana and is looking for a kidney donor.Jack's blood type is O+ so if you are interested PLEASE contact us! Thank You!
Description
He was a volunteer fireman for 23 years and is now a honorable member. He is a amazing papaw to Keiten that is 5 and Ava that is 3! He loves to go camping, this is when he feels relaxed being with his family! He is an avid Centerville High School sports fan. He loves Friday nights going to basketball and football games. He works full time at Wayne County Highway dept where he has been there for ma...ny years now. He started dialysis in Sept of 2009 when we surprisingly learned he was in stage 5 renal failure and also needing open heart surgery. He recovered great from the open heart surgery but is still struggling with the dialysis. He goes into dialysis at 8:30 at night and gets out at 3:30-4 am then heads to work at 6:30 to work his 8 hour shift! He would love to be able to spend more time with his Grandkids playing and also working on cars but as most people don't know dialysis takes so much out of him its hard for him to do that
All it takes to find out is a simple blood test. There will be no medical costs to the donor. If you are interested in learning more, feel free to call 1-800-382-4602 (IU Health Transplant in Indianapolis). Do me one more small favor. Even if you are not interested in learning more, PLEASE SHARE THIS FAN PAGE to get the word out to more people. Thank you.
All it takes to find out is a simple blood test. There will be no medical costs to the donor. If you are interested in learning more, feel free to call 1-800-382-4602 (IU Health Transplant in Indianapolis). Do me one more small favor. Even if you are not interested in learning more, PLEASE SHARE THIS FAN PAGE to get the word out to more people. Thank you.
www.facebook.com/kidneystories
TAGS:find a kidney for jack, Ning, Live Journal, Tumblr, Weebly, WordPress, Facebook, Kidney Stories, Jim Myers, kidney, dialysis, blood, transfusion, donor, recipient, seeking, awareness, National Kidney Foundation, Indiana University, sharing, kidney disease, End Stage Renal Failure, polycystic kidney disease, chronic kidney disease, kidney for, diabetic, save my life, living kidney donor, organ donation, find a kidney for, NCS, share a spare, transplant list, fundraiser, donate life,
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Tuesday, June 4, 2013
KIDNEY STORIES: MY COUSIN JOELY NEEDS A KIDNEY
Joely is my cousin and she has been on dialysis for 15 years. She is a beautiful down to earth person.. She works hard to help her family. We are starting this fan page to find her a kidney, she had a O type blood.
I'm looking for a kidney for my cousin Joely Sampson! She is blood type O positive. Her transplant center is Methodist Hospital in Houston, Texas and the number is (713) 441-1001. She has been on dialysis since April, 1997. She is in need of a kidney ASAP. Her kidney failure is hereditary. She is the proud mother of two beautiful children 16 and 25. One grandchild that is 5.
Description
My cousin is located in Houston, Texas and blood type O positive. My transplant center is Methodist Hospital and the phone number is (713) 441- 1001. My coordinator name is Stephanie.
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KIDNEY STORIES: DIANE'S LIVING DONORT SEARCH
Hi, my name is Diane. I am 57 years old. I live in Attleboro, Ma. I have been married to my husband Len for 32 years. My kidneys shut down almost four years ago.
Description
Hi, my name is Diane. i am 57 years old. i live in Attleboro, Ma. i have been married to my husband Len for 32 years. Len and I have one son, Nicholas. He is 31, married and lives nearby. Almost four years ago, my aortic valve burst. i also got pneumonia. I was given medication that shut my kidneys down and have been on dialysis since. I love to read Amish fiction and visit Amish Country often.... I am active in my CHURH as an elder and I teach woman's bible study. I am a past president of our local Lions International Club. I spend my time quilting and volunteering. I currently help with a free food program in our CHURH, Bethany Village Fellowship.
I am working with The Organ Transplant Team from Rhode Island Hospital. They are a paired/donation hospital. They are located at 593 Eddy St., Providence, R. I. 02903. They can be reached at webteam@lifespan.org, 1-401-444-3091. My blood type is O+.
My e-mail address is Diane.hk@aol.com.
Thank you for taking the time to read my story.
I am working with The Organ Transplant Team from Rhode Island Hospital. They are a paired/donation hospital. They are located at 593 Eddy St., Providence, R. I. 02903. They can be reached at webteam@lifespan.org, 1-401-444-3091. My blood type is O+.
My e-mail address is Diane.hk@aol.com.
Thank you for taking the time to read my story.
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KIDNEY STORIES: KAREN MADDOX JOURNEY TO A TRANSPLANT
I am 45 years old, a wife of 27 years. I have two children . A daughter and a son . I have five grandchildren. I was diagnosed with IGA Nephropathy and started dialysis in 2008.
Description
I have been trying to get on the transplant list for 5 years, I finally was placed this year but now they are telling me I have and 5-10 year waiting time. I am in search of a live donor. I am type o+ and need an o type to match . I am currently listed at St. Vincent's hospital in Indianapolis, Indiana. My case worker is Tammy Rader at (317) 338-2694 Anyone wanting to get tested please call. My insurance would cover ALL medical cost of any testing and surgery however you must have your own insurance in case anything is found during testing. I am on dialysis 3 days a week for three to four hours at a time. It is painful and very draining.Although it keeps me alive it is not a cure only a treatment. I am so anxious to get a kidney and get back to a normal life where I can have the energy to work again and play with my grandchildren. Please help save a life , share your spare :)
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